Surviving Dementia
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| Author | : Dayna Steele |
| Publisher | : Createspace Independent Publishing Platform |
| Total Pages | : 0 |
| Release | : 2016-02-05 |
| Genre | : Alzheimer's disease |
| ISBN | : 9781519370846 |
With unfiltered observations and sometimes dark humor, author Dayna Steele chronicled her mother's journey with Alzheimer's on Facebook. This collection of Alzheimer's updates posted on the social media network includes biting humor and raw emotion as Dayna carries you from the diagnosis to the inevitable end. Also included are sections from a neurologist, Long Term Care insurance specialist, other caregivers, documents expert, elder care attorney, and an assisted living advisor. This is a journey way too many of us are going to experience in one way or another. If you have to experience Alzheimer's and chances are you will - do it like Dayna with love, wit, and wine.I would normally never read a book about Alzheimer's or click LIKE on a Facebook post about someone's declining mother. Dayna Steele sneaked past my defenses the same way that she dealt with her own misery - with humor - by making me laugh, she managed to break my heart. --Lisa Gray, Houston Chronicle Gray MattersThese observations are so gripping and so graphic. --a Facebook commentThis book is going to be of tremendous help to so many. --Dr. Roy Goldberg, Geriatrics, Albert Einstein College of Medicine
| Author | : PAULA SPENCER. SCOTT |
| Publisher | : |
| Total Pages | : 402 |
| Release | : 2018-01-11 |
| Genre | : |
| ISBN | : 9780999555705 |
The book recommended by dementia experts and family caregivers as the most complete, practical guide to Alzheimer's and other dementias-now updated and expanded through end-of-life care. This new edition of Surviving Alzheimer's offers the best, most current thinking on how to help a loved one with memory loss and related symptoms without sacrificing YOU. You'll learn: What's behind odd, frustrating behaviors like repetition, wandering, personality changes, bathing resistance, and aggression-and what you can do How to defuse resentment, guilt, and family friction What to say for better communication and more cooperation Special advice for spouses, out-of-town caregivers, and other specific situations 100s of confidence-raising solutions from top doctors, social workers, dementia specialists, and family caregivers All in a fast, scannable format perfect for busy or overwhelmed dementia helpers.
| Author | : Martin J Schreiber |
| Publisher | : Harper Horizon |
| Total Pages | : 192 |
| Release | : 2022-06-13 |
| Genre | : Biography & Autobiography |
| ISBN | : 0785291709 |
In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. One part love story, one part practical advice, this compelling book includes several unique elements: Excerpts from Elaine’s journal, recounting her thoughts, concerns, and frustrations as the disease progresses A recurring feature called “What I Wish I’d Known,” which provides helpful takeaways for caregivers based on Marty’s observations about what he wishes he’d known sooner and done differently A Q&A between Marty and neuropsychologist Dr. Michelle Braun, to equip caregivers with the right questions to ask and empower them to advocate for their loved ones and their own needs Beyond sincere, practical advice, My Two Elaines gives the reader permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness. And the book speaks to anyone touched by this disease--spouse, child, friend, or family member.
| Author | : National Academies of Sciences Engineering and Medicine |
| Publisher | : |
| Total Pages | : |
| Release | : 2022-04-26 |
| Genre | : |
| ISBN | : 9780309495035 |
As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
| Author | : Carol W. Berman |
| Publisher | : Springer |
| Total Pages | : 88 |
| Release | : 2016-08-05 |
| Genre | : Medical |
| ISBN | : 3319351028 |
This text approaches the care of dementia patients via the experience of a psychiatrist as well as a caregiver, offering a holistic approach to care that is unlike any other book in the market. Laced with her experiences from both her professional and personal life, Huffington Post columnist and psychiatrist Dr. Carol W. Berman aims to educate mental health professionals on topics that they continue to grapple with, including diagnosis and treatment, behavioral challenges among patients, working with non-professional and professional caregivers, hospice care, and many other difficulties professionals face when caring for dementia patients. With the same easy-to-read yet informative tone Dr. Carol W. Berman is known for among her various clinical and lay resources, professionals find that this tool is an excellent resource for structuring care plans with the non-professional caregiver struggling with care management. Surviving Dementia: A Clinical and Personal Perspective is an outstanding resource for psychiatrists, psychologists, nurses, social workers, and other physicians interested in models of dementia care.
