Dementia Reimagined
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| Author | : Tia Powell |
| Publisher | : Avery |
| Total Pages | : 322 |
| Release | : 2019 |
| Genre | : Family & Relationships |
| ISBN | : 073521090X |
The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
| Author | : Tia Powell |
| Publisher | : Penguin |
| Total Pages | : 322 |
| Release | : 2020-09-01 |
| Genre | : Health & Fitness |
| ISBN | : 0735210918 |
Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
| Author | : Barbara Bradley Hagerty |
| Publisher | : Penguin |
| Total Pages | : 395 |
| Release | : 2016-03-15 |
| Genre | : Family & Relationships |
| ISBN | : 1101622970 |
A dynamic and inspiring exploration of the new science that is redrawing the future for people in their forties, fifties, and sixties for the better—and for good. There’s no such thing as an inevitable midlife crisis, Barbara Bradley Hagerty writes in this provocative, hopeful book. It’s a myth, an illusion. New scientific research explodes the fable that midlife is a time when things start to go downhill for everybody. In fact, midlife can be a great new adventure, when you can embrace fresh possibilities, purposes, and pleasures. In Life Reimagined, Hagerty explains that midlife is about renewal: It’s the time to renegotiate your purpose, refocus your relationships, and transform the way you think about the world and yourself. Drawing from emerging information in neurology, psychology, biology, genetics, and sociology—as well as her own story of midlife transformation—Hagerty redraws the map for people in midlife and plots a new course forward in understanding our health, our relationships, even our futures.
| Author | : Lynn Casteel Harper |
| Publisher | : Catapult |
| Total Pages | : 126 |
| Release | : 2020-04-14 |
| Genre | : Social Science |
| ISBN | : 1948226294 |
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
| Author | : Anne Basting |
| Publisher | : HarperCollins |
| Total Pages | : 271 |
| Release | : 2020-05-19 |
| Genre | : Family & Relationships |
| ISBN | : 0062906194 |
A MacArthur Genius Grant recipient pioneers a radical change in how we interact with older loved ones, especially those experiencing dementia, as she introduces a proven method that uses the creative arts to bring light and joy to the lives of elders. In Creative Care, Anne Basting lays the groundwork for a widespread transformation in our approach to elder care and uses compelling, touching stories to inspire and guide us all—family, friends, and health professionals—in how to connect and interact with those living with dementia. A MacArthur Genius Grant recipient, Basting tells the story of how she pioneered a radical change in how we interact with our older loved ones. Now used around the world, this proven method has brought light and joy to the lives of elders—and those who care for them. Here, for the first time, everyone can learn these methods. Early in her career, Basting noticed a problem: today’s elderly—especially those experiencing dementia and Alzheimer’s— are often isolated in nursing homes or segregated in elder-care settings, making the final years of life feel lonely and devoid of meaning. To alleviate their sense of aloneness, Basting developed a radical approach that combines methods from the world of theater and improvisation with evidence-based therapies that connect people using their own creativity and imagination. Rooted in twenty-five years of research, these new techniques draw on core creative exercises—such as “Yes, and . . .” and “Beautiful Questions.” This approach fosters storytelling and active listening, allowing elders to freely share ideas and stories without worrying about getting the details “correct.” Basting’s research has shown that these practices stimulate the brain and awaken the imagination to add wonder and awe to patients’ daily lives—and provide them a means of connection, both with the world and with those caring for them. Creative Care promises to bring light and hope to a community that needs it most.
| Author | : Jim Henry |
| Publisher | : Higherlife Development Service |
| Total Pages | : 144 |
| Release | : 2020-08-31 |
| Genre | : |
| ISBN | : 9781951492861 |
If you are caring for or supporting a loved one with Alzheimer's or dementia you know that is not an easy journey. This book will give you practical advice mixed with spiritual wisdom and counsel gained from personal experience. The authors, Jim Henry and Deb Terry, have personally walked through the loss of a spouse and a parent to this disease. From their experiences they will help you through 18 Central Questions that you will undoubtably face from early onset through advanced stages. You will gain strength and comfort as you become the most effective caregiver possible while also taking care of yourself along the way.
