Finding Meaning in the Experience of Dementia

Finding Meaning in the Experience of Dementia
Author: Elizabeth MacKinlay
Publisher: Jessica Kingsley Publishers
Total Pages: 306
Release: 2012-07-15
Genre: Health & Fitness
ISBN: 0857006576

This groundbreaking book is based on the findings of the first major study on spiritual reminiscence work with people with dementia. Carried out over a decade, the study confirmed spiritual reminiscence to be an effective means of helping people with dementia to find meaning in their own experience, and interact in meaningful ways with others. The authors present the evidence for the efficacy of spiritual reminiscence with this group, and drawing on examples demonstrate its many benefits, as revealed by the study, including the affirmation of identity and worth whilst promoting resilience and transcendence; reducing levels of depression; and giving people with dementia a voice with which to express grief, despair, joy, wisdom, insight and humour. Specific practice issues are addressed, including how to maximise communication and nurture connections during sessions; the role of symbol, ritual and liturgy and how to design an effective spiritual reminiscence program. Transcripts of sessions are included throughout the book as examples, providing unprecedented insight into how people with dementia experience spiritual reminiscence, and encouraging reflective practice. The book closes with a set of suggested questions and discussion topics which can be used as the basis of a six week program. Providing theory and the latest research as well as a wealth of practical information and examples to guide practice, this book will be of interest to dementia care practitioners and activity coordinators, pastoral carers, aged care chaplains, practical theologians, students, academics and researchers.

Loving Someone Who Has Dementia

Loving Someone Who Has Dementia
Author: Pauline Boss
Publisher: John Wiley & Sons
Total Pages: 256
Release: 2011-06-24
Genre: Psychology
ISBN: 1118077288

Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.

Dementia

Dementia
Author: Julian C. Hughes
Publisher: Oxford University Press, USA
Total Pages: 326
Release: 2006
Genre: Medical
ISBN: 019856614X

This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.

Positive Psychology Approaches to Dementia

Positive Psychology Approaches to Dementia
Author: Chris Clarke
Publisher: Jessica Kingsley Publishers
Total Pages: 290
Release: 2016-08-18
Genre: Health & Fitness
ISBN: 1784500771

How can positive psychology approaches help us to understand the process of adjustment to, and living well with dementia? As accounts of positive experiences in dementia are increasingly emerging, this book reviews current evidence and explores how psychological constructs such as hope, humour, creativity, spirituality, wisdom, resilience and personal growth may be linked with wellbeing and quality of life in dementia. Expert contributors from a range of academic and clinical backgrounds examine the application of positive psychological concepts to dementia and dementia care practice. The lived experiences of people with dementia are central to the book, and their voices bring life to the ideas explored, highlighting how positive experiences in dementia and dementia care are possible.

Love in the Land of Dementia

Love in the Land of Dementia
Author: Deborah Shouse
Publisher: Central Recovery Press, LLC
Total Pages: 201
Release: 2013-10-28
Genre: Health & Fitness
ISBN: 1937612503

Caregiver Shouse celebrates spiritual and practical lessons learned on her unscripted yet rewarding journey with her mother through Alzheimer's disease.

Reducing the Impact of Dementia in America

Reducing the Impact of Dementia in America
Author: National Academies of Sciences Engineering and Medicine
Publisher:
Total Pages:
Release: 2022-04-26
Genre:
ISBN: 9780309495035

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

Who Will I Be When I Die?

Who Will I Be When I Die?
Author: Christine Bryden
Publisher: Jessica Kingsley Publishers
Total Pages: 178
Release: 2012
Genre: Health & Fitness
ISBN: 184905312X

First published: Australia: HarperCollinsReligious, 1998.

The Last Ocean

The Last Ocean
Author: Nicci Gerrard
Publisher: Penguin
Total Pages: 274
Release: 2020-08-11
Genre: Biography & Autobiography
ISBN: 0525521984

From the award-winning journalist and author, a lyrical, raw and humane investigation of dementia that explores both the journeys of the people who live with the condition and those of their loved ones After a diagnosis of dementia, Nicci Gerrard’s father, John, continued to live life on his own terms, alongside the disease. But when an isolating hospital stay precipitated a dramatic turn for the worse, Gerrard, an award-winning journalist and author, recognized that it was not just the disease, but misguided protocol and harmful practices that cause such pain at the end of life. Gerrard was inspired to seek a better course for all who suffer because of the disease. The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones. Her lens is unflinching, but Gerrard honors her subjects and finds the beauty and the humanity in their seemingly diminished states. In so doing, she examines the philosophy of what it means to have a self, as well as how we can offer dignity and peace to those who suffer with this terrible disease. Not only will it aid those walking with dementia patients, The Last Ocean will prompt all of us to think on the nature of a life well lived.

Meaning in Late-life

Meaning in Late-life
Author: Jessie Dezutter
Publisher: Frontiers Media SA
Total Pages: 188
Release: 2022-03-28
Genre: Science
ISBN: 2889748162

Life Story Work with People with Dementia

Life Story Work with People with Dementia
Author: Polly Kaiser
Publisher: Jessica Kingsley Publishers
Total Pages: 282
Release: 2016-09-21
Genre: Social Science
ISBN: 0857009141

Introducing life story work, a way for people with dementia to connect with their relatives, carers and the professionals working with them. This evidence-based book explains the many benefits of life story work, with practical guidance for introducing it in a variety of settings. The authors show how life story work can empower people with dementia to inform care practitioners and family members what care and support they may need now and in the future, by taking into account their past and their future wishes and aspirations. The book includes practical information on how to get started, ethical considerations such as consent and confidentiality, and considers issues of diversity and how to address them. The voices of practitioners, researchers and family carers sit alongside those of people living with dementia to present a wide-range of perspectives on life story work.