Life With Spina Bifida
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| Author | : Adrian Sandler, M.D. |
| Publisher | : Univ of North Carolina Press |
| Total Pages | : 295 |
| Release | : 2009-11-30 |
| Genre | : Health & Fitness |
| ISBN | : 0807867861 |
It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.
| Author | : Aaron Wheelz Fotheringham |
| Publisher | : Adventures of Mike Believe |
| Total Pages | : 82 |
| Release | : 2018-03-14 |
| Genre | : Juvenile Fiction |
| ISBN | : 9781976994913 |
Welcome to the Adventures of Mike Believe. This children's book series will change your child's life by igniting the part of their imagination that helps to create the future of their dreams. The first book, "Wheelz On The Moon," will show them how to activate their imagination through visualization. The next book will show them how to turn that visualization into feelings that will shape their actual reality through love and an unbreakable belief in themselves. Aaron Fotheringham and Mike Dolman are on a mission to change the way kids use their thoughts and feelings to create their future, support one another, and not let anything stop them on their journey to making their dreams come true. KIDS ARE THE ILLUSTRATORS OF THIS BOOK! They can draw right inside the book!Join us in changing the world. If you think being in a wheelchair isn't fun, you've never met Aaron Fotheringham, a.k.a Wheelz. Wheelz is a 'Professional' WCMX (Wheelchair Motocross) athlete. He was born with Spina bifida, a birth defect of the spinal chord that causes limited usage of his legs. But that doesn't stop Wheelz from showing the world that a wheelchair is not just a medical device, but rather, an extreme sports machine! Synopsis: Mike Believe reveals his dream of becoming the first kid to ever skateboard on the moon! But Mike's mom want's him to skateboard less and focus more on school. Mike's best friend, Aaron Dreams, a.k.a. "WHEELZ," is living proof that anything is possible. Born with Spina Bifida, a birth defect of the spinal cord, Wheelz has limited usage of his legs, but this doesn't stop him from using his wheelchair every day to chase his dreams!Wheelz starts to see that there are no limits to what he can achieve in life when his father teaches him the power of his imagination. When Mike Believe's classmate, Perscilla Pout, doubts his ability to get to the moon, Mike loses faith in himself. But Wheelz won't let him give up on his dream. Wheelz teaches Mike how to activate his imagination, and suddenly, getting to the moon seems possible after all! Will Mike Believe's imagination be strong enough to visualize a way to the moon? Or will his dream be crushed by his doubts and fears...On their incredible journey to the moon, the boys learn that they aren't alone. Someone is leading them to discover what an open mind is truly capable of. But first, they must let go of their limiting beliefs of whats possible, and strengthen their imaginations. Join Mike Believe, and Wheelz, on their journey to unlocking limitless imagination, true friendship, and maybe even other worlds!
| Author | : Marlene Lutkenhoff |
| Publisher | : |
| Total Pages | : 0 |
| Release | : 1999 |
| Genre | : Spina bifida |
| ISBN | : 9780933149601 |
Provides parents of children with spina bifida information on prenatal diagnosis, health concerns, treatments, therapies, and causes.
| Author | : Heidi Ayarbe |
| Publisher | : Momentum |
| Total Pages | : 0 |
| Release | : 2018-08 |
| Genre | : Spina bifida |
| ISBN | : 9781503825161 |
Gives readers a look into the lives and abilities of people who have spina bifida, as well as the challenges they face. Learn how medications, therapy, and other treatments help people with spina bifida every day. Additional features include a table of contents, an informative infographic, a Fast Facts spread, critical-thinking questions, a phonetic glossary, a selected bibliography, an index, sources for further research, and information about the author.
| Author | : M. Memet Özek |
| Publisher | : Springer Science & Business Media |
| Total Pages | : 523 |
| Release | : 2008-08-29 |
| Genre | : Medical |
| ISBN | : 8847006511 |
The aim of this book to promote a multidisciplinary approach to Spina Bifida, providing the three main specialists categories involved – neurosurgeon, orthopedic surgeons, and urologists – with a concise reference that explains the main clinical problems to be faced in everyday clinical practice. The book also provides the busy specialist with an updated overview of surgical approaches.