| Author | : Angela G. Gentile |
| Publisher | : Createspace Independent Publishing Platform |
| Total Pages | : 0 |
| Release | : 2015-03-17 |
| Genre | : Caregivers |
| ISBN | : 9781505565577 |
A dementia diagnosis can frighten and devastate all who are affected. When a husband is diagnosed with dementia, his wife is at risk of becoming the "hidden patient." Sometimes the responsibilities of caring for a husband with dementia causes stress leading to caregiver burnout. Caregiving wives may feel trapped, obligated or compelled to go it alone at the expense of their own well-being. Others find many rewards in caring and give of themselves to a fault - "until death do us part." Asking for help can be difficult for caregivers, for many reasons. Gaining knowledge about dementia and its emotional impacts can provide comfort and improve confidence. Practical tips and solutions can offer hope in challenging situations. This survival guide and workbook is a vital companion for caregivers. You will refer to "Caring for a Husband with Dementia" often on your caregiving journey.
| Author | : Nataly Rubinstein |
| Publisher | : Two Harbors Press |
| Total Pages | : 398 |
| Release | : 2011-06-15 |
| Genre | : Health & Fitness |
| ISBN | : 9781936198139 |
A practical, encouraging guide to caring for someone with dementia As a caregiver, you face a multitude of challenging situations and plenty of conflicting information concerning diagnoses, treatments, coping with everyday activities, and dementia itself. This easy-to-read book will give you the necessary resources to make practical and informed decisions regarding the best possible care for you and your loved one. Written by a licensed clinical social worker with twenty-five years of experience working with families coping with dementia, Alzheimer's Disease and Other Dementias: The Caregiver's Complete Survival Guide offers useful and vital information on: Working effectively with health care providers to get the best treatment for your loved one Handling difficult behaviors that change over time Making the home safer using simple, low-cost tools and techniques Evaluating and choosing respite care and long-term care options, including adult day and home care services Finding legal and financial assistance Improving the quality of life for you and your family Drawing from her own clinical and personal experience, Nataly Rubinstein guides you with humor and compassion through your caregiving journey. From tips on preparing for the first visit to the neurologist to advice on coping with changes in daily life, this comprehensive book provides detailed and accessible information for all those caring for someone with memory loss. Book jacket.
| Author | : Lynn Casteel Harper |
| Publisher | : Catapult |
| Total Pages | : 126 |
| Release | : 2020-04-14 |
| Genre | : Social Science |
| ISBN | : 1948226294 |
A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.
| Author | : Kevin Quaid |
| Publisher | : |
| Total Pages | : 208 |
| Release | : 2018-06-19 |
| Genre | : |
| ISBN | : 9781720495758 |
Kevin Quaid author of this book was diagnosed with Lewy Body Dementia when he was 53 years old having been diagnosed with Parkinson's Disease two years earlier, however he started to show symptoms of Parkinson's three years before that. This story takes a look at his life, the highs and lows and sometimes his struggle with life itself.This book then leads into day to day living with this horrible disease Lewy Body Dementia, not only from Kevin's point of view as a patient but also how it affects his family and how his wife copes with being put in the role of a carer.There are some wonderful practical and helpful tips on how to make life a little easier for everyone, and some hints on how to have some difficult discussions with the sufferer before their mind begins to slip.This book is real and raw and its' aim is to help those who find themselves in the same terrible position as Kevin and his family.
| Author | : Julia Botsford |
| Publisher | : Jessica Kingsley Publishers |
| Total Pages | : 330 |
| Release | : 2015-04-21 |
| Genre | : Social Science |
| ISBN | : 0857008811 |
With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.
