The Subjectively Perceived Wellbeing Of People With Prader Willi Syndrome
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| Author | : Norbert Hödebeck-Stuntebeck |
| Publisher | : Logos Verlag Berlin GmbH |
| Total Pages | : 130 |
| Release | : 2024-05-15 |
| Genre | : Psychology |
| ISBN | : 3832582703 |
Many people work towards a goal of experiencing high levels of wellbeing. However, wellbeing is a highly subjective notion. In order to determine some parameters of such a multifaceted concept, this study introduces five areas representing subjectively perceived wellbeing: positive feelings, engagement (flow), social relationships, meaningfulness, experience of self-efficacy. On the basis of these five areas, diverse methods are then presented that map individual characteristics in the respective areas of people with Prader-Willi syndrome (PWS). Different methods and procedures discussed in this work can contribute to increasing the level of development in each of the areas, enabling the evaluation of existing PWS services, the assessment of development processes and the comparison of services in the PWS area.
| Author | : Deepan Singh |
| Publisher | : Cambridge University Press |
| Total Pages | : 201 |
| Release | : 2022-06-16 |
| Genre | : Medical |
| ISBN | : 1108814395 |
An accessible guidebook for all clinicians and caregivers addressing the neurobehavioral problems associated with Prader-Willi Syndrome.
| Author | : Louise R. Greenswag |
| Publisher | : Springer Science & Business Media |
| Total Pages | : 293 |
| Release | : 2012-12-06 |
| Genre | : Medical |
| ISBN | : 1468403168 |
Management of Prader-Willi Syndrome is the first book to provide a comprehensive source of knowledge about Prader-Willi Syndrome and to offer common-sense guidelines for management. It consists of contributions from professionals in many health and allied disciplines who have worked with this special population. The book focuses on clinical, social, familial, and community issues related to care. It is directed to health, education, and other specialists in academic, clinical, and community settings. Management of Prader-Willi Syndrome describes strategies for management which are appropriate to an interdisciplinary approach.
| Author | : Gregory O'Brien |
| Publisher | : Cambridge University Press |
| Total Pages | : 236 |
| Release | : 1995 |
| Genre | : Medical |
| ISBN | : 9781898683063 |
Increasing interest over recent years in the study of the influences of environment and genetic factors on behavioural disorder has come from a wide range of disciplines. These studies have subsequently been focused through the foundation of the Society for the Study of Behavioural Phenotypes, which forms the basis for assimilating new information and coordinating future research in this field. This volume from founder members of the society presents a distillation of thinking and reviews appropriate measurement schedules. Including research findings, explanation of concepts, genetic scientific techniques and methodological issues, this work will be welcomed by those with an interest in behavioural disorder at every level.
| Author | : Merlin Butler |
| Publisher | : Springer Science & Business Media |
| Total Pages | : 569 |
| Release | : 2006-10-11 |
| Genre | : Medical |
| ISBN | : 0387335366 |
Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS. Clinical, social, family, and community issues are explored and management strategies identified. The text presents historical, medical, and genetic information to orient the reader. The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings. This manual is endorsed by The Prader-Willi Syndrome Association, which is recognized world-wide.
| Author | : |
| Publisher | : |
| Total Pages | : 2252 |
| Release | : 1968 |
| Genre | : Medicine |
| ISBN | : |
| Author | : Fleur Heleen Boot |
| Publisher | : Frontiers Media SA |
| Total Pages | : 51 |
| Release | : 2019-09-23 |
| Genre | : |
| ISBN | : 2889459950 |
The capacity of assistive technology (AT) to improve the lives of individuals with disabilities is well documented. Although promising, it is not without challenges. Historically, devices that provide mobility aids and physical supports dominate the world of AT; however, AT solution that specifically aims to address cognitive needs is scarce. The inequality of AT accessibility has left populations such as individuals with intellectual disability (ID) behind these potential benefits. This book presents six articles that highlight the need, impact, and possibilities of AT for people with ID. With the emphasis on the multidisciplinary perspectives, the objective of the book is to facilitate a better understanding of the needs of people with ID and the potential AT influences. Ultimately, we hope this book will shed some lights on this important topic and provoke more discussions and efforts devoted to improving the lives of individuals with ID through the use of AT.
| Author | : Steward Lloyd Einfeld |
| Publisher | : |
| Total Pages | : 113 |
| Release | : 2002 |
| Genre | : Mental retardation |
| ISBN | : 9780733418631 |
| Author | : Irene Cormac |
| Publisher | : RCPsych Publications |
| Total Pages | : 500 |
| Release | : 2012-12 |
| Genre | : Medical |
| ISBN | : 9781908020406 |
Psychiatrists tend to focus on mental health of their patients, sometimes at the expense of their physical health. This gives practical information on the physical health topics that are most relevant to people with mental disorders and helps psychiatrists to increase their confidence in managing these and knowing when to refer to a specialist.
| Author | : Institute of Medicine |
| Publisher | : National Academies Press |
| Total Pages | : 425 |
| Release | : 2006-10-13 |
| Genre | : Medical |
| ISBN | : 0309101115 |
Clinical practice related to sleep problems and sleep disorders has been expanding rapidly in the last few years, but scientific research is not keeping pace. Sleep apnea, insomnia, and restless legs syndrome are three examples of very common disorders for which we have little biological information. This new book cuts across a variety of medical disciplines such as neurology, pulmonology, pediatrics, internal medicine, psychiatry, psychology, otolaryngology, and nursing, as well as other medical practices with an interest in the management of sleep pathology. This area of research is not limited to very young and old patientsâ€"sleep disorders reach across all ages and ethnicities. Sleep Disorders and Sleep Deprivation presents a structured analysis that explores the following: Improving awareness among the general public and health care professionals. Increasing investment in interdisciplinary somnology and sleep medicine research training and mentoring activities. Validating and developing new and existing technologies for diagnosis and treatment. This book will be of interest to those looking to learn more about the enormous public health burden of sleep disorders and sleep deprivation and the strikingly limited capacity of the health care enterprise to identify and treat the majority of individuals suffering from sleep problems.
