The Art Of Conversation Through Serious Illnesslessons For Caregivers
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Author | : Richard McQuellon |
Publisher | : Oxford University Press, USA |
Total Pages | : 160 |
Release | : 2010-04-29 |
Genre | : Medical |
ISBN | : 9780195389227 |
Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time?This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited.In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.
Author | : Richard McQuellon |
Publisher | : Oxford University Press |
Total Pages | : 162 |
Release | : 2010-04-29 |
Genre | : Medical |
ISBN | : 0199752869 |
Every day, thousands of people receive a diagnosis of serious, life-threatening illness, and their families and friends suddenly become caregivers. Despite the best of intentions it is not always easy to communicate well under these circumstances, or find deep empathy for something one has never before experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? This book is about how to be an encouraging caregiver and friend under the most difficult circumstances, when the possibility of death is all too real The authors believe that open dialogue must not be avoided until the last minute when opportunities will be limited, but that caregivers and loved ones can embrace this time, mortal time, honestly as a way to sensitively and compassionately engage with those for whom a central fact of life is realized--that all of our lives are time-limited. In The Art of Conversation Through Serious Illness, the authors consider how to best listen to and speak with one facing life-threatening illness, with lessons on being a primary conversation partner, becoming properly empathic and receiving empathy, maintaining everyday conversation, using platitudes appropriately, understanding healthy denial, and talking about dying. Offering bedside guidance usually only available to professionals and peppered with insightful anecdotes from the authors' own experiences, this gentle, succinct book is appropriate for anyone going through this uniquely difficult yet universal life experience.
Author | : Richard P. McQuellon |
Publisher | : Oxford University Press |
Total Pages | : 161 |
Release | : 2021 |
Genre | : Medical |
ISBN | : 0197500293 |
"We use "mortal time" in our work to mean the experience of human beings confronting the prospect of death. This confrontation can stimulate intense feelings, a flurry of thoughts, and erratic or unusual behavior. In the broadest sense, mortal time is entered whenever death comes near, and that can happen either directly or vicariously. Hearing the words, "you have cancer," and signing a medical consent form where death is a possible medical "complication," are direct experiences of mortal time. Learning of a loved one's cancer diagnosis, losing a family member in an automobile accident, or reading about a missing child are vicarious experiences of mortal time. The power of tragedy in the theatre can brings us into the experience of mortality. King Lear's madness in the face of betrayal propels him toward an untimely death. The focus in this book is on the particular and powerful experience of entering mortal time when someone receives a diagnosis of cancer, a life-threatening illness. As we noted in our introduction to this second edition, the experience of mortal time in cancer medicine has changed with new treatments. A cancer diagnosis could mean an illness where rapid progression toward death is looming, or where there is only the distant possibility of death. Now there is a third option: the prospect of longer survival with metastatic disease due to the promise of additional therapies, facilitated by next generation genome sequencing. This means, a lengthier period of mortal time and uncertainty for many cancer patients. MORTAL TIME: HOW LONG DOES IT LAST? There are, of course, many instances in which people far exceed their statistically predicted life span. This holds true whether it be the prediction of a physician in the midst of treating an illness or the projected life span of an insurance life-expectancy table. In Part II we give an example of how misleading statistics can be when we discuss the idea of false hope. When mortal time looms with the diagnosis of cancer, it may stretch from days to years, with patients encountering both helpful treatments that lead to periods of remission and recurrences of disease requiring additional treatment. Some patients may never experience a time when it is apparent that they are dying until the last days. The interval between living and dying that we are concerned with here is not primarily chronological time, measured in days, weeks, and months. The hallmark of mortal time is the person's unique biological, psychological, social, and spiritual experience of the prospect and meaning of death, a prospect that confronts their caregivers as well. Mortal time is "kairos" time, the ancient Greek word meaning the time of decisions. When someone enters mortal time directly, their caregivers enter the same time zone vicariously. What they do together in mortal time, especially how they speak and listen to each other, affects the quality and meaning of life for all involved, in the moment and beyond"--
Author | : Karen Speerstra |
Publisher | : Augsburg Fortress Publishers |
Total Pages | : 240 |
Release | : 2022-02 |
Genre | : Family & Relationships |
ISBN | : 1506478875 |
The Divine Art of Dying aims to empower people who are dying to live as fully as they can until life's end. The book includes reflections from Karen Speerstra's hospice journal and essays written jointly by Speeratra and Herbert Anderson on learning to wait, letting go, giving gifts, and telling stories. Each chapter has suggestions for caregivers.
Author | : Lawrence G. Calhoun |
Publisher | : Routledge |
Total Pages | : 186 |
Release | : 2013 |
Genre | : Medical |
ISBN | : 0415898692 |
From the authors who pioneered the concept of posttraumatic growth comes Posttraumatic Growth in Clinical Practice, a book that brings the study of growth after trauma into the twenty-first century. Clinicians will find a framework that's easy to use and flexible enough to be tailored to the needs of particular clients and specific therapeutic approaches. And, because it utilizes a model of relating described as "expert companionship," clinicians learn how to become most empathically effective in helping a variety of trauma survivors. Clinicians will come away from this book having learned how to assess posttraumatic growth, how to address it in treatment, and they'll also have a basic grasp of the ways the changes they're promoting will be received in various cultural contexts. Case examples show how utilizing a process developed from an empirically-based model of posttraumatic growth can promote important personal changes in the aftermath of traumatic events.