| Author | : Riva Lehrer |
| Publisher | : One World |
| Total Pages | : 449 |
| Release | : 2021-10-26 |
| Genre | : Biography & Autobiography |
| ISBN | : 198482032X |
The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies “Golem Girl is luminous; a profound portrait of the artist as a young—and mature—woman; an unflinching social history of disability over the last six decades; and a hymn to life, love, family, and spirit.”—David Mitchell, author of Cloud Atlas WINNER OF THE BARBELLION PRIZE • FINALIST FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD FOR AUTOBIOGRAPHY • NAMED ONE OF THE BEST BOOKS OF THE YEAR BY KIRKUS REVIEWS What do we sacrifice in the pursuit of normalcy? And what becomes possible when we embrace monstrosity? Can we envision a world that sees impossible creatures? In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark—it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits—inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. “Not your typical memoir about ‘what it’s like to be disabled in a non-disabled world’ . . . Lehrer tells her stories about becoming the monster she was always meant to be: glorious, defiant, unbound, and voracious. Read it!”—Alice Wong, founder and director, Disability Visibility Project
| Author | : Branislav Kolarovszki |
| Publisher | : BoD – Books on Demand |
| Total Pages | : 174 |
| Release | : 2021-06-23 |
| Genre | : Medical |
| ISBN | : 1839629509 |
This book is a comprehensive overview of spina bifida and craniosynostosis with emphasis on new trends in the management of these diseases. Chapters on spina bifida cover such topics as the etiology and pathophysiology of caudal neural tube defects, the overall management of pediatric patients with spina bifida, surgical treatment, and urological and orthopedic care. The chapters on craniosynostosis present new technologies of surgical treatment, craniomaxillofacial corrective surgery, and telescoping techniques with multiple cranial osteotomies.
| Author | : T. M. Berg |
| Publisher | : Createspace Independent Publishing Platform |
| Total Pages | : 624 |
| Release | : 2018-05-02 |
| Genre | : |
| ISBN | : 9781974480289 |
Why is this happening? Why him? Why us? I can't count the number of times those words echoed through my mind over the course of the summer of 2017. There is no more powerless feeling for a parent than being forced to watch as their child battles for his health & well being. At my wife's 20 week ultrasound, we expected to learn the sex of our second munchkin, but instead our world was crumbled. Words like Spina Bifida, Arnold Chiari Malformation, Myelomeningocele & Hydrocephalus destroyed the excitement we held and replaced it with more uncertainty than we knew existed. The next weeks & months were a whirlwind as we met with specialists and flew across the country so that my wife could undergo fetal surgery to close the opening in my son's back, as well as give him the best chance for a life of worthwhile quality. We would remain there for 4 months, away from our oldest son & our home. Our little Loxley Poet had our hearts from the beginning, so it was never a question as to if we would do all in our power to give him the best chance. It was only a matter of how and when? The amazing people in our lives, our friends & family, made sure we had everything we needed, support in all shapes and sizes. Our journey being what it was, I decided that I could look at it as a burden or as an opportunity. Instead of asking ourselves 'why, ' perhaps we should have been asking ourselves, 'why not?' So, thats what we did. We would handle this and we would thrive, because thats what families do. That's how we survive. That's how we live. This book is for my little warrior, all of his twice born brothers & sisters, as well as their selfless families willing to sacrifice some so that their children may have it all.
| Author | : Fred F. Ferri |
| Publisher | : Elsevier Health Sciences |
| Total Pages | : 7615 |
| Release | : 2019-06-01 |
| Genre | : Medical |
| ISBN | : 0323679773 |
Significantly updated with the latest developments in diagnosis and treatment recommendations, Ferri's Clinical Advisor 2020 features the popular "5 books in 1" format to organize vast amounts of information in a clinically relevant, user-friendly manner. This efficient, intuitive format provides quick access to answers on 1,000 common medical conditions, including diseases and disorders, differential diagnoses, and laboratory tests – all reviewed by experts in key clinical fields. Updated algorithms, along with hundreds of new figures, tables, and boxes, ensure that you stay current with today's medical practice. - Contains significant updates throughout, covering all aspects of current diagnosis and treatment. - Features 27 all-new topics including chronic traumatic encephalopathy, medical marijuana, acute respiratory failure, gallbladder carcinoma, shift work disorder, radial tunnel syndrome, fertility preservation in women, fallopian tube cancer, primary chest wall cancer, large-bowel obstruction, inguinal hernia, and bundle branch block, among others. - Includes a new appendix covering Physician Quality Reporting System (PQRS) Measures. - Provides current ICD-10 insurance billing codes to help expedite insurance reimbursements. - Patient Teaching Guides for many of the diseases and disorders are included, most available in both English and Spanish versions, which can be downloaded and printed for patients.
| Author | : Chandrasen K. Sinha |
| Publisher | : Springer Science & Business Media |
| Total Pages | : 464 |
| Release | : 2010-06-25 |
| Genre | : Medical |
| ISBN | : 1848821328 |
Although pediatric surgery is a distinct and evolving specialty, it still remains an integral part of most general surgical and paediatric medical practice. Nevertheless, surgery in children does differ from adult practice in various fundamental ways, and there are key physiological and anatomical differences that constantly need underlining. Progress and improvement in outcome has also been rapid but it is sometimes difficult for practitioners to keep themselves up-to-date with the usual surgical or paediatric text books. This book will give a concise overview of all important topics and is designed to provide information in order to recognise the common surgical conditions; namely typical symptoms and signs, investigation and then treatment management. It will also provide an anatomical and physiological background to aid understanding, in addition to emphasising logical, and where possible, evidence-based practice by the use of flow charts, tables and algorithms. Authored by an international range of leading contributors, this is the first book of its kind to offer comprehensive coverage to this topic in a quick reference, pocket-book format.
