The Double Edged Helix
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Author | : Joseph S. Alper |
Publisher | : Johns Hopkins University Press+ORM |
Total Pages | : 440 |
Release | : 2003-05-06 |
Genre | : Medical |
ISBN | : 080187758X |
This bioethics anthology exploring the questions and controversies surrounding the innovations of 21st century genetics. When the Human Genome Project completed its work in the early 2000s, it was hailed as a watershed moment in the history of medicine. But not everyone felt the same optimism about where the breakthrough might lead. The Double-Edged Helix explores the impact of recent genetic discoveries on society as a whole as well as individual populations and communities. This volume outlines potential positive and negative effects of genetic research on minorities, individuals with disabilities, and those of diverse sexual orientations. Presenting a wide array of perspectives, contributors address the medical and ethical implications of newly available technologies, from prenatal genetic screenings to the so-called “gay gene” debates. They emphasize the need to ensure that genetics research does not lead to discrimination against people on the basis of their DNA. A Choice Magazine Outstanding Academic Title
Author | : Hannah Landecker |
Publisher | : Harvard University Press |
Total Pages | : 289 |
Release | : 2010-03-30 |
Genre | : Science |
ISBN | : 0674039904 |
How did cells make the journey, one we take so much for granted, from their origin in living bodies to something that can be grown and manipulated on artificial media in the laboratory, a substantial biomass living outside a human body, plant, or animal? This is the question at the heart of Hannah Landecker's book. She shows how cell culture changed the way we think about such central questions of the human condition as individuality, hybridity, and even immortality and asks what it means that we can remove cells from the spatial and temporal constraints of the body and "harness them to human intention." Rather than focus on single discrete biotechnologies and their stories--embryonic stem cells, transgenic animals--Landecker documents and explores the wider genre of technique behind artificial forms of cellular life. She traces the lab culture common to all those stories, asking where it came from and what it means to our understanding of life, technology, and the increasingly blurry boundary between them. The technical culture of cells has transformed the meaning of the term "biological," as life becomes disembodied, distributed widely in space and time. Once we have a more specific grasp on how altering biology changes what it is to be biological, Landecker argues, we may be more prepared to answer the social questions that biotechnology is raising.
Author | : Rebecca Skloot |
Publisher | : Crown |
Total Pages | : 386 |
Release | : 2010-02-02 |
Genre | : Science |
ISBN | : 0307589382 |
#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.
Author | : Mark P. Aulisio |
Publisher | : JHU Press |
Total Pages | : 248 |
Release | : 2003-05-08 |
Genre | : Medical |
ISBN | : 9780801871658 |
In the clinical setting, questions of medical ethics raise a host of perplexing problems, often complicated by conflicting perspectives and the need to make immediate decisions. In this volume, bioethicists and physicians provide a nuanced, in-depth approach to the difficult issues involved in bioethics consultation. Addressing the needs of researchers, clinicians, and other health professionals on the front lines of bioethics practice, the contributors focus primarily on practical concerns—whether ethics consultation is best done by individuals, teams, or committees; how an ethics consult service should be structured; the need for institutional support; and techniques and programs for educating and training staff—without neglecting more theoretical considerations, such as the importance of character or the viability of organizational ethics.
Author | : Muin J. Khoury |
Publisher | : Oxford University Press, USA |
Total Pages | : 661 |
Release | : 2000 |
Genre | : Language Arts & Disciplines |
ISBN | : 0195128303 |
The first broad survey of these two fields, this book deleniates a framework for integrating advances in human genetics into public health practice.
Author | : Christian Lenk |
Publisher | : Routledge |
Total Pages | : 307 |
Release | : 2016-05-13 |
Genre | : Law |
ISBN | : 1317141377 |
Divided into three parts, this edited volume gives an overview of current topics in law and ethics in relation to intellectual property. It addresses practical issues encountered in everyday situations in politics, research and innovation, as well as some of the underlying theoretical concepts. In addition, it provides an insight into the process of international policy-making, showing the current problems in the area of intellectual property in science and research. It also highlights changes in the fundamental understanding of common and private property and the possible implications and challenges for society and politics.