Author | : Richard P. McQuellon |
Publisher | : Oxford University Press |
Total Pages | : 249 |
Release | : 2021 |
Genre | : Medical |
ISBN | : 0190091010 |
"Main themes: Radical changes in appearance and life interrupts dying on schedule. This is the first meeting we recorded and the last in the Comprehensive Cancer Center clinic. The primary theme is readiness for the next step toward death and frustration at its delay. Nell's physical status is declining rapidly; it is hard for her to get in and out of a car and to walk. Her body is visibly deteriorating, plodding toward death. This is the first time she speaks in depth about the dramatic, frightening changes she sees in her body"--
Author | : Katy Butler |
Publisher | : Scribner |
Total Pages | : 288 |
Release | : 2020-02-11 |
Genre | : Self-Help |
ISBN | : 1501135473 |
This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).
Author | : Richard P. McQuellon |
Publisher | : Oxford University Press |
Total Pages | : 161 |
Release | : 2021-09-23 |
Genre | : Medical |
ISBN | : 0197500315 |
Every day, thousands of people are diagnosed with cancer or other life-threatening illnesses. Despite the best of intentions, it is not always easy to communicate well under these circumstances or find deep empathy for something one has never experienced. When is it best to speak, and when to be silent? How can someone provide real comfort, and how can relationships with loved ones facing serious illness be enhanced in this most difficult time? Written by a psychosocial oncologist and psychologist-theologian, The Art of Conversation in Cancer Care: Lessons for Caregivers offers practical suggestions for health professionals, families, and friends about talking to one who has cancer. This revised and updated second edition is organized around the themes of mortal time and healing conversation with cancer patients and their caregivers. Mortal time is not so much a specific period, but rather, the psychological experience encountering mortality that often accompanies the diagnosis of cancer. The first section of the book articulates the many ways people experience mortal time, including a range of adaptive and less adaptive methods. Next, the basic elements of healing conversation are delineated, with an emphasis on the hope that can spring from talking with a trusted companion. Empathy, listening carefully, and responding thoughtfully and compassionately are discussed. In the final section, the authors offer guidance for caregivers. This section includes material on the risks and costs of companionship as well as personal virtues that help a person navigate the demands of mortal time with their loved one. The authors discuss resilience and the consequences of absorbing suffering including empathy shift where the cancer caregiver becomes less empathic with minor illnesses in others. They conclude with the power of healing conversation in mortal time as a source of hope. Throughout, numerous patient vignettes illustrate the art of conversation in cancer medicine.
Author | : Edward M. Smink |
Publisher | : Wise Media Group |
Total Pages | : 228 |
Release | : 2021-10-28 |
Genre | : Medical |
ISBN | : 9781629672243 |
2022 Revised Edition Who are the caregivers? We all are, for at the heart of being human is the capacity to care, to reach out to others and explore the relationships we build. The Soul of Caregiving is about us, and how we, as caregivers, serve, even sacrifice, for those in need. I invite you to explore with me how we can partake in a kind of sacred journey exploring our experiences as caregivers. Who will be your guide on this journey? Unlike other pilgrims who have a guide assigned to them, you will soon discover it is your own Soul guiding you. We may be professionally skilled to meet the needs of others, but we must also learn to stop and rest. It is not a waste of time, but rather, a necessity. We need time to ponder, reflect, and grow from our experiences. Not an easy endeavor amid a whirlwind of activity. We, as caregivers, experience vulnerability, helplessness, fears, and pain over the traumatic events we experience because we care. We care about those whom we are called to serve. Compassion fatigue arises because we care. Overview of the Chapters Chapter 1 begins by outlying the tension most caregivers experience: the tension their own needs and the needs of those they care for. I call this tension the Dance of Caregiving. Chapter 2 discusses the importance of discovering interior strengths and values where one discovers Soul. Chapter 3 emphasizes caregivers do not care in a vacuum, as there are broad cultural boundaries and expectations which affect them and shape their behaviors. Chapter 4 describes The Archetype of Caregiving, both its strengths and shadow sides. This archetype also relates to several other leadership archetypes, which are also discussed. Chapter 5 discusses hospitality. This chapter positions the caregiver as the host who experiences three different dimensions of hospitality: to host the stranger, to listen to the stories of the guest, and to reflect on their reactions and experiences. Chapter 6 address the frailty of humankind and the notion that we are wounded healers. Chapter 7 addresses the art of reflection as a fundamental skill for caregivers. Chapter 8 argues that the essential actions of a caregiver are spiritual. Chapter 9 explores how the ordinary becomes spiritual as inner strengths and values give birth to meaning, insight, and transformation. Chapter 10 explores compassion fatigue and its two sisters, secondary traumatic stress disorder and burnout. In this chapter, we learn how to recover from compassion fatigue and burnout by building compassion resilience. At the end of each chapter, the reader is invited to ponder and reflect. Your insights are the gold hidden beneath the sands of confusion. Mining these insights will lead to a greater understanding of your strengths and values. The questions at the end of each chapter help facilitate this process.
Author | : Eric Pfeiffer |
Publisher | : Lulu.com |
Total Pages | : 137 |
Release | : 2011-06-01 |
Genre | : Health & Fitness |
ISBN | : 1257761129 |
This is an A-Z guide for caregivers of Alzheimer's patients. It is easy to read, easy to follow. It has been proven a life line to individuals drowning in the caregiver experience