Aliceheimer's

Aliceheimer's
Author: Dana Walrath
Publisher:
Total Pages:
Release: 2016
Genre: Alzheimer's disease
ISBN:

"A graphic memoir of the author's experiences of her mother's battle with dementia. Illustrates the two-way nature of storytelling as a process that heals both the giver and the receiver of story"--Provided by publisher.

Alzheimer's & Dementia: Through the Looking Glass

Alzheimer's & Dementia: Through the Looking Glass
Author: Betty Weiss
Publisher: Author House
Total Pages: 229
Release: 2012-08-14
Genre: Health & Fitness
ISBN: 1468594281

Alzheimers & Dementia: Through the Looking Glass, explains in easy to understand nontechnical language the difference between Alzheimers and dementia; discusses issues like driving, hallucinations, delusions, bathing, respite, feeding tubes, hospice, guilt, sexuality, genetics, aging, warning signs, placement or home care, diagnosis, hospice, finding help, emotions and more. Sixty-six columns, and more, from the highly regarded All About Alzheimers feature written by the author and published monthly in Todays Senior Magazine are assembled here to help the family and caregiver through the demanding trials of living with someone who has Alzheimers. Few things are as frustrating and maddening as Alzheimers and caring for someone with the disease is uniquely different from other medical conditions. In time, the patient is unable to help in his own care, even to follow such simple instructions as stand up or sit down, creating a difficult situation for everyone. Perhaps you think when someone forgets, you just remind them; no one forgets their own children, how to eat, dress and use the bathroom! But they do! In this book you will learn the difference between your forgetting a word and remembering it later and the Alzheimers patient who forgets but cannot remember later because the memory is not just momentarily forgottenit no longer exists! If it does not exist, it cannot be recalled. Youll learn things you need to know that will seem counterintuitive and require changes in your normal responses. They are not always easy to use, but they can make life with this disease a bit easier for both the afflicted individuals and those who care for and love them. You will come to understand the basics of the illness, why such bizarre things happen, and how to react to unexpected and on-going problems without making things worse.

Tangles

Tangles
Author: Sarah Leavitt
Publisher: Skyhorse
Total Pages: 128
Release: 2012-05-01
Genre: Family & Relationships
ISBN: 9781616086398

In this powerful memoir the the LA Times calls “moving, rigorous, and heartbreaking," Sarah Leavitt reveals how Alzheimer’s disease transformed her mother, Midge, and her family forever. In spare blackand- white drawings and clear, candid prose, Sarah shares her family’s journey through a harrowing range of emotions—shock, denial, hope, anger, frustration—all the while learning to cope, and managing to find moments of happiness. Midge, a Harvard educated intellectual, struggles to comprehend the simplest words; Sarah’s father, Rob, slowly adapts to his new role as full-time caretaker, but still finds time for wordplay and poetry with his wife; Sarah and her sister Hannah argue, laugh, and grieve together as they join forces to help Midge. Tangles confronts the complexity of Alzheimer’s disease, and ultimately releases a knot of memories and dreams to reveal a bond between a mother and a daughter that will never come apart.

Still Alice

Still Alice
Author: Lisa Genova
Publisher: Simon and Schuster
Total Pages: 323
Release: 2009-01-06
Genre: Fiction
ISBN: 1439116881

Feeling at the top of her game when she is suddenly diagnosed with early onset Alzheimer's Disease, Harvard psychologist Alice Howland struggles to find meaning and purpose in her everyday life as her concept of self gradually slips away. A first novel. Simultaneous.

I'm Still Here

I'm Still Here
Author: John Zeisel
Publisher: Penguin
Total Pages: 280
Release: 2009
Genre: Family & Relationships
ISBN: 9781583333358

Discusses ways to mentally connect with a person who has been diagnosed with Alzheimer's disease, which includes engaging individuals through the healthier parts of the brain.

Where the Light Gets In

Where the Light Gets In
Author: Kimberly Williams-Paisley
Publisher: Crown
Total Pages: 290
Release: 2016-04-05
Genre: Biography & Autobiography
ISBN: 1101902965

“The relationship between a mother and daughter is one of the most complicated and meaningful there is. Kimberly Williams-Paisley writes about her own with grace, truth, and beauty as she shares her journey back to her mother in the wake of a devastating illness.” —Brooke Shields Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country music artist, Brad Paisley. But behind the scenes, Kim was dealing with a tragic secret: her mother, Linda, was suffering from a rare form of dementia that slowly crippled her ability to talk, write and eventually recognize people in her own family. Where the Light Gets In tells the full story of Linda’s illness—called primary progressive aphasia—from her early-onset diagnosis at the age of 62 through the present day. Kim draws a candid picture of the ways her family reacted for better and worse, and how she, her father and two siblings educated themselves, tried to let go of shame and secrecy, made mistakes, and found unexpected humor and grace in the midst of suffering. Ultimately the bonds of family were strengthened, and Kim learned ways to love and accept the woman her mother became. With a moving foreword by actor and advocate Michael J. Fox, Where the Light Gets In is a heartwarming tribute to the often fragile yet unbreakable relationships we have with our mothers.

