The Emotional Journey of the Alzheimer's Family

The Emotional Journey of the Alzheimer's Family
Author: Robert B. Santulli, MD
Publisher: Dartmouth College Press
Total Pages: 231
Release: 2015-04-17
Genre: Health & Fitness
ISBN: 1611687446

Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

The Emotional Journey of the Alzheimer's Family

The Emotional Journey of the Alzheimer's Family
Author: Robert B. Santulli, MD
Publisher: Dartmouth College Press
Total Pages: 231
Release: 2015-03-22
Genre: Health & Fitness
ISBN: 1611687454

Alzheimer's disease is a growing public health crisis. According to the Alzheimer's Association, there are 5.4 million victims of this disease; by 2050, there will be close to 15 million people who suffer from this debilitating disorder of memory, thinking, personality, and functioning. The disease profoundly affects immediate family members, close friends, and neighbors. These people - the Alzheimer's family - undergo tremendous psychological and emotional change as they witness the cruel and relentless progression of the disease in their loved one. Incorporating over thirty years of experience with Alzheimer's patients and their families with current medical knowledge, the authors chart the complex emotional journey of the Alzheimer's family from the onset of the disease through the death of the loved one. They discuss the anger that rises in the face of discordant views of the disease, the defenses that emerge when family members are unwilling to accept a dementia diagnosis, and the common emotions of anxiety, guilt, anger, and shame. They focus especially on grief as the core response to losing a loved one to dementia, and describe the difficult processes of adaptation and acceptance, which lead to personal growth. Final chapters emphasize the importance of establishing a care community and how to understand and cope with personal stress. This volume will be useful to medical professionals and ordinary people close to or caring for a person with dementia.

H.O.P.E. for the Alzheimer's Journey

H.O.P.E. for the Alzheimer's Journey
Author: Carol B. Amos
Publisher: Morgan James Publishing
Total Pages: 149
Release: 2018-06-03
Genre: Health & Fitness
ISBN: 1683509048

“A useful, step-by-step guide for anyone new to caring for those with Alzheimer’s.” —Library Journal H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. Author Carol B. Amos incorporates her own experience—including her family’s email correspondence illustrating how they coped during this particular challenge. Amos also introduces The Caregiving Principle™: a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care for themselves and provides inspiration for a less stressful, more rewarding journey.

Pathways

Pathways
Author: Kae Hammond
Publisher: Kae Hammond
Total Pages: 225
Release: 2012-04-10
Genre: Health & Fitness
ISBN: 1432781286

Possibly the best rescue plan you've ever read.If you are caring for someone with Alzheimers Disease or Related Dementias,PathwaysPathwaysPathways"You have straightened out the curves and turns and false roads of the family caregiver maze. Accurate, useful, dependable, relevant, and reliable. You have done a yeoman's job and all of us who care for a person with dementia will be better for your efforts. PathwaysContact Us:For more information or immediate assistance, contact us at (877) 699-3456 or visit www.dementiahelpcenter.com

Creating Moments of Joy Along the Alzheimer's Journey

Creating Moments of Joy Along the Alzheimer's Journey
Author: Jolene Brackey
Publisher: Purdue University Press
Total Pages: 298
Release: 2016-11-15
Genre: Family & Relationships
ISBN: 1612494838

The beloved best seller has been revised and expanded for the fifth edition. Jolene Brackey has a vision: that we will soon look beyond the challenges of Alzheimer's disease to focus more of our energies on creating moments of joy. When people have short-term memory loss, their lives are made up of moments. We are not able to create perfectly wonderful days for people with dementia or Alzheimer's, but we can create perfectly wonderful moments, moments that put a smile on their faces and a twinkle in their eyes. Five minutes later, they will not remember what we did or said, but the feeling that we left them with will linger. The new edition of Creating Moments of Joy is filled with more practical advice sprinkled with hope, encouragement, new stories, and generous helpings of humor. In this volume, Brackey reveals that our greatest teacher is having cared for and loved someone with Alzheimer's and that often what we have most to learn about is ourselves.

