When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness
Author: Frank J. Sileo
Publisher: American Psychological Association (APA)
Total Pages: 419
Release: 2021-01-26
Genre: Family & Relationships
ISBN: 9781433833816

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

Extreme Parenting

Extreme Parenting
Author: Sharon Dempsey
Publisher: Jessica Kingsley Publishers
Total Pages: 211
Release: 2008-03-15
Genre: Family & Relationships
ISBN: 184642772X

[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.

Helping Children and Adolescents with Chronic and Serious Medical Conditions

Helping Children and Adolescents with Chronic and Serious Medical Conditions
Author: Nancy Boyd Webb
Publisher: John Wiley & Sons
Total Pages: 391
Release: 2010-10-28
Genre: Political Science
ISBN: 111801216X

Praise for Helping Children and Adolescents with Chronic and Serious Medical Conditions A Strengths-Based Approach "Helping Children and Adolescents with Chronic and Serious Medical Conditionsprovides a wellspring of knowledge, from the theoretical to the clinical. The many vignettes and transcriptions immeasurably enrich the reader's understanding of the interventions and their broader applicability."—Barbara M. Sourkes, PhDJohn A. Kriewall and Elizabeth A. Haehl Director of Pediatric Palliative CareLucile Packard Children's Hospital at Stanford An important and practical guide to providing compassionate care and support to medically compromised children and their families Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach presents practical guidance on integrating the latest research into evidence-based practice to ensure the best client care. Edited by a top scholar in the field, this essential resource contains contributions from renowned specialists in various helping fields. Utilizing an inter-professional perspective, helping professionals will draw from the experiences and expertise of a wide range of medical professionals, providing a "window" into their roles, responsibilities, and challenges, offering the most effective approaches for working with this special population of children and their families. Equipping practitioners with the knowledge and skills needed to encourage children's resilience and help them build their emotional strengths, this book uses a caring yet authoritative tone and discusses: The emotional impact of illness on the individual and the family Child-life practice in hospitals School-based interventions for children and adolescents with medical conditions How to meet the spiritual as well as emotional needs of children with chronic and life-threatening illness With thoughtful coverage of positive helping approaches that encourage family and individual strengths, Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach is an invaluable resource for social workers, teachers, school counselors, and other mental health and medical professionals who work with medically challenged children and adolescents in every setting.

When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness
Author: Frank J. Sileo
Publisher: American Psychological Association
Total Pages: 272
Release: 2021-03-09
Genre: Family & Relationships
ISBN: 1433833824

Silver Medal for Parenting in the Independent Publishers Awards "This is an outstanding book that addresses the challenges of chronic disease in children from multiple viewpoints with a great deal of practical knowledge. Given that Diabetes is one of the most common chronic diseases of childhood, this work will serve to guide families in navigating the sometimes challenging journey to ensure the best possible outcomes for all." - Robert Gabbay, MD, PhD, Chief Scientific and Medical Officer for the American Diabetes Association Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you’re focused on ensuring your child gets the best possible treatments for their symptoms, it’s easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.

When Children Feel Pain

When Children Feel Pain
Author: Rachel Rabkin Peachman
Publisher: Harvard University Press
Total Pages: 337
Release: 2022-08-30
Genre: Family & Relationships
ISBN: 0674185021

Childhood pain is a widespread problem, yet it often goes untreated. Drawing on the latest research, two leading voices on pediatric pain show parents and medical practitioners how to handle children’s pain, from bumps and bruises to chronic illnesses, providing strategies that make a real difference in kids’ lives.

America's Children

America's Children
Author: Institute of Medicine and National Research Council
Publisher: National Academies Press
Total Pages: 217
Release: 1998-11-27
Genre: Medical
ISBN: 0309065607

America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.

