Alzheimer's Daughter

Alzheimer's Daughter
Author: Jean Lee
Publisher: Createspace Independent Publishing Platform
Total Pages: 0
Release: 2015-01-16
Genre: Alzheimer's disease
ISBN: 9781505327120

What would you do if both parents were diagnosed with Alzheimer's?At the time of their diagnosis, Ed Church struggles to his feet, yelling, "How dare you use the A. word with me," while Ibby wags her finger at the doctor scolding, "Shame on you."They protect each other, Ibby by asserting, "We're not leaving our home," and Ed reassuring, "We're just fine."About his driving Ed defends, "I'm an excellent driver, I've never had an accident." When their daughter, Rosie, finds dings in Ed's car, he dismisses, "Someone must have bumped into me."After Rosie moves them to assisted living, convinced they are on a second honeymoon, they break the news, "We've decided not to have more children."In the late stages, they politely shake Rosie's hand, inquiring, "Now, who are you?"In ALZHEIMER'S DAUGHTER readers journey with Rosie Church from her first suspicions that something is awry to nearly a decade later as she is honored to hold Ed and Ibby's hands when they draw their final breaths.

I Will Never Forget

I Will Never Forget
Author: Elaine C. Pereira
Publisher: iUniverse
Total Pages: 283
Release: 2014
Genre: Biography & Autobiography
ISBN: 1938908589

It is painfully difficult to watch a loved one decline as dementia ravages their mind, destroying memories, rational thinking, and judgment. In her touching memoir, I Will Never Forget, Elaine Pereira shares the heartbreaking and humorous story of her mother’s incredible journey through dementia. Pereira begins with entertaining glimpses into her own childhood and feisty teenage years, demonstrating her mother’s strength of character. Years later, as Betty Ward started to exhibit bizarre behaviors and paranoia, Pereira was mystified by her mom’s amazing ability to mask the truth. Not until a revealing incident over an innocuous drapery rod did Pereira recognize the extent of her mother’s Alzheimer’s. As their roles shifted and a new paradigm emerged, Pereira transformed into a caregiver blindly navigating dementia’s unpredictable haze. But before Betty’s passing, she orchestrated a stunning rally to control her own destiny via a masterful, Houdini-like escape. I Will Never Forget is a powerful heartwarming story that helps others know that they are not alone in their journey. “Poignant, shocking, and honest … far more than just words on paper. If you or someone you know is living through the hell of dementia, you need this book!” —Ionia Martin, developer of Readful Things Reviews and Alzheimer’s caregiver

Inside the Dementia Epidemic

Inside the Dementia Epidemic
Author: Martha Stettinius
Publisher: Dundee-Lakemont Press
Total Pages: 400
Release: 2012-07-23
Genre: Biography & Autobiography
ISBN: 0984932623

One in 8 people over age 65 has Alzheimer's disease, and nearly fifty percent of those over age 85. With the passion of a committed daughter and the fervor of a tireless reporter, Martha Stettinius weaves a compelling story of her long journey caregiving for her demented mother with a broad exploration of the causes of dementia, means of treating it, and hopes for preventing it. Her greatest gift to readers is that of optimism that caregiving can deepen love, that dementia can be fought, and that families can be strengthened. Her book is appealing, enlightening, and inspiring. Includes appendices on dementia research; source notes; resources for caregivers; and an index.

Before My Eyes

Before My Eyes
Author: Diane Currie
Publisher: iUniverse
Total Pages: 90
Release: 2010-03
Genre: Biography & Autobiography
ISBN: 1450216781

"Imagine the heart-wrenching devastation that is experienced by a family when a parent is diagnosed with Alzheimer's disease! Author Diane Currie shares her candid and personal reflections about her mother's struggle with this disease as she copes with the reality of the present but always honors the memory of her past. Through a series of moving vignettes, she remains connected with her mother in a creative way as the strong bond between them slowly dissolves as the disease progresses. From the first moment of her mother's diagnosis, Currie conveys in a captivating manner the intense feelings of loss and hopelessness one experiences when dealing with this dreadful disease. She is able to protray the subtle changes in her mother's behavior and personality throughout her decline, all in a deeply human way. While Before My Eyes describes one family's touching and painful journey, in essence Currie's reflective account may typify the Alzheimer's experience, while offering support and validation to all those who walk its arduous path"--Page 4 of cover.

