Reflections On Palliative Care
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| Author | : David Clark |
| Publisher | : |
| Total Pages | : 232 |
| Release | : 1999 |
| Genre | : Death |
| ISBN | : |
Palliative care seems set to continue its rapid development into the early years of the 21st century. From its origins in the modern hospice movement, the new multidisciplinary specialty of palliative care has expanded into a variety of settings. Palliative care services are now being provided in the home, in hospital and in nursing homes. There are moves to extend palliative care beyond its traditional constituency of people with cancer. Efforts are being made to provide a wide range of palliative therapies to patients at an early stage of their disease progression. The evidence-base of palliative care is growing, with more research, evaluation and audit, along with specialist programmes of education. Palliative care appears to be coming of age. On the other hand numbers of challenges still exist. Much service development has been unplanned and unregulated. Palliative care providers must continue to adapt to changing patterns of commissioning and funding services. The voluntary hospice movement may feel its values threatened by a new professionalism and policies which require its greater integration within mainstream services. There are concerns about the re-medicalization of palliative care, about how an evidence-based approach to practice can be developed, and about the extent to which its methods are transferring across diseases and settings. Beyond these preoccupations lie wider societal issues about the organization of death and dying in late modern culture. To what extent have notions of death as a contemporary taboo been superseded? How can we characterize the nature of suffering? What factors are involved in the debate surrounding end of life care ethics and euthanasia? David Clark and Jane Seymour, drawing on a wide range of sources, as well as their own empirical studies, offer a set of reflections on the development of palliative care and its place within a wider social context. Their book will be essential reading to any practitioner, policy maker, teacher or student involved in palliative care or concerned about death, dying and life-limiting illness.
| Author | : J. M. Hockley |
| Publisher | : Oxford University Press |
| Total Pages | : 209 |
| Release | : 2013 |
| Genre | : Medical |
| ISBN | : 0199644152 |
Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
| Author | : Barbara Karnes |
| Publisher | : |
| Total Pages | : 259 |
| Release | : 2003 |
| Genre | : Death |
| ISBN | : 9781737056805 |
In this full length book with a new preface added, Barbara Karnes shares her insights and experiences gathered over decades of working with people during their final act of living. For both professionals and lay people, this book weaves personal stories with practical care guidelines, including: living with a life threatening illness, signs of the dying process, the stages of grief, living wills, and other end of life issues. The Final Act of Living: Reflections of a Long-Time Hospice Nurse is an end of life book; a resource that reads like a novel, yet has the content of a textbook.Barbara wrote this book following years of being a hospice nurse at the bedside of hundreds of people in the months to moments before death. From the stories and experiences she shares, you will see that death doesn't just happen, there is an unfolding; there is a process to dying. The Final Act of Living is used as:*A resource on end of life for palliative care nurses*A training handbook for hospice nurses and volunteers*A reference book for anyone working with end of life issues: Lay ministers, social workers, counselors, nurses, chaplains*An easy read for anyone interested in dying and grief*A text book in college and university classes, CNA training, social work and LPN/RN classesThis material may be described as an "end of life book" however, as the title states, its content and philosophy is all about The Final Act of Living.
| Author | : Liz Jackson |
| Publisher | : Cambridge University Press |
| Total Pages | : 271 |
| Release | : 2020-11-05 |
| Genre | : Psychology |
| ISBN | : 110863916X |
Educating students for emotional wellbeing is a vital task in schools. However, educating emotions is not straightforward. Emotional processes can be challenging to identify and control. How emotions are valued varies across societies, while individuals within societies face different emotional expectations. For example, girls face pressure to be happy and caring, while boys are often encouraged to be brave. This text analyses the best practices of educating emotions. The focus is not just on the psychological benefits of emotional regulation, but also on how calls for educating emotions connect to the aims of society. The book explores psychology's understanding of emotions, 'the politics of emotions', and philosophy. It also discusses education for happiness, compassion, gratitude, resilience, mindfulness, courage, vulnerability, anger, sadness, and fear.
| Author | : C. Andrew Martin |
| Publisher | : |
| Total Pages | : 0 |
| Release | : 2010 |
| Genre | : Family & Relationships |
| ISBN | : 9780981621937 |
Reflections of a Loving Partner is the intimate story of two devoted partners confronting the challenges of a terminal diagnosis. Author C. Andrew Martin's world was shattered when his life partner, Gil, was diagnosed with AIDS. This eloquent memoir shares their love story, unveiling the burdens and the joys of the caregiving journey. Andrew chose to become Gil's caregiver. To prepare for what lay ahead, Andrew enrolled in hospice volunteer training, learning lessons to guide him through the medical, emotional, spiritual, and legal hazards of caregiving. Now a registered nurse and leader in the field of hospice and palliative care, Andrew has turned his personal experience into his life's work, sharing with others the valuable lessons he learned. Andrew shows us that when we are open to its possibilities, the loving and selfless act of being a caregiver for someone who is at the end of life can teach us just as much about living as about dying.