Chronic Disorders in Children and Adolescents

Chronic Disorders in Children and Adolescents
Author: Mark L. Goldstein
Publisher: Springer Science & Business Media
Total Pages: 286
Release: 2011-08-25
Genre: Medical
ISBN: 1441997644

There has been a significant increase in the prevalence of certain chronic disorders among children and adolescents. For example, health experts warn of an epidemic of diabetes mellitus due to an increase in the sedentary life style and poor nutrition of children. There are many questions still to be addressed in the study of chronic disorders among children and adolescents.What are the risk factors associated with chronic diseases in these populations?What are the major complications that contribute to disability and increased health care utilization and costs? What impact do chronic diseases have on the psychosocial development? What are the most effective diagnostic, treatment,and rehabilitation strategies? How can patient education and self-management activities be improved to help children and adolescents improve compliance with treatment regimens? How can parents and other family members become more involved in assessment and management? In what ways can peers, schools,religious institutions, and other organizations help children and adolescent scope with their chronic disease? This book addresses these questions by focusing on how eight chronic disorders affect health care utilization, costs, coping, and health outcomes in children and adolescents.Research studies are used to illustrate wide range of topics from the epidemiology of chronic diseases in children and adolescents, health care utilization and costs, to treatment outcomes, disability, and family processes.Case studies from a clinical psychologist’s private practice are used to clarify major psychosocial issues underlying chronic diseases in these populations. Chapter One analyzes the epidemiology of eight chronic conditions in children and adolescents. Data on the prevalence of diseases and associated risk factors are stressed in this chapter. Health care planners can use these analyses to improve primary, secondary, and tertiary prevention through more effective uses of health care resources. Chapter Two examines the latest information on health care utilization and costs for children and adolescents that can point to a more efficient means of reducing the rising health care costs associated with the treatment of chronic diseases. In the remaining chapters, the eight chronic diseases are evaluated in terms of five major issues. First, the latest trends in complications associated with each chronic condition are explored.Second, the impact of each disease on disability and psychosocial development of children and adolescents are analyzed. Third, recent research findings on diagnosis,treatment, and rehabilitation strategies are discussed. Fourth, new trends in patient education and self-management are presented. Fifth, each chapter will assess the role of family, peers, schools, and other organizations in helping children and adolescents cope with their chronic disorders. Dr. Mark L. Goldstein, a clinical psychologist, reviews the literature and uses composite case studies from his practice to illustrate the impact of these trends on how children and adolescents manage chronic disease. The information in this book will be relevant to a wide range of professionals and students in the fields of pediatrics, medicine, nursing, public health, mental health, social work,education, health administration, health policy, and social sciences.

Chronic Disease in the Twentieth Century

Chronic Disease in the Twentieth Century
Author: George Weisz
Publisher: JHU Press
Total Pages: 326
Release: 2014-05
Genre: Law
ISBN: 1421413027

Chronic Disease in the Twentieth Century challenges the conventional wisdom that the concept of chronic disease emerged because medicine's ability to cure infectious disease led to changing patterns of disease. Instead, it suggests, the concept was constructed and has evolved to serve a variety of political and social purposes. How and why the concept developed differently in the United States, an United Kingdom, and France are central concerns of this work. While an international consensus now exists, the different paths taken by these three countries continue to exert profound influence. This book seeks to explain why, among the innumerable problems faced by societies, some problems in some places become viewed as critical public issues that shape health policy. -- from back cover.

Relieve Your Child's Chronic Pain

Relieve Your Child's Chronic Pain
Author: Elliot J. Krane
Publisher: Touchstone
Total Pages: 0
Release: 2005-03-15
Genre: Family & Relationships
ISBN: 9780743262033

An essential survival guide for parents whose children suffer with persistent and often debilitating pain Approximately ten million children are living with chronic pain. Most people would be surprised at such numbers, but for the parents of these children, the challenge of helping a pain-stricken child live a normal life is a frightening and frustrating reality. Chronic pain in children can manifest as abdominal, migraine, or facial pain. It also stems from a wide variety of disorders such as juvenile rheumatoid arthritis, cystic fibrosis, hemophilia, and childhood cancers. No matter what type of chronic pain the child suffers with, a parent must be armed with an understanding of how a child's expression and experience of pain differs from an adult's. Trained in pediatric anesthesia and intensive care at Boston Children's Hospital, Dr. Elliot Krane has devoted his entire professional life to refining and innovating techniques, strategies, and therapies to relieve the suffering of children with pain. In his book, Relieve Your Child's Chronic Pain, parents will find the information and tools they need to get the very best care for their child. It will help you: Recognize, measure, and evaluate your child's pain properly Learn about the many alternative pain-management approaches that can be used at home Dispel fears about addiction if your child is prescribed a narcotic Find an appropriate pain-management clinic for your child Reduce the stress and anxiety in the home in a way that benefits the entire family You may not always be able to eliminate chronic pain entirely, but you can succeed in minimizing your child's suffering.