Measure of the Heart

Measure of the Heart
Author: Mary Ellen Geist
Publisher: Grand Central Publishing
Total Pages: 164
Release: 2008-08-13
Genre: Family & Relationships
ISBN: 0446537918

Mary Ellen Geist decided to leave her job as a CBS Radio anchor to return home to Michigan when her father's Alzheimer's got to be too much for her mother to shoulder alone. She chose to live her life by a different set of priorities: to be guided by her heart, not by outside accomplishment and recognition. The New York Times wrote a front page story on Mary Ellen on Thanksgiving 2005. It was one of the most e-mailed stories for the month. Through her own story and through interviews with doctors and other women who've followed the "Daughter Track"--leaving a job to care for an aging parent--Geist offers emotional insights on how to encourage interaction with the loved one you're caring for; how to determine daily tasks that are achievable and rewarding; how the personality of the patient affects the caregiving and the progression of the diseases; as well as invaluable advice about how caregivers can take care of themselves while accomplishing the Herculean task of constantly caring for others. Geist's years in journalism allow her to report on Boomers' caretaking dilemmas with professional objectivity, and her warm voice brings compassion and insight to one of the most difficult stituations a son or daughter may face during his or her life.

Being My Mom's Mom

Being My Mom's Mom
Author: Loretta Anne Woodward Veney
Publisher: Anewpress
Total Pages: 192
Release: 2019-12-06
Genre: Family & Relationships
ISBN: 9781970109146

"Being My Mom's Mom" chronicles the author's journey with her Mom's dementia and is faithful, funny, heartbreaking and hopeful.

Finding Rosa

Finding Rosa
Author: Caterina Edwards
Publisher: Greystone Books Ltd
Total Pages: 352
Release: 2010-03-09
Genre: Biography & Autobiography
ISBN: 1553655265

When her mother, Rosa, begins to show signs of dementia, Caterina Edwards embarks on what turns out to be a search for the meaning of the past and of home. During the four years she cares for her mother, Edwards must navigate between conflicting responsibilities while dealing with her mother's troubled mind and her own exhaustion. This frank memoir tells a complex story of two women in crisis, one struggling to maintain a sense of self, the other seeking to understand and accept both her past and her present.

Always My Grandpa

Always My Grandpa
Author: Linda Scacco
Publisher:
Total Pages: 48
Release: 2005-10-01
Genre: Juvenile Fiction
ISBN: 9781591473121

Gentle narration and easy-to-understand explanations follow Daniel and his family as they experience the gradual, debilitating effects of his grandfather's Alzheimer's Disease. Simultaneous.

Making an Exit

Making an Exit
Author: Elinor Fuchs
Publisher: Plunkett Lake Press
Total Pages: 136
Release: 2019-08-17
Genre: Biography & Autobiography
ISBN:

