The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's

The Longest Goodbye: A Family's Hope-Filled Journey Through Alzheimer's
Author: Shelly Calcagno
Publisher: Ambassador International
Total Pages: 91
Release: 2022-11-15
Genre: Religion
ISBN: 1649603371

Are we ever ready to say goodbye? She looked out into the yard sprinkled with spring dandelions. “Yellow flowers,” she said, searching for her words. We knew something wasn’t right. That’s when things began to fall apart for our family, when our longest goodbye journey began—the defining before-and-after moment. And now, looking back, it’s been almost a decade of slow loss and drawn-out grief as we slowly let go of our beautiful mom. In the middle of it all, though, we have learned to look for hope and chase down joy, discovering that, in spite of our pain, there are always gifts to be found, even on the hardest of days. Alzheimer’s disease affects almost fifty million people worldwide. It touches people across every walk of life. So, how do millions of people figure out how to love as they let go? The Longest Goodbye is a collection of stories and moments not just about the clinical side of memory loss–but the emotional heart journey. It is a story that shows how joy and grief are often intertwined and wrapped up together in the glorious mess of life. The Longest Goodbye encourages readers to remember the ones they love while they are still here and to intentionally celebrate and live through the pain and hard days. It’s filled with tears, hope, and bitter-sweet moments all held together by the beautiful love of a mother and daughter holding onto a life filled with memories, while learning to let go and say goodbye.

Jan's Story

Jan's Story
Author: Barry Rex Petersen
Publisher: Behler Publications
Total Pages: 226
Release: 2010
Genre: Biography & Autobiography
ISBN: 1933016442

CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's

Floating in the Deep End: How Caregivers Can See Beyond Alzheimer's
Author: Patti Davis
Publisher: Liveright Publishing
Total Pages: 185
Release: 2021-09-28
Genre: Health & Fitness
ISBN: 1631497995

With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.

Talking to Alzheimer's

Talking to Alzheimer's
Author: Claudia Strauss
Publisher:
Total Pages: 196
Release: 2001
Genre: Family & Relationships
ISBN:

Simple ways to connect when you visit with a family member or friend.

My Mom Inez

My Mom Inez
Author: Bob Miller
Publisher: iUniverse
Total Pages: 212
Release: 2012-09-14
Genre: Biography & Autobiography
ISBN: 9781475946727

Alzheimers hijacked their plans, required their full attention, and forced them to change their daily habitstheir very livesin order to accommodate its merciless, unrelenting demands. In My Mom Inez, author Bob Miller shares the story of his familys life against the backdrop of Alzheimers disease. In this deeply personal and powerful account, Miller tells of his role as an only son who unexpectedly found himself in the position of having to care for his beloved mother, Inez, once it became clear she had been stricken with Alzheimers disease. In this memoir, he narrates his struggles to understand what was happening and how he then coped with the emotional, medical, social, and economic issues her condition brings to their lives. With the familys history interwoven, My Mom Inez demonstrates the strength of the human spirit as Miller remains dedicated to providing the same loving care for his mother that she delivered to him throughout his life.

Caring for Mother

Caring for Mother
Author: Virginia Stem Owens
Publisher: Westminster John Knox Press
Total Pages: 179
Release: 2007-06-04
Genre: Religion
ISBN: 0664236308

In Caring for Mother, Virginia Stem Owens gives a clear and realistic account of caring for an elderly loved one. Along the way, Owens notes the spiritual challenges she encountered, not the least of which included fear of her own suffering and death. This book will be a helpful companion to those who have recently assumed the role of caregiver, helping them anticipate some of the emotional turbulence they will encounter along the way.

The Long Goodbye

The Long Goodbye
Author: Margaret R. Miles
Publisher: Wipf and Stock Publishers
Total Pages: 105
Release: 2017-02-02
Genre: Religion
ISBN: 1498282385

The Long Goodbye: Dementia Diaries discusses a disease that is both personal and social for more than five million patients and their families and friends in the United States today. Now that there are medical strategies for preventing and/or curing strokes, heart attacks, even cancer, many more people are going to live into the dementia years in the near future. Although many dementia horror stories circulate in conversation and in the media, they are not the whole story. Creative approaches to loving a dementia patient can make for a valuable learning experience for family and caregivers. In The Long Goodbye Margaret Miles describes her commitment to making--rather than passively suffering--her spouse's dementia experience. Family and friends who accompany patients find embedded in the experience moments of great beauty, hilariously funny incidents, new companions, and life insights. The narrative provides both a travelogue and suggestions for a richly meaningful life passage for all participants. The Long Goodbye seeks to supply a balanced picture of a disease usually represented as unmitigated loss.