It's Not That Simple: Helping Families Navigate the Alzheimer's Journey

It's Not That Simple: Helping Families Navigate the Alzheimer's Journey
Author: Pam Ostrowski
Publisher: Alzheimer's Family Consulting
Total Pages: 322
Release: 2021-10-12
Genre: Family & Relationships
ISBN: 9781735709611

This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.

When Someone You Know Is Living in a Dementia Care Community

When Someone You Know Is Living in a Dementia Care Community
Author: Rachael Wonderlin
Publisher: Johns Hopkins University Press
Total Pages: 220
Release: 2016-11-01
Genre: Health & Fitness
ISBN: 1421420651

A guide to help family and friends navigate the emotional and practical challenges they face when someone they love is living in community care. Life changes dramatically for the entire family when the decision is made to move a person who has dementia from home to community care. Rachael Wonderlin, a gerontologist, dementia care expert, and popular dementia care blogger, helps caregivers cope with the difficult behaviors, emotions, and anxieties that both they and their loved one may experience. Writing from her own practice and drawing on the latest research in gerontology and dementia, Wonderlin explains the different kinds of dementia, details the wide range of care communities available for people who have dementia, and speaks empathetically to the worry and guilt many families feel. "Do not let anyone make you feel like you have taken the 'easy way out' by choosing a dementia care community," she writes. "You are still going to deal with a lot of challenging behaviors, concerns, and questions regarding your loved one's care." When Someone You Know Is Living in a Dementia Care Community is an accessible guide offering answers to such questions as: How do I choose a place for my loved one to live? What can I find out by visiting a candidate memory-care community twice? What do I do if my loved one asks about going home? How can I improve the quality of my visits? What is the best way to handle conflict between residents, or between the resident and staff? How can I cope with my loved one's sundowning? What do I do if my loved one starts a romantic relationship with another resident? An indispensable book for family members and friends of people with dementia, When Someone You Know is Living in a Dementia Care Community touches the heart while explaining how to make a difficult situation better.

The Alzheimer's Action Plan

The Alzheimer's Action Plan
Author: P. Murali Doraiswamy
Publisher: Macmillan
Total Pages: 500
Release: 2009-04-28
Genre: Family & Relationships
ISBN: 9780312538712

Leading experts from Duke University provide the cutting-edge information that every family affected by Alzheimer's needs--from the benefits of early detection to prolonging quality of life.

Unexpected Gifts

Unexpected Gifts
Author: Eve Soldinger
Publisher:
Total Pages: 204
Release: 2016-03-18
Genre:
ISBN: 9780692660638

"He didn't know his age, the year, or his surroundings, but he knew his life could still make a difference. On this path, he went forward with his heart. Every emotion was authentic. Each moment was new-but it was also full of love, anger, or fear, and he had to travel through it." In a matter of days, Eve Soldinger's life and family changed utterly: Her beloved father was diagnosed with dementia. The challenges are those every adult child faced with caring for an aging parent will recognize: How do I see to his needs? How do I protect him? How do I explain to others? But her insight and experience also bring a fresh, hopeful perspective. Discover with Eve and her family how they not only coped with practical challenges, but transformed heartbreaking years into a time of laughter, growth, and love-unexpected gifts that will enrich the lives of all families who walk this path.

My Mom Inez

My Mom Inez
Author: Bob Miller
Publisher: iUniverse
Total Pages: 212
Release: 2012-09-14
Genre: Biography & Autobiography
ISBN: 9781475946727

Alzheimers hijacked their plans, required their full attention, and forced them to change their daily habitstheir very livesin order to accommodate its merciless, unrelenting demands. In My Mom Inez, author Bob Miller shares the story of his familys life against the backdrop of Alzheimers disease. In this deeply personal and powerful account, Miller tells of his role as an only son who unexpectedly found himself in the position of having to care for his beloved mother, Inez, once it became clear she had been stricken with Alzheimers disease. In this memoir, he narrates his struggles to understand what was happening and how he then coped with the emotional, medical, social, and economic issues her condition brings to their lives. With the familys history interwoven, My Mom Inez demonstrates the strength of the human spirit as Miller remains dedicated to providing the same loving care for his mother that she delivered to him throughout his life.