Just before World War II, “Lil” escaped a miserable marriage in Cleveland, Ohio, took back her maiden name, left her young daughter Elinor behind, and launched what became an international business career. Rejoining Lil at the age of ten, Elinor watched as her mother gave fabulous parties, sold automotive parts in South America, Asia, and the Middle East, and “in any given room, took up all the air there was.” With her stunning looks, high intelligence, and drive for adventure, Lil was more a figure to admire than a mother to love. Making an Exit is the account of what happened after Lil was diagnosed with Alzheimer’s. As the disease progresses, Elinor becomes her mother’s mother, caring for her with growing compassion. Lil changes, too: filled with new warmth, the word “love” now regularly crosses her lips. And despite the disintegration of Lil’s mind and language, mother and daughter make a surprising new start. “In this moving memoir of mother-daughter love only strengthened by Alzheimer’s, Elinor Fuchs brilliantly pulls off the nearly impossible feat of reproducing on the page the living voice of dementia, a masterly achievement.” — Alix Kates Shulman, author of A Good Enough Daughter and To Love What Is “How many dementia caregivers find themselves laughing and crying at the same time? This is the book for us. Making an Exit is Elinor Fuchs's sparkling gift basket to those who help, or may someday help, someone with severe cognitive impairment. A theater professor and drama critic, Fuchs describes the strange, heroic ten-year ‘Emergency’ of caring for her single mom, Lil-- a glamorously eccentric businesswoman--with irrepressible vitality, generosity, forthrightness, and love.” —Margaret Morganroth Gullette, author of Aged by Culture and Agewise “Unflinchingly honest, open-hearted, and funny, this is a work of passionate intelligence and deep humanity.” — Joyce Antler, author of The Journey Home: How Jewish Women Shaped Modern America and You Never Call, You Never Write! A History of the Jewish Mother “Fuchs celebrates the richness and folly of life and language in this loving and often funny tribute to her nonconformist mother... Never mawkish, this is a tender tale of an idiosyncratic, independent woman and her daughter’s reluctant love.” — Publishers Weekly “This book was a joy to read. It felt as if I were reading a well-written script, part drama and part comedy” — Daniel Kuhn, American Journal of Alzheimer’s Disease and Other Dementias “Making an Exit makes you cry and laugh and think. It takes you into deep disturbances of memory and history and brings you back with compassion and love. No other memoir of dementia combines the trials of caregiving and the painful, yet necessary growth of self knowledge.” — Thomas R. Cole, author of The Journey of Life: A Cultural History of Aging in America “In Making an Exit Elinor Fuchs leaves readers with an understanding of growing older in America today, where filial generosity, enduring resilience, heartfelt ambivalence, and undiminished humor shine through the most vulnerable experiences of decline.” —Stephen Katz, author of Cultural Aging: Life Course, Lifestyle, and Senior Worlds and Professor of Sociology, Trent University, Canada “For millions of sufferers and their families, Alzheimer’s is a bleak and arduous experience. Yet Fuchs’s unsentimental and often wry memoir should help them by showing that though there are certainly dark and precipitous times near the end, a life examined with totality and compassion can make that eventual end an experience not only of tragedy but dignified fulfillment.” — Michael Standaert, Los Angeles Times “Making an Exit is a rare and wonderful rollercoaster of a book, tender and touching, hilarious and high-spirited - a moving portrait of a daughter and mother that is fiercely intelligent, ineffably sad, and, finally, transcendent.” — Kathleen Woodward, author of Aging and its Discontents “Fuchs’s mother is larger than life in both her salad days and in her days of word salad. Making an Exit overflows with life — its sorrows and surprises, its follies and joys.” — Anne Basting, author of Forget Memory and editor of Playing Penelope: An Arts-Based Odyssey to Change Long-Term Care “Tremendous... A book filled with unexpected glimmers of hope, wisdom, and joy... Fuchs possesses a delightfully wicked sense of humor and a sharp eye for the quirky detail. Fuchs [employs] a deft and efficient prose style, one akin to Augusten Burroughs, David Sedaris, and Anne Lamott.” — Greg Changnon, The Atlanta Journal-Constitution “Elinor’s mother Lil is a larger than life character who needs her daughter’s help to make an exit from life’s stage. While Elinor is burdened by her mother’s dementia, she is also uplifted by its possibilities for a late-blooming relationship. Dementia is ripe for social reconstruction, and Fuchs gives us hope with stories that reframe the challenge of cognitive loss in terms of loving relationship. Read this book, find deep humanity, and enrich yours.” — Peter Whitehouse, M.D., author of The Myth of Alzheimer’s and Professor of Neurology, Case Western Reserve University

The Inheritance

The Inheritance
Author: Niki Kapsambelis
Publisher: Simon and Schuster
Total Pages: 407
Release: 2017-03-07
Genre: Biography & Autobiography
ISBN: 1451697333

This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.