The Only Way To Live My Life And Coping With Als
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| Author | : Michael Boman |
| Publisher | : Lulu.com |
| Total Pages | : 160 |
| Release | : 2012-06-26 |
| Genre | : Biography & Autobiography |
| ISBN | : 1300011327 |
"The Only Way to Live" is a quick read filled with many entertaining stories. Michael has not held back anything in this book - brutal honesty and vulnerability when he talks about going from a life of non-stop adventure to his latest challenge of life - fighting ALS. An amazing tale of a kid with all the odds against him, moving all over the country multiple times with multiple family members in and out of his life, growing up and working hard to get what he wants in a career. Throughout the childhood stories, his young adult escapades, and through his years starting his career, it is apparent that Michael lives life to the fullest!
| Author | : Mark B. Bromberg |
| Publisher | : Oxford University Press |
| Total Pages | : 281 |
| Release | : 2017 |
| Genre | : Medical |
| ISBN | : 0190241624 |
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
| Author | : Sara Hendren |
| Publisher | : Penguin |
| Total Pages | : 242 |
| Release | : 2020-08-18 |
| Genre | : Design |
| ISBN | : 073522000X |
Named a Best Book of the Year by NPR and LitHub Winner of the 2021 Science in Society Journalism Book Prize A fascinating and provocative new way of looking at the things we use and the spaces we inhabit, and a call to imagine a better-designed world for us all. Furniture and tools, kitchens and campuses and city streets—nearly everything human beings make and use is assistive technology, meant to bridge the gap between body and world. Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider—or reconsider—the hidden assumptions on which our everyday environment is built. In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it—from cyborg arms to customizable cardboard chairs to deaf architecture—Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body’s stunning capacity for adaptation—rather than a rigid insistence on “normalcy”—look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.
| Author | : Bruce H. Kramer |
| Publisher | : U of Minnesota Press |
| Total Pages | : 215 |
| Release | : 2015-04-01 |
| Genre | : Health & Fitness |
| ISBN | : 1452945195 |
Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.
| Author | : Rick Ritter |
| Publisher | : Loving Healing Press |
| Total Pages | : 106 |
| Release | : 2006-01-01 |
| Genre | : Social Science |
| ISBN | : 1932690182 |
This workbook, written by a disabled veteran and social worker, provides more than 50 questions and exercises designed to empower those with physical loss and disability to better understand and accept their ongoing processes of loss and recovery.
| Author | : Sarah J. Robinson |
| Publisher | : WaterBrook |
| Total Pages | : 257 |
| Release | : 2021-05-11 |
| Genre | : Religion |
| ISBN | : 0593193539 |
A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.
| Author | : Michael Krasnow |
| Publisher | : Routledge |
| Total Pages | : 138 |
| Release | : 2014-04-04 |
| Genre | : Family & Relationships |
| ISBN | : 1317823214 |
My Life as a Male Anorexic is a uniquely male point of view of anorexia nervosa. It is the autobiographical account of a young man’s ongoing struggle with anorexia. Michael shared his story as part of the featured health segment “Men Dying to be Thin” on WSVN Channel 7 News in Miami, Florida, in May 1997.Michael Krasnow has had anorexia since 1984, and he chronicles his daily struggles, feelings, and experiences in this book. He writes in a relaxed, easygoing manner that makes the book appealing to all readers. While ignoring statistics and not pretending to be an expert on the disorder, Michael simply tells readers what his life is like and how anorexia has affected--even controlled--it. As of today, Michael has maintained his weight at 75 pounds on a 5-foot, 9-inch frame.Anyone who suffers, or anyone who knows someone who suffers from, anorexia will learn that male anorexia is a serious problem and that there needs to be psychological and medical help for the boys and men who struggle with anorexia. As Michael begins his book, “For years, anorexia existed, but very few people knew of it. Women who suffered from it did not realize that they were not alone. Eventually, as more became known and anorexia became more publicized, a greater number of women came forward to seek help, no longer feeling that they would be considered strange or outcasts from society. Maybe with the publication of this book, more men with the problem will realize that they are not alone either, and that they do not suffer from a ‘woman’s disease.’They can come forward without worrying about embarrassment.”Michael’s story will baffle, frustrate, sadden, and irritate readers, whether they are interested in the human side of Michael’s story, whether they are workers in the medical field--psychologists, psychiatrists, doctors, nurses, aides, social workers, mental health counselors--or whether they are teachers, coworkers, friends, or relatives of a male with anorexia. My Life as a Male Anorexic begins to shed light on the little-known or discussed problem of male anorexia nervosa.
| Author | : Ira Byock |
| Publisher | : Penguin |
| Total Pages | : 321 |
| Release | : 1998-03-01 |
| Genre | : Medical |
| ISBN | : 110150028X |
From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.
| Author | : Adrienne Martin |
| Publisher | : Princeton University Press |
| Total Pages | : 163 |
| Release | : 2013-12-22 |
| Genre | : Philosophy |
| ISBN | : 1400848709 |
What exactly is hope and how does it influence our decisions? In How We Hope, Adrienne Martin presents a novel account of hope, the motivational resources it presupposes, and its function in our practical lives. She contends that hoping for an outcome means treating certain feelings, plans, and imaginings as justified, and that hope thereby involves sophisticated reflective and conceptual capacities. Martin develops this original perspective on hope--what she calls the "incorporation analysis"--in contrast to the two dominant philosophical conceptions of hope: the orthodox definition, where hoping for an outcome is simply desiring it while thinking it possible, and agent-centered views, where hoping for an outcome is setting oneself to pursue it. In exploring how hope influences our decisions, she establishes that it is not always a positive motivational force and can render us complacent. She also examines the relationship between hope and faith, both religious and secular, and identifies a previously unnoted form of hope: normative or interpersonal hope. When we place normative hope in people, we relate to them as responsible agents and aspire for them to overcome challenges arising from situation or character. Demonstrating that hope merits rigorous philosophical investigation, both in its own right and in virtue of what it reveals about the nature of human emotion and motivation, How We Hope offers an original, sustained look at a largely neglected topic in philosophy.
| Author | : Eliot H. Dunsky |
| Publisher | : Createspace Independent Publishing Platform |
| Total Pages | : 0 |
| Release | : 2016-11-04 |
| Genre | : Amyotrophic lateral sclerosis |
| ISBN | : 9781534988668 |
Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig's disease. Determined to maintain the best quality of life possible-for as long as possible-he extensively researched the condition and its management. As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left. The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it. Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. ALS: An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.
