Social Work Practice in Pediatric Palliative and End-of-Life Care

Social Work Practice in Pediatric Palliative and End-of-Life Care
Author: Barbara Jones
Publisher: Routledge
Total Pages: 120
Release: 2016-01-22
Genre: Medical
ISBN: 1317676041

As an essential and emerging practice, Pediatric palliative care seeks to prevent and relieve suffering for children with life-threatening conditions. Palliative care teams are composed of providers of various disciplines, including social workers, who collaborate to address the medical, social-emotional, and spiritual needs of the child, and their families. Social workers are especially accustomed to interdisciplinary care and may counsel, provide resources, facilitate communication, and promote person- and family-centered practices that are the basis of effective pediatric palliative care. This book presents practice strategies, experiential knowledge, and research related to practicing in─collaborative teams, ICU settings, and hospice. It also presents research that is informed by the perceptions and perspectives of bereaved parents, parents who have suffered a stillbirth, and parent caregivers of children with life-limiting illness. This book highlights the unique role social workers play, within care teams and in relationship with children who have life-limiting illness, and their families. This book was originally published as a special issue of the Journal of Social Work in End-of-Life & Palliative Care.

Pediatric Palliative Care

Pediatric Palliative Care
Author: Betty Ferrell
Publisher:
Total Pages: 161
Release: 2016
Genre: Family & Relationships
ISBN: 0190244186

Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.

Oxford Textbook of Palliative Social Work

Oxford Textbook of Palliative Social Work
Author: Terry Altilio MSW, ACSW, LCSW
Publisher: Oxford University Press
Total Pages: 847
Release: 2011-03-23
Genre: Medical
ISBN: 0199838275

The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique to this scholarly text is its emphasis on the collaborative nature inherent in palliative care. This definitive resource is edited by two leading palliative social work pioneers who bring together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care.

Pediatric Palliative Care

Pediatric Palliative Care
Author: Lindsay B. Ragsdale
Publisher: Oxford University Press
Total Pages: 230
Release: 2020-02-03
Genre: Medical
ISBN: 0190051876

The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"

Palliative Care

Palliative Care
Author: Bridget Sumser
Publisher: Oxford University Press
Total Pages: 288
Release: 2019-01-02
Genre: Social Science
ISBN: 0190669616

Accessible and instructive,ÂPalliative CareÂguides and inspires health social workers to incorporate palliative care principles into their current clinical practice. Through the lenses of environmental theory and intersectionality, rich case narratives highlight opportunities for social workers to enhance their work, advancing whole-person care in the face of serious illness. Chapters include questions to concretize ideas and demonstrate real-world application, while case narratives cover a range of settings, diagnoses, and populations. This book is a useful tool for educators, learners, and practicing social workers working with individuals and families navigating complex health care systems.

The Oxford Textbook of Palliative Social Work

The Oxford Textbook of Palliative Social Work
Author: Terry Altilio
Publisher: Oxford University Press
Total Pages: 1009
Release: 2022
Genre: Medical
ISBN: 0197537855

"It is so important to advocate for things that may not always seem possible. Getting to work with patients/families at the end of their life is the ultimate honor." - Lauren G Markham, MSW, LCSW, APHSW-C "In this work, one witnesses both depths of human suffering and heights of human transcendence that can inspire both awe and fear. At those times, I have found that surrendering my need to be "an expert" and instead, allow myself to simply be a "human" is the wisest action." - Kerry Irish, LCSW, OSW-C, FAOSW"--

When Children Die

When Children Die
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 16
Release: 2003-10-30
Genre: Medical
ISBN: 0309182662

This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.

Social Work Practice in Pediatric Palliative and End-of-Life Care

Social Work Practice in Pediatric Palliative and End-of-Life Care
Author: Barbara Jones
Publisher: Routledge
Total Pages: 149
Release: 2016-01-22
Genre: Medical
ISBN: 1317676033

As an essential and emerging practice, Pediatric palliative care seeks to prevent and relieve suffering for children with life-threatening conditions. Palliative care teams are composed of providers of various disciplines, including social workers, who collaborate to address the medical, social-emotional, and spiritual needs of the child, and their families. Social workers are especially accustomed to interdisciplinary care and may counsel, provide resources, facilitate communication, and promote person- and family-centered practices that are the basis of effective pediatric palliative care. This book presents practice strategies, experiential knowledge, and research related to practicing in─collaborative teams, ICU settings, and hospice. It also presents research that is informed by the perceptions and perspectives of bereaved parents, parents who have suffered a stillbirth, and parent caregivers of children with life-limiting illness. This book highlights the unique role social workers play, within care teams and in relationship with children who have life-limiting illness, and their families. This book was originally published as a special issue of the Journal of Social Work in End-of-Life & Palliative Care.

Dying in America

Dying in America
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 470
Release: 2015-03-19
Genre: Medical
ISBN: 0309303133

For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Improving Palliative Care for Cancer

Improving Palliative Care for Cancer
Author: National Research Council
Publisher: National Academies Press
Total Pages: 344
Release: 2001-10-19
Genre: Medical
ISBN: 0309074029

In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.