Dying in America

Dying in America
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 470
Release: 2015-03-19
Genre: Medical
ISBN: 0309303133

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Hospice and Palliative Care for Companion Animals

Hospice and Palliative Care for Companion Animals
Author: Amir Shanan
Publisher: John Wiley & Sons
Total Pages: 352
Release: 2017-04-17
Genre: Medical
ISBN: 1119036666

Hospice and Palliative Care for Companion Animals: Principles and Practice offers the first comprehensive reference to veterinary hospice and palliative care, with practical guidance and best practices for caring for sick and dying animals. Presents the first thorough resource to providing veterinary hospice and palliative care Offers practical guidance and best practices for caring for sick and dying animals Provides an interdisciplinary team approach, from a variety of different perspectives Gives concrete advice for easing pets more gently through their final stage of life Includes access to a companion website with client education handouts to use in practice

Palliative Day Care

Palliative Day Care
Author: Ronald Fisher
Publisher: CRC Press
Total Pages: 259
Release: 1996-03-29
Genre: Health & Fitness
ISBN: 9780340625217

There has been a steady growth in the provision of day care services for people with life-threatening illnesses who live at home. This book includes details of the range of therapies and services that a multi-disciplinary team can provide to address the physical, emotional, psycho-social and spiritual needs of these patients and their families, thus enabling them to remain in their own homes.

Palliative Care in Amyotrophic Lateral Sclerosis

Palliative Care in Amyotrophic Lateral Sclerosis
Author: David Oliver
Publisher: OUP Oxford
Total Pages: 353
Release: 2014-03-20
Genre: Medical
ISBN: 0191509507

Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.

Approaching Death

Approaching Death
Author: Committee on Care at the End of Life
Publisher: National Academies Press
Total Pages: 457
Release: 1997-10-30
Genre: Medical
ISBN: 0309518253

When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

Hospice Coordinator

Hospice Coordinator
Author: National Learning Corporation
Publisher: Career Examination
Total Pages: 0
Release: 2017
Genre: Study Aids
ISBN: 9780837330341

The Hospice Coordinator Passbook(R) prepares you for your test by allowing you to take practice exams in the subjects you need to study. It provides hundreds of questions and answers in the areas that will likely be covered on your upcoming exam.

Juggling Life, Work, and Caregiving

Juggling Life, Work, and Caregiving
Author: Amy Goyer
Publisher:
Total Pages: 0
Release: 2015
Genre: Family & Relationships
ISBN: 9781634251631

One in four American adult face the challenges of caring for an adult friend or relative. Although caregiving can be a richly rewarding and joyful experience, the role comes with enormous responsibilities-- and pressures. This gentle guide provides practical resources and tips that are easy to find when you need them, whether you're caregiving day to day, planning for future needs, or in the middle of a crisis. Goyer offers insight, inspiration, and poignant stories and experiences of caregivers, including her own as a live-in caregiver for her parents.

7 Lessons for Living from the Dying

7 Lessons for Living from the Dying
Author: Dr. Karen Wyatt
Publisher: Watkins Media Limited
Total Pages: 246
Release: 2020-05-12
Genre: Self-Help
ISBN: 1786783789

A hospice doctor and caregiver shares 7 inspirational lessons she’s learned from her patients—plus daily practices to help you incorporate them into your life. “Clearly and succinctly written, and with deeply profound insights . . . highly recommended.” —Ken Wilber, author of The Integral Vision Karen Wyatt has been privileged to share the final months, weeks, days and moments with many of her patients. This unique experience has given her a profound insight into death and dying. In this book she shares her story and the stories of her patients, providing us with 7 key lessons that the dying can teach us. • Lesson 1: Suffering: Embrace Your Difficulties • Lesson 2: Love: Let Your Heart Be Broken • Lesson 3: Forgiveness: Hold No Resentments • Lesson 4: Presence: Dwell in the Present Moment • Lesson 5: Purpose: Manifest Your Highest Potential • Lesson 6: Surrender: Let Go of Expectations • Lesson 7: Impermanence: Face Your Fear Each lesson is a wake-up call inviting to us to live our lives more fully, with more connection and less regret. With each lesson Karen provides a clear analysis of the importance of that lesson and then goes on to share daily practices on how we can live the teachings as a spiritual practice.

Re-Imagining the End of Life

Re-Imagining the End of Life
Author: Janet Booth
Publisher:
Total Pages: 69
Release: 2019-04-18
Genre:
ISBN: 9781798285398

What does it mean to be prepared for the last part of our lives?One of the many lessons author and end-of-life nurse coach Janet Booth learned at the bedside of dying people is how painful it is to come unprepared to the end of life, whether it is our own or that of our loved ones. Much of the suffering we experience seems to come from our unfamiliarity with the journey at end of life and our not knowing how to prepare for it. So there is a need for a different kind of conversation about serious illness and dying in our country. Nurses are trusted professionals who are present with people through all of life's transitions. How might they take more leadership in these conversations?The purpose of this handbook is to provide nurses, coaches, and other health care professionals with opportunities for reflection and inspiration in their work. As nurses and health care professionals, many of us have seen firsthand that the process of navigating serious illness and death within our complex health care system is often confusing, isolating, crisis-driven, and dis-heartening.What outcomes might be possible if instead: * we reimagined the end of life as a vital, purposeful stage of human development? * practices of healing - forgiveness, gratitude, and letting go - became essential parts of our care plans? * wisdom instead of fear informed our challenging decision points? * we prepared for death in order to live more fully the time that we have? * the hard work of caregiving was sustainable and meaningful for both family and professional caregivers?In this book you will find fresh ideas, tools, and reflective practices that encourage you to explore your personal beliefs and values about aging, advanced illness, and dying. It is intended to inspire you to reimagine the end of life as a vital part of how we become fully human - a time of life that holds value, meaning, and purpose.