| Author | : Ann Richardson |
| Publisher | : CRC Press |
| Total Pages | : 170 |
| Release | : 2016-07-06 |
| Genre | : Medical |
| ISBN | : 1138031453 |
Highly Commended, BMA Medical Book Awards 2008 This book is about hospices, seen through the eyes of the people who work in them. Their individual voices, perspectives and stories invite readers into the day-to-day complexities of hospice life. There is growing public and professional attention to end of life care and the way dying patients and their families are treated. How can hospices make the process dignified and peaceful as possible? What sort of people dedicate their careers to helping the dying? What difficulties are they up against in providing this care, and what makes it all worthwhile?This inspirational book provides vivid, real-life accounts of hospice life from managers, doctors, nurses, carers and support staff. The thought-provoking narratives provide vital insights into the type of work undertaken in a hospice setting. They examine the differences between hospice and hospital care, and explore the challenges, personal motivations and the many ways hospices strive to meet the needs of patients and their families with sensitivity and respect. "Life in a Hospice" is enlightening reading for all healthcare professionals in palliative care, including volunteer, administrative and support staff. It is also highly recommended for nurses and others in caring roles considering a move into hospice work. Therapists, counsellors and religious leaders will discover poignant and encouraging insights, and people with a family member approaching the end of life will find the book reassuring and informative.
| Author | : Christopher Johns |
| Publisher | : Jessica Kingsley Publishers |
| Total Pages | : 274 |
| Release | : 2004-03-09 |
| Genre | : Family & Relationships |
| ISBN | : 1846420288 |
Written by an experienced palliative care nurse, trainer, and complementary therapist, Being Mindful, Easing Suffering is an essential resource for professionals working with the seriously ill and the dying. Chris Johns describes how he has combined traditional medical, and more reflective models in his palliative practice, enabling him to work mindfully to alleviate physical and non-physical pain and suffering throughout the health-illness cycle. With reference to ideas from Buddhist philosophy around compassion and reflective knowing, this important book shows how the core task of those working in palliative care is to nurture the spiritual growth and development of their patients and, in turn, themselves.
| Author | : Terry Altilio MSW, ACSW, LCSW |
| Publisher | : Oxford University Press |
| Total Pages | : 847 |
| Release | : 2011-03-23 |
| Genre | : Medical |
| ISBN | : 0199838275 |
The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique to this scholarly text is its emphasis on the collaborative nature inherent in palliative care. This definitive resource is edited by two leading palliative social work pioneers who bring together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care.
| Author | : Joan Halifax |
| Publisher | : Shambhala Publications |
| Total Pages | : 233 |
| Release | : 2024-07-09 |
| Genre | : Self-Help |
| ISBN | : 1645472876 |
Inspiring teachings, personal stories, and meditations for those near death and their caregivers, by a respected Zen teacher who has worked with the dying for over 30 years. Everyone who lives must inevitably face death. Inspired by traditional Buddhist teachings and decades of work with the dying and their caregivers, this landmark work on death and dying by beloved Buddhist teacher Joan Halifax is a source of wisdom for all those who are charged with a dying person’s care, facing their own death, or wishing to explore and contemplate the transformative power of the dying process. Relevant and powerful for people of all backgrounds, her teachings affirm that all of us can open and contact our inner strength even in the face of death, and that we can help others who are suffering to do the same. Halifax observes that millions will have to deal with the loss of parents and loved ones and that we are largely unprepared emotionally for their deaths. She presents the notion that the process of dying is a rite of passage. Halifax offers stories from her personal experience as well as guided exercises and contemplations to help readers contemplate death without fear, develop a commitment to helping others, and transform suffering and resistance into courage. Topics and exercises include: Learning to see death as a rite of passage The guiding principles of bearing witness and how self-awareness can help us to relate more fully with others How to take care of ourselves when we’re taking care of others Contemplation on the universality of death How to transform pain and fear with lovingkindness And much more Coupled with a new foreword by Frank Ostaseski, a leader in the field of death and dying palliative care, the guidance and experiences represented in Being with Dying are invaluable in supporting and instilling peace as the journey of life unfolds and inevitably reaches not only an end, but also a new beginning.
| Author | : Kathryn Mannix |
| Publisher | : Little, Brown Spark |
| Total Pages | : 314 |
| Release | : 2018-01-16 |
| Genre | : Self-Help |
| ISBN | : 031650453X |
For readers of Atul Gawande and Paul Kalanithi, a palliative care doctor's breathtaking stories from 30 years spent caring for the dying. Modern medical technology is allowing us to live longer and fuller lives than ever before. And for the most part, that is good news. But with changes in the way we understand medicine come changes in the way we understand death. Once a familiar, peaceful, and gentle -- if sorrowful -- transition, death has come to be something from which we shield our eyes, as we prefer to fight desperately against it rather than accept its inevitability. Dr. Kathryn Mannix has studied and practiced palliative care for thirty years. In With the End in Mind , she shares beautifully crafted stories from a lifetime of caring for the dying, and makes a compelling case for the therapeutic power of approaching death not with trepidation, but with openness, clarity, and understanding. Weaving the details of her own experiences as a caregiver through stories of her patients, their families, and their distinctive lives, Dr. Mannix reacquaints us with the universal, but deeply personal, process of dying. With insightful meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.