Author | : Elyse Purcell |
Publisher | : Rowman & Littlefield |
Total Pages | : 197 |
Release | : 2021-10-19 |
Genre | : Philosophy |
ISBN | : 1793624127 |
What do we owe our future children? How do advances in biomedical science bear on these obligations? How do capitalist incentives distort their execution? Advances in biotechnologies for human enhancement and designer babies appear to offer us new hope to control the fragility of human living. Some philosophers have argued that we have a moral imperative to use them, especially to eliminate disabilities. Elyse Purcell offers an opposing view, one guided by existential insights and Marxist reflections. Engineering Perfection: Solidarity, Disability, and Well-being explores the effect global capitalism may have on the selection of traits for our future children and how the commercialization of these technologies may lead to the elimination of bodily diversity. Although philosophers have addressed the possible widening between the haves and have-nots, this book considers the role oppression and exploitation may play in enhancing bodies for profit. As a challenge to the global economy of debility, Purcell proposes the Solidarity view, which embraces human vulnerability and embodied difference. By reflecting on facets of the human condition, the Solidarity view challenges us to reject our conception of the good life as human perfection, and instead reconceive of the good as one’s self-realization through the interdependent mutual recognition and co-belonging with others.
Author | : Nicolas Sireau |
Publisher | : Routledge |
Total Pages | : 237 |
Release | : 2017-09-08 |
Genre | : Business & Economics |
ISBN | : 135127838X |
There are 7,000 rare diseases affecting 6%–8% of the global population. That's 3.5 million people in the UK alone. Yet only 200 rare diseases have approved treatments. In recent years, there has been a surge of interest from business and social entrepreneurs in the field of health – including looking at ways to treat rare disease patients better and faster. This book presents some of the latest developments in the world of rare disease entrepreneurship from a global group of experts. It examines the topic from the business angle, considering the drug development process and providing case studies of successful orphan drug enterprises. It also looks at rare diseases from the perspective of the patient, analysing the growing rare disease patient movement, a successful patient group that uses social enterprise techniques, and chapters on key requirements for helping patients with rare diseases through registries and centres of excellence. The book will be an essential toolkit for social and business entrepreneurs who are interested in the world of rare/orphan diseases. It has the rigour of an academic publication, along with the clarity of a lay publication. An original and timely book, Rare Diseases will help to add knowledge and awareness to a vastly under-published subject.
Author | : Peter Wehling |
Publisher | : Routledge |
Total Pages | : 309 |
Release | : 2014-11-27 |
Genre | : Social Science |
ISBN | : 1317584473 |
Bringing together an international selection of leading scholars and representatives from patients’ organizations, this comprehensive collection explores the interaction between civil society groups and biomedical science, technology development, and research politics. This volume is an important reference for academics and researchers with an interest in the sociology of health and illness, science and technology studies, the sociology of knowledge or healthcare management and research, as well as medical researchers and those involved with health-related civil society organizations.
Author | : Sandy B. Primrose |
Publisher | : John Wiley & Sons |
Total Pages | : 232 |
Release | : 2008-04-15 |
Genre | : Science |
ISBN | : 0470751274 |
Written by the successful author team of Sandy Primrose and Richard Twyman, Genomics: Applications in Human Biology is a topical book showing how the new science of genomics is adding impetus to the advances in human health provided by biotechnology. Written to provide the necessary overview of the subject, covering technological developments, applications and (where necessary) the ethical implications. Divided into three sections, the first section introduces the role of biotechnology and genomics in medicine and sets out some of the technological advances that have been the basis of recent medical breakthroughs. The second section takes a closer look at how biotechnology and genomics are influencing the prevention and treatment of different categories of disease. Finally the contribution of biotechnology and genomics to the development of different types of therapy is described, including conventional drugs, recombinant proteins and gene/cell therapies. References to appropriate sections in other two popular books, authored by Sandy Primrose and Richard Twyman, are included - Principles of Gene Manipulation and Principles of Gene Analysis and Genomics. Features several categories of boxed text, including history boxes (describing the origins and development of particular technologies or treatments), molecular boxes (featuring the molecular basis of diseases or treatments in more detail) and ethic boxes (which discusses the ethical implications of technology development and new therapies).