Dignity for Deeply Forgetful People

Dignity for Deeply Forgetful People
Author: Stephen G. Post
Publisher: JHU Press
Total Pages: 289
Release: 2022-05-31
Genre: Health & Fitness
ISBN: 1421442515

For caregivers of deeply forgetful people: a book that combines new ethics guidelines with an innovative program on how to communicate and connect with people with Alzheimer's. How do we approach a "deeply forgetful" loved one so as to notice and affirm their continuing self-identity? For three decades, Stephen G. Post has worked around the world encouraging caregivers to become more aware of—and find renewed hope in—surprising expressions of selfhood despite the challenges of cognitive decline. In this book, Post offers new perspectives on the worth and dignity of people with Alzheimer's and related disorders despite the negative influence of "hypercognitive" values that place an ethically unacceptable emphasis on human dignity as based on linear rationality and strength of memory. This bias, Post argues, is responsible for the abusive exclusion of this population from our shared humanity. With vignettes and narratives, he argues for a deeper dignity grounded in consciousness, emotional presence, creativity, interdependence, music, and a self that is not "gone" but "differently abled." Post covers key practical topics such as: • understanding the experience of dementia • noticing subtle expressions of continuing selfhood, including "paradoxical lucidity" • perspectives on ethical quandaries from diagnosis to terminal care and everything in between, as gleaned from the voices of caregivers • how to communicate optimally and use language effectively • the value of art, poetry, symbols, personalized music, and nature in revealing self-identity • the value of trained "dementia companion" dogs At a time when medical advances to cure these conditions are still out of reach and the most recent drugs have shown limited effectiveness, Post argues that focusing discussion and resources on the relational dignity of these individuals and the respite needs of their caregivers is vital. Grounding ethics on the equal worth of all conscious human beings, he provides a cautionary perspective on preemptive assisted suicide based on cases that he has witnessed. He affirms vulnerability and interdependence as the core of the human condition and celebrates caregivers as advocates seeking social and economic justice in an American system where they and their loved ones receive only leftover scraps. Racially inclusive and grounded in diversity, Dignity for Deeply Forgetful People also includes a workshop appendix focused on communication and connection, "A Caregiver Resilience Program," by Rev. Dr. Jade C. Angelica.

In Love

In Love
Author: Amy Bloom
Publisher: Random House
Total Pages: 241
Release: 2022-03-08
Genre: Biography & Autobiography
ISBN: 0593243943

NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.

Dementia, Culture and Ethnicity

Dementia, Culture and Ethnicity
Author: Julia Botsford
Publisher: Jessica Kingsley Publishers
Total Pages: 330
Release: 2015-04-21
Genre: Social Science
ISBN: 0857008811

With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.

Surviving Alzheimer's With Friends, Facebook, and a Really Big Glass of Wine

Surviving Alzheimer's With Friends, Facebook, and a Really Big Glass of Wine
Author: Dayna Steele
Publisher: Createspace Independent Publishing Platform
Total Pages: 0
Release: 2016-02-05
Genre: Alzheimer's disease
ISBN: 9781519370846

With unfiltered observations and sometimes dark humor, author Dayna Steele chronicled her mother's journey with Alzheimer's on Facebook. This collection of Alzheimer's updates posted on the social media network includes biting humor and raw emotion as Dayna carries you from the diagnosis to the inevitable end. Also included are sections from a neurologist, Long Term Care insurance specialist, other caregivers, documents expert, elder care attorney, and an assisted living advisor. This is a journey way too many of us are going to experience in one way or another. If you have to experience Alzheimer's and chances are you will - do it like Dayna with love, wit, and wine.I would normally never read a book about Alzheimer's or click LIKE on a Facebook post about someone's declining mother. Dayna Steele sneaked past my defenses the same way that she dealt with her own misery - with humor - by making me laugh, she managed to break my heart. --Lisa Gray, Houston Chronicle Gray MattersThese observations are so gripping and so graphic. --a Facebook commentThis book is going to be of tremendous help to so many. --Dr. Roy Goldberg, Geriatrics, Albert Einstein College of Medicine