Navigating Life with Epilepsy

Navigating Life with Epilepsy
Author: David C. Spencer
Publisher: Oxford University Press
Total Pages: 313
Release: 2016-09-01
Genre: Health & Fitness
ISBN: 0199358966

Roughly 3 million people in the United States have already been diagnosed with epilepsy and another 200,000 new cases are diagnosed each year. Worldwide, approximately 1 percent of the global population is diagnosed with epilepsy at some point in their lives. With the diagnosis come questions, concerns, and uncertainties from both the person diagnosed and their family. So, where to go? Navigating Life with Epilepsy provides accessible, comprehensive, and up-to-date information about epilepsy shared from the two decades of experience of epileptologist David Spencer, MD, FAAN. This book guides the reader through the initial diagnosis, offers explanations on current approaches to diagnostic testing, medications, treatment options, and life management for the patient, their family, and their caregiver. Patient's stories are peppered throughout to illustrate that you are not alone: like you, they must navigate the myriad psychosocial challenges associated with epilepsy, including everyday concerns like driving, work, and relationships. Navigating Life with Epilepsy is a perfect resource for both patients with epilepsy and the family members and friends who care for them.

Epilepsy Across the Spectrum

Epilepsy Across the Spectrum
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 568
Release: 2012-07-29
Genre: Medical
ISBN: 0309259533

Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living. The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.

The Sacred Disease

The Sacred Disease
Author: Kristin Seaborg
Publisher: Gravity Records
Total Pages: 0
Release: 2015-11-03
Genre: Epilepsy
ISBN: 9781513705484

Young Kristin Seaborg had the world at her fingertips: a loving family, happiness and security, early admission to medical school--until the frightening diagnosis of epilepsy threatened to destroy both her career path and her health. Living in constant fear that her seizures would intensify and prevent her from practicing medicine, Kristin kept her condition a closely guarded secret, leading a tenuous double life as patient and practitioner. A memoir of discovery, acceptance, and hope, The Sacred Disease chronicles Kristin's tenacious fight for a seizure-free life. Remarkably, although Kristin's knowledge and expertise continue to develop as a pediatrician and mother, her experiences as a vulnerable patient provide the most valuable lessons of all.

Epilepsy

Epilepsy
Author: Adrienne Richard
Publisher: Bloomsbury Publishing USA
Total Pages: 290
Release: 2009-05-29
Genre: Medical
ISBN: 0802719503

This book is a unique collaboration between a gifted writer with epilepsy and a skilled physician who has brought new insight into the treatment of this condition. At the age of twenty-six, when Adrienne Richard was seven months pregnant, she was diagnosed with epilepsy. For years she took anticonvulsant drugs to control her seizures, but she wanted to wean herself from the powerful drugs if she could. During the first ten years without medication she had only one seizure. Her goal was to live seizure-free. Ms. Richard practiced yoga, biofeedback, and mind/body techniques in the eighties to help her reach that goal. While writing an article for a magazine based in California, she learned of Dr. Joel Reiter, who was exploring epilepsy self-care in his clinical practice and through his groundbreaking research. Epilepsy: A New Approach combines Adrienne Richard's own inspiring story of overcoming a debilitating condition with Dr. Reiter's up-to-the-minute medical knowledge of diagnosis and treatment. This self-help program offers people with epilepsy and those who love them a chance to regain control of their lives.

Living Well with Epilepsy and Other Seizure Disorders

Living Well with Epilepsy and Other Seizure Disorders
Author: Carl W. Bazil
Publisher: William Morrow Paperbacks
Total Pages: 272
Release: 2004-10-12
Genre: Health & Fitness
ISBN: 9780060538484

Treatment options, lifestyle strategies,and emotional support for two million Americans. Epilepsy, once mistakenly associated with demonic possession, has for centuries been a poorly understood illness. Today, though it affects nearly one out of every one hundred Americans, little comprehensive information can be found on bookshelves regarding this common and complex neurological disease. Until now! Using his expertise in pharmacology and neuroscience, Dr. Carl Bazil demystifies epilepsy and other seizure disorders and offers medical, practical, and emotional support to patients and their families. He explains how and why seizures occur, and thoroughly discusses treatment options, the pros and cons of surgery, experimental and alternative treatments, strategies for daily living, and much more. Substantiated with case examples, this useful book provides a much-needed window into epilepsy so that patients can achieve the full life they deserve.

