A Story of Joy

A Story of Joy
Author: Janis Lipinski
Publisher: Elm Hill
Total Pages: 146
Release: 2019-01-01
Genre: Religion
ISBN: 1400306698

Jan is a woman of faith who has a desperate longing for another child. She is married to a terrific guy who is a good husband and a great dad to their two young boys, but he is content with their family just as it is and has no desire for another child. As Jan struggles with this dilemma, she surrenders her desire to God and sees him work in mighty ways. When the desire of her heart is finally met with a precious daughter, Jan and her husband name her Joy as a tribute to God’s glory. They loved her wholeheartedly, but they were unprepared for the difficult path that lay before them. Their daughter was born with multiple medical issues. She had jaundice, ear and sinus infections that didn’t respond to antibiotics, and significant breathing difficulties all within the first month of life. As the story unfolds and more medical complications are discovered, this family struggles to meet one challenge after another. Jan’s faith is challenged again and again as she desperately tries to meet her daughter’s needs for the best medical care and fulfill her obligations as a wife and mother to her other two children. In the midst of turmoil, Jan learns how to rely on God for the strength and wisdom she needs to make difficult decisions and juggle responsibilities. Her honest account of her personal struggles to hang on to God’s promises as the world around her shifts and crumbles allows the reader to see how God can use our circumstances to stretch us, mold us, and create something beautiful out of the chaos.

Voiceless Child

Voiceless Child
Author: Ann Widick Giganti
Publisher: Ann Widick Giganti
Total Pages: 358
Release: 2017-12-03
Genre:
ISBN: 0999606484

True story! "I spoke soothing words and touched her pale fingers. The silent weeping stopped." The baby's chest heaved as she struggled to breathe. Airway scarring rendered spoken language impossible. Heather wasn't my child, but her distress tattered my heart. Fourteen months old, the little one lay swaddled in a blanket, forgotten and lost amongst unchanging hospital routines. “Just be glad she’s only abandoned, not abused.” The words on the other end of the phone line stung. I wrestled with anger, but instinct quieted any sharp response. A chance meeting turned tragedy to miracle. I wrote the book about our search to give the voiceless child a family, to find a surgeon who could reconstruct her airway. Otherwise she would never speak, never swim. When I met her, she'd never been outside, never seen the sun, never seen the moon. She could not even move a finger. She'd always lived in a hospital on a breathing machine, fed by a tube in her tummy. No one dared dreamed she might survive and have a family of her own. Might we adopt her? Were the damning prophecies true? Sometimes dreams come true, more fantastic than envisioned. There is a newer subspecialty, pediatric otolaryngology. These ear, nose, and throat surgeons can restore voice and hearing. READ THE BOOK. WRITE A REVIEW. TELL YOUR FRIENDS. Enjoy the adventure of healing Heather and discover the miracle surgery that restores her voice. "This is a true story of hope, unconditional love, faith, as well as an exceptional family who would not take "No" for an answer. Ann writes beautifully with vision and descriptions that take you bedside with Heather, on family outings to the river, or just inside her home filled with laughter, scary moments with how fragile Heather was, the exhausting routine of life at that time, and finally the miracle of seeing Heather grow up." Kathy, Reader *** Diana Forrest. I'm reading this book now, can hardly put it down. Thanks be to God to her awesome Adopted family and to so many great Doctors and nurses. Heather is a living beautiful Miracle and a precious gift from God. Dec. 25, 2017 Janet Kortright rated it amazing. I could NOT put this book down. I read it in one night. Start to finish. I felt like I was part of the journey, the family. I will read this again and recommend it to others. A feel good story that shows they're are good people in the world. To advocate for children. To stand your ground to get the care needed for your children. Lynn, January 3, 2018 Voiceless Child is an amazing true story on the trials and tribulations in adopting a special medical needs child. A must read for all especially those who can relate to caring for and having a premature baby like me and my husband. Such a double blessing: For Heather - to be adopted by a loving family and getting a voice. For the family - the experience of adopting and providing medical needs for Heather that takes them on extraordinary life experiences of faith, hope, perseverance, joy, and love. Thanks Ann for sharing your true life experience! *** Heather’s story is heartwrenching, captivating, frustrating. I was impelled to read on to discover who would help or hinder her recovery. What I learned applauds the magical minds and hands of innovative surgeons. The inspiring story of perseverance is relevant to anyone who is facing a challenging obstacle. --Dar Walks Out, Lakota Sioux, Pine Ridge, South Dakota Voiceless Child is a thoughtful exploration of the grace and imperfections inherent in medical care systems and individual providers. Heather epitomizes the motivation for devising surgical procedures that eliminate a parent’s constant worry of death associated with airway disorders. -- Dr. Robin Cotton, director of pediatric otolaryngology, Cincinnati Children's Hospital Medical Center Before the events evolved to the point whose impact could only be conveyed through a book, I published it as an article, “The Child No One Wanted” in Woman’s Day. “We’ve had a terrific reaction to it. Our readers really loved the story.” --Jane Chesnutt, then editor-in-chief of Woman’s Day.