| Author | : Tom Kitwood |
| Publisher | : Open University Press |
| Total Pages | : 160 |
| Release | : 1997-04-01 |
| Genre | : Medical |
| ISBN | : 9780335198559 |
"For some years now, Tom Kitwood's work on dementia care has stood out as the most important, innovative and creative development in a field that has for too long been neglected. This book is a landmark in dementia care; it brings together, and elaborates on, Kitwood's theory of dementia and of person-centred care in an accessible fashion, that will make this an essential source for all working and researching in the field of dementia care." Robert Woods, Professor of Clinical Psychology, University of Wales "Over the last ten years or so Tom Kitwood has made a truly remarkable contribution to our understanding of dementia, and to raising expectations of what can be achieved with empathy and skill. This lucid account of his thinking and work will communicate his approach to a yet wider audience. It is to be warmly welcomed." Mary Marshall, Director of the Dementia Services Development Centre, University of Stirling * What is the real nature of the dementing process? * What might we reasonably expect when dementia care is of very high quality? * What is required of organizations and individuals involved in dementia care? Tom Kitwood breaks new ground in this book. Many of the older ideas about dementia are subjected to critical scrutiny and reappraisal, drawing on research evidence, logical analysis and the author's own experience. The unifying theme is the personhood of men and women who have dementia - an issue that was grossly neglected for many years both in psychiatry and care practice. Each chapter provides a definitive statement on a major topic related to dementia, for example: the nature of 'organic mental impairment', the experience of dementia, the agenda for care practice, and the transformation of the culture of care. While recognizing the enormous difficulties of the present day, the book clearly demonstrates the possibility of a better life for people who have dementia, and comes to a cautiously optimistic conclusion. It will be of interest to all professionals involved in dementia care or provision, students on courses involving psychogeriatrics or social work with older people, and family carers of people with dementia. Key features: * One of the few attempts to present the whole picture. * Very readable - many real-life illustrations. * Offers a major alternative to the 'medical model' of dementia. * Tom Kitwood's work on dementia is very well known
| Author | : Daniel Gibbs |
| Publisher | : Cambridge University Press |
| Total Pages | : 227 |
| Release | : 2023-03-16 |
| Genre | : Medical |
| ISBN | : 1009333585 |
Dr Daniel Gibbs is one of 50 million people worldwide with an Alzheimer's disease diagnosis. Unlike most patients with Alzheimer's, however, Dr Gibbs worked as a neurologist for twenty-five years, caring for patients with the very disease now affecting him. Also unusual is that Dr Gibbs had begun to suspect he had Alzheimer's several years before any official diagnosis could be made. Forewarned by genetic testing showing he carried alleles that increased the risk of developing the disease, he noticed symptoms of mild cognitive impairment long before any tests would have alerted him. In this highly personal account, Dr Gibbs documents the effect his diagnosis has had on his life and explains his advocacy for improving early recognition of Alzheimer's. Weaving clinical knowledge from decades caring for dementia patients with his personal experience of the disease, this is an optimistic tale of one man's journey with early-stage Alzheimer's disease. Soon to be a documentary film on MTV/Paramount +.
| Author | : Lisa M. Cini |
| Publisher | : iUniverse |
| Total Pages | : 129 |
| Release | : 2017-04-27 |
| Genre | : Family & Relationships |
| ISBN | : 1532020643 |
This is not just a book, its a MOVEMENT. Lisa did not choose to write Hive, Hive chose her. Kute Blackson, transformational teacher and bestselling author of You.Are.The.One. Four generations live under one roof in Columbus, Ohio, and theyve figure out to make it work: dividing responsibilities and chores, re-designing some physical spaces for privacy, and reconfiguring others into common areas for all to gather and enjoy living together. This tale of heartache, heroism, and hope is one familys multi generational social experiment, which encompasses kids in their teens, parents in their forties, grandparents in their seventies, and a ninety-plus year-old great-grandmother. Together, as they navigate the joys and challenges that come with aging in America, theyre also answering the question, How does family help you thrive at home when youre old? An Alzheimers/dementia diagnosis adds a layer of complexity, yet the family resolves to keep their eldest at home for as long as shes happy, safe and engaged in life. The younger generation learns much from their elders, and the elders from their children. While mastering the use of technology and new family systems, theyre also mastering the use of humor, tolerance, and patience. Ultimately, thats what makes this four-generation experiment a success. Practical design advice and clear-eyed strategies are mixed with personal tips and observations, making it easy to see how anyone can transform their home in into their own multi-generational living situation. Her stories are honest, both funny and poignant. The familys fiascos are counterbalanced by their many successes, the greatest one being that as individuals and as a family, they continue to thrive.
| Author | : Jaber F. Gubrium |
| Publisher | : Columbia University Press |
| Total Pages | : 368 |
| Release | : 2016-07-05 |
| Genre | : Social Science |
| ISBN | : 0231541783 |
The traditional lines of demarcation between service providers and service users are shifting. Professionals in managed service organizations are working to incorporate the voices of service users into their missions and the way they function, and service users, with growing access to knowledge, have taken on the semblances of professional expertise. Additionally, the human services environment has been transformed by administrative imperatives. The drive toward greater efficiency and accountability has weakened the bond between users and providers. Reimagining the Human Service Relationship is informed by the premise that the helping relationship should be seen as developing in the interactive space between those who provide human services and those who receive them. The contributors to this volume redefine the contours, roles, institutional divisions, means, and aims of providing and receiving services in a range of settings, including child welfare, addiction treatment, social enterprise, doctoring, mental health, and palliative care. Though they advocate an experience-near approach, they remain sensitive to the ambiguities and competing rationalities of the service relationship. Taken together, these chapters reimagine the service relationship by making visible the working relevancies of service delivery.