A Mind Unraveled

A Mind Unraveled
Author: Kurt Eichenwald
Publisher: Ballantine Books
Total Pages: 433
Release: 2019-10-15
Genre: Biography & Autobiography
ISBN: 0399593640

The compelling story of an acclaimed journalist and New York Times bestselling author’s ongoing struggle with epilepsy—how, through personal resilience and the support of loved ones, he overcame medical incompetence and institutional discrimination to achieve once unthinkable success. With a new afterword • “REMARKABLE . . . inspirational in the true sense of the word.”—The New York Times Book Review This is the story of one man’s battle to pursue his dreams despite an often incapacitating brain disorder. From his early experiences of fear and denial to his exasperating search for treatment, Kurt Eichenwald provides a deeply candid account of his years facing this misunderstood and often stigmatized condition. He details his encounters with the doctors whose negligence could have killed him, but for the heroic actions of a brilliant neurologist and the family and friends who fought for him. Ultimately, A Mind Unraveled is an inspirational story, one that chronicles how Eichenwald, faced often with his own mortality, transformed trauma into a guide for reaching the future he desired. Praise for A Mind Unraveled “An intimate journey . . . bravely illuminating the trials of living inside a body always poised to betray itself.”—O: The Oprah Magazine “Poignant and infuriating . . . merges elements of medical drama, anti-discrimination fable, and coming-of-age memoir.”—The New Yorker “One of the best thrillers I’ve read in years, yet there are no detectives, no corpses, no guns or knives.”—Minneapolis Star-Tribune “Terrific . . . Eichenwald’s narrative is a suspenseful medical thriller about a condition that makes everyday life a mine field, a fierce indictment of a callous medical establishment, and an against-the-odds recovery saga.”—Publishers Weekly (starred review) “Riveting . . . Eichenwald has created a universal tale of resilience wrapped in a primal scream against the far-too-savage world."—Booklist (starred review) “An extraordinary book.”—Harriet Lerner, Ph.D., New York Times bestselling author of The Dance of Anger

Navigating Life with Multiple Sclerosis

Navigating Life with Multiple Sclerosis
Author: Kathleen Costello
Publisher: Oxford University Press, USA
Total Pages: 209
Release: 2015
Genre: Health & Fitness
ISBN: 0199381739

Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.

Epilepsy: 199 Answers, Second Edition

Epilepsy: 199 Answers, Second Edition
Author: Andrew N. Wilner
Publisher: Demos Medical Publishing
Total Pages: 198
Release: 2003-05
Genre: Family & Relationships
ISBN: 9781888799705

This book was written with the belief that accurate and comprehensible medical information can empower people with epilepsy to combat their disease. Epilepsy: 199 Answers will help readers better understand their doctor's language and ask better questions. In the revised second edition, both the text and resource sections have been rewritten to reflect the current state of the art of epilepsy treatment. For example, it includes discussions of new antiepileptic drugs that have benefitted many patients with fewer seizures or decreased side effects, the vagal nerve stimulator (VNS), advances in MRI diagnostic precision that have had important implications for patient care, and an improved understanding of the genetic basis of epilepsy.

Wyllie's Treatment of Epilepsy

Wyllie's Treatment of Epilepsy
Author: Elaine Wyllie
Publisher: Lippincott Williams & Wilkins
Total Pages: 1128
Release: 2012-02-17
Genre: Medical
ISBN: 1451153481

In one convenient source, this book provides a broad, detailed, and cohesive overview of seizure disorders and contemporary treatment options. For this Fifth Edition, the editors have replaced or significantly revised approximately 30 to 50 percent of the chapters, and have updated all of them. Dr. Wyllie has invited three new editors: Gregory Cascino, MD, FAAN, at Mayo Clinic, adult epileptologist with special expertise in neuroimaging; Barry Gidal, PharmD, at University of Wisconsin, a pharmacologist with phenomenal expertise in antiepileptic medications; and Howard Goodkin, MD, PhD, a pediatric neurologist at the University of Virginia. A fully searchable companion website will include the full text online and supplementary material such as seizure videos, additional EEG tracings, and more color illustrations.

Navigating Life with Parkinson Disease

Navigating Life with Parkinson Disease
Author: Sotirios Parashos
Publisher: Oxford University Press
Total Pages: 320
Release: 2012-11-20
Genre: Health & Fitness
ISBN: 019931120X

Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.