The Long Goodbye

The Long Goodbye
Author: Patti Davis
Publisher: Knopf
Total Pages: 200
Release: 2011-07-27
Genre: Biography & Autobiography
ISBN: 0307801853

Ronald Reagan’s daughter writes with a moving openness about losing her father to Alzheimer’s disease. The simplicity with which she reveals the intensity, the rush, the flow of her feelings encompasses all the surprises and complexities that ambush us when death gradually, unstoppably invades life. In The Long Goodbye, Patti Davis describes losing her father to Alzheimer’s disease, saying goodbye in stages, helpless against the onslaught of a disease that steals what is most precious–a person’s memory. “Alzheimer’s,” she writes, “snips away at the threads, a slow unraveling, a steady retreat; as a witness all you can do is watch, cry, and whisper a soft stream of goodbyes.” She writes of needing to be reunited at forty-two with her mother (“she had wept as much as I over our long, embittered war”), of regaining what they had spent decades demolishing; a truce was necessary to bring together a splintered family, a few weeks before her father released his letter telling the country and the world of his illness . . . The author delves into her memories to touch her father again, to hear his voice, to keep alive the years she had with him. She writes as if past and present were coming together, of her memories as a child, holding her father’ s hand, and as a young woman whose hand is being given away in marriage by her father . . . of her father teaching her to ride a bicycle, of the moment when he let her go and she went off on her own . . . of his teaching her the difference between a hawk and a buzzard . . . of the family summer vacations at a rented beach house–each of them tan, her father looking like the athlete he was, with a swimmer’s broad shoulders and lean torso. . . . She writes of how her father never resisted solitude, in fact was born for it, of that strange reserve that made people reach for him. . . . She recalls him sitting at his desk, writing, staring out the window . . . and she writes about the toll of the disease itself, the look in her father’s eyes, and her efforts to reel him back to her. Moving . . . honest . . . an illuminating portrait of grief, of a man, a disease, and a woman and her father. With a preface written by the author for the eBook edition.

I Love You Always

I Love You Always
Author: LaBena Fleming
Publisher: Independently Published
Total Pages: 243
Release: 2020-07-10
Genre:
ISBN:

Caring for someone who has Alzheimer's or other forms of dementia is a daunting task that can leave most caregivers drained, strained, and depressed. Many find comfort in knowing they are not alone and in being able to share their experiences with someone who understands what they are going through. They want assurance that it's normal to "lose it" occasionally and that feeling "less than" is common. Caregivers need all the support and tools they can garner to help them survive this experience. Such was the reason for writing "I Love You Always," which is an honest account of one family's experiences from diagnosis and beyond.Lottie has survived seemingly insurmountable tragedies in her life, emerging stronger after each one. When she is diagnosed with Alzheimer's and vascular dementia, at the age of eighty, she becomes determined to live until ninety, longer than anyone in her immediate family. Her children join forces to help Lottie reach her goal while ensuring she remains in her beloved home. I Love You Always is her daughter LaBena's account of their tumultuous journey, sharing practical tips for caregivers, as well as the lessons of love, laughter, and faith that were learned along the way.You are not alone and the more we share our stories, the more people will understand. May there soon be a cure!

In the Lingering Light

In the Lingering Light
Author: Cynthia Fantasia
Publisher: NavPress
Total Pages: 176
Release: 2019-07-09
Genre: Religion
ISBN: 1631469134

Alzheimer’s is a particularly cruel disease. It robs us of the people we love—slowly, subtly, but unrelentingly. Our love for them is tested as their needs increase and their recall decreases, and our own needs suffer neglect as more and more of our time and attention is given to our loved one. Cynthia Fantasia is a caregiver. In this deeply understanding and empowering work she walks you through the landscape of caregiving—for your loved one and for yourself. She introduces you to friends and fellow travelers who offer their own words of empathy and insight. And she slowly, subtly, but unrelentingly empowers you to live well as you care for your loved one in the lingering light.