High Risk: Stories of Pregnancy, Birth, and the Unexpected

High Risk: Stories of Pregnancy, Birth, and the Unexpected
Author: Chavi Eve Karkowsky MD
Publisher: Liveright Publishing
Total Pages: 230
Release: 2020-03-10
Genre: Biography & Autobiography
ISBN: 163149502X

A doctor’s revelatory account of pregnancy and the complexity of reproductive life—and everything we lose when we don’t speak honestly about women’s health. “My work offers a window into the darkest and lightest corners of people’s lives, into the extremes of human experience,” writes Dr. Chavi Eve Karkowsky in High Risk, her timely and unflinching account of working in maternal-fetal medicine—that branch of medicine that concerns high-risk pregnancies. Whether offering insight into the rise in home births, the alarming rise in America’s maternal mortality rate, or the history of involuntary sterilization, Karkowsky offers a window into all that pregnancy, labor, and birth can entail—birth and joy, but also challenge and loss—illustrating the complexity of reproductive life and the systems that surround it. With historical insight and journalistic verve, Karkowsky unpacks what is involved for women, for a family, and for us as a society; and explores what’s at risk when these aspects of medicine remain clouded in mystery and misinformation.

Ava’S Story

Ava’S Story
Author: Jennifer Rohde Dickerson
Publisher: WestBow Press
Total Pages: 144
Release: 2012-05-22
Genre: Religion
ISBN: 1449749739

Ava Elaine was born with a condition unheard of by many who will read her story: congenital diaphragmatic hernia, or CDH. She began her journey on October 22, 2010. From the moment she came into my life, with her amazing, beautiful red hair and pretty blue eyes, I knew pure love. After one brief moment of skin-to-skin touch with her, she was whisked from my arms to a waiting team of doctors and nurses and put on a ventilator. Ava's courageous battle against seemingly insurmountable odds tells the story of her amazing impact on the lives of her family, friends, doctors, nurses, and even complete strangers. From her delivery at Parkland to the NICU at ChildrensMedicalCenterinDallas, she touched the lives of everyone who came to know her. Ava quickly got a reputation for being a fighter. From the time she entered the NICU, Ava clenched her little fists in preparation for her fight. Grandpa bought her a set of pink boxing gloves, and Team Ava was always standing at the ready in her corner. The staff at the hospital marveled at her ability to overcome a number of obstacles and difficult medical procedures. She would surprise us all, by telling us in her own way that she was not giving up without a fight. Elias Lopez, chaplain, ChildrensMedicalCenter In the words of Dr. James Thomas, Ava was endowed with a unique grace that those who knew her could feel. Perhaps Ava was a vehicle for a greater force or maybe she possessed a larger-than-life charisma. How could one little girl's battle for life have such a life-changing effect on those who loved her?

Breathing for Life: Our Stories

Breathing for Life: Our Stories
Author: Courageous Conquerors of Pulmonary Disease
Publisher: Author House
Total Pages: 188
Release: 2012-03-01
Genre: Medical
ISBN: 1467031356

How hard can it be.. ..to eat a meal? ..to take a shower? ..to walk across the room? If you have lung disease, or have a friend or family member with lung disease, you know how hard it can be. This book is a compilation of stories: stories of strife, determination, faith, and accomplishment from many who have lived with lung disease. Take a journey through living with lung disease with them. Obtain a deeper understanding of their joys, disappointments, and dreams. This book was the vision of a pulmonary patient who has walked the walk. Even though she had no previous experience with publishing, she followed her hearts desire to help others tell their story. Fulfill the dream of these individuals. Allow them to share their deeply personal stories with you. You will laugh, cry, and understand. Never give up on anything, miracles happen every day Rebecca H. Crouch PT, MS, DPT, CCS, FAAVPR Clinical Director of Pulmonary Rehabilitation Proceeds benefit further research for pulmonary disease.

