The Long Hello

The Long Hello
Author: Cathie Borrie
Publisher:
Total Pages: 293
Release: 2010
Genre: Alzheimer's disease
ISBN: 9780981378602

This sensuous memoir strips away all preconceptions about what it means to be, or to love, a person with Alzheimer's, giving comfort to those who have walked the caregiving path and offering insight, hope, and a compass to those embarking on the journey. -- Cover, p. [4].

The Caregiver

The Caregiver
Author: Aaron Alterra
Publisher: Cornell University Press
Total Pages: 230
Release: 2018-10-18
Genre: Health & Fitness
ISBN: 1501720589

Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease. Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis. More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.

My Two Elaines

My Two Elaines
Author: Martin J Schreiber
Publisher: Harper Horizon
Total Pages: 192
Release: 2022-06-13
Genre: Biography & Autobiography
ISBN: 0785291709

In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.

Finding Joy in Alzheimer's

Finding Joy in Alzheimer's
Author: MD Faan Daniel C Potts
Publisher: Createspace Independent Publishing Platform
Total Pages: 0
Release: 2015-11-20
Genre: Alzheimer's disease
ISBN: 9781512321975

Here's a hope-filled book about Alzheimer's caregiving. It was written by Marie Marley, PhD - a well-known author on dementia issues - and neurologist Daniel C. Potts, MD, FAAN, both experts on caregiving. With a Foreword by Maria Shriver, this groundbreaking volume will give you hope in the midst of the darkness of Alzheimer's and other dementias. You can come to terms with your loved one's condition and free yourself to experience joyous interactions. Part I covers a variety of issues, such as the authors' belief that people with Alzheimer's can still enjoy life, how to overcome denial, five especially difficult situations, the role of grief on the journey to acceptance, and letting go of resentment through making peace with God. In Part II the authors provide 55 helpful tips for visiting people with Alzheimer's. Part III consists of numerous short stories illustrating the authors' joyous interactions with their loved ones. The stories will warm your heart and light your way along the path to achieving true joy.

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's
Author: Patti Davis
Publisher: Liveright Publishing
Total Pages: 185
Release: 2021-09-28
Genre: Health & Fitness
ISBN: 1631497995

With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

What If It's Not Alzheimer's?

What If It's Not Alzheimer's?
Author: Gary Radin
Publisher: Rowman & Littlefield
Total Pages: 505
Release: 2022-10-15
Genre: Family & Relationships
ISBN: 1633888738

Although the public most often associates dementia with Alzheimer’s disease, the medical profession continues to advance distinctions of various types of “other” dementias. What If It’s Not Alzheimer’s? is the first and remains the only comprehensive guide dealing with frontotemporal degeneration (FTD), the most common form of dementia for people under 60 years of age. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers. Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team, palliative approaches to managing care and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues along with end-of-life concerns. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private and community resources and legal options. The final section focuses on the caregiver, in particular the need for respite, holistic health practices and the challenge of managing emotions. This new, completely revised edition continues to follow worldwide collaboration in research and provides the most current medical information available including understanding of the different classifications of FTD, and more clarity regarding the role of genetics. Additionally, essays written by people living with the disease provide moving, first-hand experiences. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal degeneration.

Caregiver Confidential

Caregiver Confidential
Author: Cheri J. Bailly-Jacobs
Publisher:
Total Pages: 286
Release: 2020-03-24
Genre:
ISBN: 9781734747317

As the caregiver for your loved one with Alzheimer's disease, you may feel frustration, loneliness, and exhaustion. Cheri tells her personal experiences of caregiving for her husband with love, humor, and candor, She hopes her stories will encourage caregivers to reach out for help and to find compassion for themselves and their loved ones.

The Problem of Alzheimer's

The Problem of Alzheimer's
Author: Jason Karlawish
Publisher: St. Martin's Press
Total Pages: 269
Release: 2021-02-23
Genre: Health & Fitness
ISBN: 1250218748

A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.

Heeding the Caregiver Call

Heeding the Caregiver Call
Author: Dr. Barbara Ella Milton Jr.
Publisher: Xlibris Corporation
Total Pages: 355
Release:
Genre: Family & Relationships
ISBN: 1664143645

In the fall of 2015, Barbara Sr. called her only child to ask for her help. Unbeknownst to her family, Barbara Sr. was already in the grips of Alzheimer’s. This book tells the story of Barbara Jr.’s journey as her mother’s caregiver and shares insights into the physical, emotional, financial, and spiritual impacts of caregiving while fighting her own cancer. It also provides practical information to others who assume caregiving roles for their loved ones. Follow this mother and daughter’s journey through resentments and regrets, forgiveness and faith, laughter and love. Barbara Jr. promised her mother on her deathbed that she would tell her story. Here it is.

The Real Alzheimer's

The Real Alzheimer's
Author: Suzanne Giesemann
Publisher:
Total Pages: 274
Release: 2012-08-01
Genre: Family & Relationships
ISBN: 9780983853923

If the word "Alzheimer's" has become part of your vocabulary, you're probably looking for answers. What can I expect? How do I deal with this disease? Hold on for a no-holds-barred look at what it's like to live day to day with Alzheimer's disease. Other books and Internet websites provide signs, symptoms, and checklists. The Real Alzheimer's tells it like it really is in 21 candid interviews with caregivers, family members, practitioners, and the patients themselves. These emotionally compelling true stories of ordinary people coping with the different facets of Alzheimer's disease cover a variety of situations: husbands or wives caring for their partners, children caring for their parents, and practitioners caring for their patients. You'll hear from a cross-section of society: high income and low, well-educated and street-wise. You'll witness the beginning, middle, late, and end stages of this devastating disease. You'll meet caregivers dealing with their struggles alone, those paying for in-home care, and those who have placed their loved one in a nursing home. With awareness comes understanding and acceptance. The Real Alzheimer's is filled with the often poignant, sometimes funny, occasionally earthy, and always thought-provoking experiences and advice of those who are personally dealing with Alzheimer's disease and other forms of dementia. Here you'll find an honest and heartfelt look at what to expect when the diagnosis of Alzheimer's becomes a reality, and the best way to handle the challenges that lie ahead.