Invisible Caregivers
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| Author | : Daphne Joslin |
| Publisher | : Columbia University Press |
| Total Pages | : 335 |
| Release | : 2002-02-28 |
| Genre | : Social Science |
| ISBN | : 0231504586 |
An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families. Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.
| Author | : Annalee Kruger |
| Publisher | : |
| Total Pages | : 255 |
| Release | : 2021-08-27 |
| Genre | : |
| ISBN | : |
How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.
| Author | : Kate Washington |
| Publisher | : Beacon Press |
| Total Pages | : 224 |
| Release | : 2021-03-16 |
| Genre | : Medical |
| ISBN | : 0807011754 |
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
| Author | : Cecilia Sem Obeng |
| Publisher | : Berghahn Books |
| Total Pages | : 157 |
| Release | : 2020-11-01 |
| Genre | : Social Science |
| ISBN | : 178920934X |
No detailed description available for "Invisible Faces and Hidden Stories".
| Author | : Aaron Alterra |
| Publisher | : Cornell University Press |
| Total Pages | : 236 |
| Release | : 2007 |
| Genre | : Biography & Autobiography |
| ISBN | : 9780801474347 |
Forgetting how things are done -- The new primary care physician -- Second opinions -- Giving up the keys -- The right to know -- The real and the unreal -- Another way -- Paying the bill -- I want to go home -- Coda.
| Author | : Anita Ilta Garey |
| Publisher | : Rutgers University Press |
| Total Pages | : 301 |
| Release | : 2011 |
| Genre | : Business & Economics |
| ISBN | : 0813549558 |
At the Heart of Work and Family presents original research on work and family by scholars who engage and build on the conceptual framework developed by well-known sociologist Arlie Russell Hochschild. These concepts, such as "the second shift," "the economy of gratitude," "emotion work," "feeling rules," "gender strategies," and "the time bind," are basic to sociology and have shaped both popular discussions and academic study. The common thread in these essays covering the gender division of housework, childcare networks, families in the global economy, and children of consumers is the incorporation of emotion, feelings, and meaning into the study of working families. These examinations, like Hochschild's own work, connect micro-level interaction to larger social and economic forces and illustrate the continued relevance of linking economic relations to emotional ones for understanding contemporary work-family life.
| Author | : Clare L. Stacey |
| Publisher | : Cornell University Press |
| Total Pages | : 215 |
| Release | : 2011-07-07 |
| Genre | : Medical |
| ISBN | : 0801476992 |
Stacey draws on observations of and interviews with aides working in Ohio and California to explore the physical and emotional labor associated with the care of others.
| Author | : Janet Garcia-Hallett |
| Publisher | : Univ of California Press |
| Total Pages | : 248 |
| Release | : 2022-11-08 |
| Genre | : Social Science |
| ISBN | : 0520315049 |
"Drawing on interviews conducted throughout New York City, Black feminist criminologist Janet Garcia-Hallett shares the traditionally silenced voices of formerly incarcerated mothers of color. Patriarchy, misogyny, and systemic racism marginalize and criminalize these mothers, pushing them into the grasp of penal control and exacerbating their racialized and gendered oppression after incarceration. Invisible Mothers exposes the difficult realities that African American, West Indian, and Latina mothers experience when reentering the community after incarceration and navigating motherhood. Armed with critical insight, Invisible Mothers demonstrates the paradox of visibility: social institutions treat mothers of color as invisible, restricting them from equal opportunities, and simultaneously as hypervisible, penalizing them for the ways they survive their marginalization. Though formerly incarcerated mothers of color are forced to live in a state of disempowerment and hypersurveillance, Invisible Mothers reveals and contests their marginalization and highlights how mothers of color perform motherwork on their own terms"--
| Author | : Kate Hamblin |
| Publisher | : Policy Press |
| Total Pages | : 288 |
| Release | : 2024-06-25 |
| Genre | : Political Science |
| ISBN | : 1447365712 |
Available Open Access digitally under CC-BY-NC-ND licence. The proportion of employees with caring responsibilities is growing and, as a result, policies that support working carers are becoming increasingly important. Written and informed by national experts, this is the first publication to provide a detailed examination of the development and implementation of carer leave policies and policies in nine countries across Asia, Oceania, Europe and North America. It compares the origins, content and implications of national policies and practices intended to enable workers to provide care to family members and friends while remaining in paid employment – known as ‘carer leave’.
| Author | : Lisa Freitag |
| Publisher | : Oxford University Press |
| Total Pages | : 273 |
| Release | : 2017-10-12 |
| Genre | : Medical |
| ISBN | : 0190491809 |
Parents who care for children with special needs, particularly those whose children have multiple disabilities or intellectual delays, are pioneers in home health care and caregiving, yet their experience and expertise are rarely recognized. This book collects parent narratives, personal experience, and academic research to portray the lives of parent caregivers, looking at both the trials and the triumphs inherent in raising a child with special needs. Parents raising children with special needs often must devote all of their resources, both tangible and spiritual, to providing care long into their offspring's lives. Their experience exceeds the usual parameters of parenting. This book examines all of the facets of their parenting role, the care they provide, challenges they face, and questions many assumptions. It presents parents as neither emotional wrecks nor overburdened saints, but as moral individuals struggling to find their own way through relatively unexplored territory. This book begins to recognize the moral consequences of providing long-term care for a child with complex needs. Using a virtue ethic framework isolates the various tasks involved, and evaluates the moral demands placed on the parent attempting to perform them. On their journey to provide for their child the best life possible, parents must alter their own lives and attitudes, and become the sort of person who can perform the necessary caregiving. Raising a child with special needs demands from the parent a reassessment of their personal and social lives. Some of the consequences, such as the presumed emotional and physical burden of constant attentiveness and the numerous unexpected responsibilities, have been reported previously. But the need for competence, which drives an acquisition of medical knowledge, has not previously been analyzed, nor has there been recognition of the enormous moral task of encouraging identity formation in a child with intellectual delays or disabilities. For a child who cannot attain independence, parents must continue to provide care and support into an uncertain future.