Normal

Normal
Author: Magdalena Newman
Publisher: Clarion Books
Total Pages: 338
Release: 2020
Genre: Juvenile Nonfiction
ISBN: 1328631834

A beautifully illustrated and lyrical picture-book biography of eccentric and beloved writer Praised by R.J. Palacio as "wondrous"--this moving memoir follows a teenage boy with TC syndrome and his exceptional family from diagnosis at birth to now. "This touching memoir is a must-read for anyone who wants to know more about the real-world experiences of a child with craniofacial differences and his extraordinary family. It's also more than that. It's a story about the love between a mother and a son, a child and his family, and the breadth of friends, helpers, and doctors that step in when the unexpected happens. It's a story that will make young readers reevaluate the word 'normal'--not only as it applies to others, but to themselves. Any book that can do that is pretty wondrous, as far as I'm concerned." --R.J. Palacio, author of Wonder Normal. Who is to say what this word means? For Magda Newman, it was a goal. She wanted her son Nathaniel to be able to play on the playground, swim at the beach, enjoy the moments his friends took for granted. But Nathaniel's severe Treacher Collins syndrome--a craniofacial condition--meant that other concerns came first. Could he eat without the aid of a gastrointestinal tube? Could he hear? Would he ever be able to breathe effortlessly? But Nathaniel looks at "normal" from a completely different perspective. In this uplifting and humorous memoir that includes black-and-white comic illustrations, mother and son tell the story of his growing up--from facing sixty-seven surgeries before the age of fifteen, to making friends, moving across the country, and persevering through hardships. How they tackle extraordinary circumstances with love and resilience is a true testament to Magda and Nathaniel's family, and to families everywhere who quietly but courageously persist.

The Good Fight: A Paramedic's Story

The Good Fight: A Paramedic's Story
Author: J. Christopher Thomas
Publisher: Lulu.com
Total Pages: 170
Release: 2019-11-16
Genre: Performing Arts
ISBN: 1794749195

Beside the Thin Red Line of the fire service and the Thin Blue Line of law enforcement lies the Thin White Line. The Thin White Line represents the unsung heroes of the Emergency Medical Services (EMS) profession. These highly trained EMTs and paramedics put their lives on the line 24/7/365 to deliver emergency medical care to the sick and injured, no matter the hour of day, day of the week, or type of weather. Whether they are treating patients of a multi-vehicle car crash, the victim of a shooting, or simply someone with breathing difficulty, they are the ones we depend on to bring medicine to the streets and save lives, one call at a time. ""The Good Fight: A Paramedic's Story"" gives you the opportunity to ride along with medics and experience first-hand the true stories of courage and compassion that these highly skilled medical providers encounter every day. So hop in, buckle up, and hold on tight. This will be a ride you won't forget.

Gerry the Giraffe and His Super Awesome But Sometimes Icky Tracheostomy

Gerry the Giraffe and His Super Awesome But Sometimes Icky Tracheostomy
Author: Rebekah Foguth
Publisher: Createspace Independent Publishing Platform
Total Pages: 24
Release: 2017-07-05
Genre:
ISBN: 9781548406578

This is Gerry the Giraffe, and he has a tracheostomy. He also has a book written with the aim to provide an easier transition for children with medical needs, to offer an easier way for parents to talk with their children about new tracheostomies, or just to increase any kid's knowledge regarding them or the amazing people who have them. Journey with Gerry through Halloozaballoo, where he will encourage children to understand and grow with each other.

Stories of Vigilant Courage

Stories of Vigilant Courage
Author: Adam Hildebrand
Publisher: iUniverse
Total Pages: 262
Release: 2008-08
Genre: Family & Relationships
ISBN: 059548641X

If you find yourself at the bedside of a child with multiple handicaps and complex medical needs, you need to read this book. Whether you are a nurse, doctor, parent or family member, health care professional, or a personal ally of an individual who is disabled, you will benefit from reading the stories in the book and the analysis of issues by the editor. It sometimes happens that some people, whether a professional or not, will be tempted to think of such children as better off dead-an extremely dangerous assumption. Illness and suffering do not diminish the value of a person's life, and no one has the right to decide whether or not a person should live or die. This book gives firsthand accounts of the experiences of handicapped children and their families in health care settings. Their experiences vary from doctor to doctor, nurse to nurse, and hospital to hospital. The key difference is that some people held a strong belief that every person's life has intrinsic value and that their lives were sacred. Yet others measured the value of a life according to external factors, such as level of disability, impairments, and level of suffering, whether presumed or real. You can guess which people gave better care, and which children lived longer and better accordingly. In spite of the difficult challenges that handicapped children and their families face as described in these stories, this book is a book of hope. You will be inspired by the courageous tenacity of parents who literally stood at the bedside of their children, often for months, and protected and affirmed the well-being of their child. This is a book about people who made a difference, a difference between life and death.