Putting The Public In Public Involvement
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| Author | : Jurgen Grotz |
| Publisher | : Palgrave Macmillan |
| Total Pages | : 163 |
| Release | : 2021-11-19 |
| Genre | : Social Science |
| ISBN | : 9783030552916 |
This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.
| Author | : OECD |
| Publisher | : OECD Publishing |
| Total Pages | : 130 |
| Release | : 2005-08-16 |
| Genre | : |
| ISBN | : 9264008969 |
This book examines the key issues for consideration when evaluating information, consultation and public participation.
| Author | : Ellen Nolte |
| Publisher | : Cambridge University Press |
| Total Pages | : 421 |
| Release | : 2020-08-06 |
| Genre | : Political Science |
| ISBN | : 1108803725 |
The idea of person-centred health systems is widely advocated in political and policy declarations to better address health system challenges. A person-centred approach is advocated on political, ethical and instrumental grounds and believed to benefit service users, health professionals and the health system more broadly. However, there is continuing debate about the strategies that are available and effective to promote and implement 'person-centred' approaches. This book brings together the world's leading experts in the field to present the evidence base and analyse current challenges and issues. It examines 'person-centredness' from the different roles people take in health systems, as individual service users, care managers, taxpayers or active citizens. The evidence presented will not only provide invaluable policy advice to practitioners and policymakers working on the design and implementation of person-centred health systems but will also be an excellent resource for academics and graduate students researching health systems in Europe. This title is available as Open Access on Cambridge Core.
| Author | : James L. Creighton |
| Publisher | : John Wiley & Sons |
| Total Pages | : 285 |
| Release | : 2005-03-11 |
| Genre | : Business & Economics |
| ISBN | : 0787979635 |
Internationally renowned facilitator and public participation consultant James L. Creighton offers a practical guide to designing and facilitating public participation of the public in environmental and public policy decision making. Written for government officials, public and community leaders, and professional facilitators, The Public Participation Handbook is a toolkit for designing a participation process, selecting techniques to encourage participation, facilitating successful public meetings, working with the media, and evaluating the program. The book is also filled with practical advice, checklists, worksheets, and illustrative examples.
| Author | : Tina Nabatchi |
| Publisher | : John Wiley & Sons |
| Total Pages | : 370 |
| Release | : 2015-04-30 |
| Genre | : Political Science |
| ISBN | : 1118688538 |
A comprehensive text on the theory and practice of public participation Written by two leaders in the field, Public Participation for 21st Century Democracy explores the theory and practice of public participation in decision-making and problem-solving. It examines how public participation developed over time to include myriad thick, thin, and conventional opportunities, occurring in both face-to-face meetings and online settings. The book explores the use of participation in various arenas, including education, health, land use, and state and federal government. It offers a practical framework for thinking about how to engage citizens effectively, and clear explanations of participation scenarios, tactics, and designs. Finally, the book provides a sensible approach for reshaping our participation infrastructure to meet the needs of public officials and citizens. The book is filled with illustrative examples of innovative participatory activities, and numerous sources for more information. This important text puts the spotlight on the need for long-term, cross-sector, participation planning, and provides guidance for leaders, citizens, activists, and others who are determined to improve the ways that participation and democracy function. Public Participation for 21st Century Democracy: Helps students and practitioners understand the history, theory, and practice of public participation Contains a wealth of case studies that explore the application of public participation in different settings Covers vital issues such as education, health, land use, and state and federal government Has accompanying instructor resources, such as PowerPoint slides, discussion questions, sample assignments, case studies and research from www.participedia.net, and classroom activities.
| Author | : Ali Farazmand |
| Publisher | : Springer Nature |
| Total Pages | : 13623 |
| Release | : 2023-04-05 |
| Genre | : Law |
| ISBN | : 3030662527 |
This global encyclopedic work serves as a comprehensive collection of global scholarship regarding the vast fields of public administration, public policy, governance, and management. Written and edited by leading international scholars and practitioners, this exhaustive resource covers all areas of the above fields and their numerous subfields of study. In keeping with the multidisciplinary spirit of these fields and subfields, the entries make use of various theoretical, empirical, analytical, practical, and methodological bases of knowledge. Expanded and updated, the second edition includes over a thousand of new entries representing the most current research in public administration, public policy, governance, nonprofit and nongovernmental organizations, and management covering such important sub-areas as: 1. organization theory, behavior, change and development; 2. administrative theory and practice; 3. Bureaucracy; 4. public budgeting and financial management; 5. public economy and public management 6. public personnel administration and labor-management relations; 7. crisis and emergency management; 8. institutional theory and public administration; 9. law and regulations; 10. ethics and accountability; 11. public governance and private governance; 12. Nonprofit management and nongovernmental organizations; 13. Social, health, and environmental policy areas; 14. pandemic and crisis management; 15. administrative and governance reforms; 16. comparative public administration and governance; 17. globalization and international issues; 18. performance management; 19. geographical areas of the world with country-focused entries like Japan, China, Latin America, Europe, Asia, Africa, the Middle East, Russia and Eastern Europe, North America; and 20. a lot more. Relevant to professionals, experts, scholars, general readers, researchers, policy makers and manger, and students worldwide, this work will serve as the most viable global reference source for those looking for an introduction and advance knowledge to the field.
| Author | : Imogen Evans |
| Publisher | : Pinter & Martin Publishers |
| Total Pages | : 187 |
| Release | : 2011 |
| Genre | : Health & Fitness |
| ISBN | : 1905177488 |
This work provides a thought-provoking account of how medical treatments can be tested with unbiased or 'fair' trials and explains how patients can work with doctors to achieve this vital goal. It spans the gamut of therapy from mastectomy to thalidomide and explores a vast range of case studies.
| Author | : Institute of Medicine |
| Publisher | : National Academies Press |
| Total Pages | : 236 |
| Release | : 2015-04-20 |
| Genre | : Medical |
| ISBN | : 0309316324 |
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
| Author | : Agency for Healthcare Research and Quality/AHRQ |
| Publisher | : Government Printing Office |
| Total Pages | : 385 |
| Release | : 2014-04-01 |
| Genre | : Medical |
| ISBN | : 1587634333 |
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
| Author | : Marian Barnes |
| Publisher | : Policy Press |
| Total Pages | : 297 |
| Release | : 2012 |
| Genre | : Medical |
| ISBN | : 1847427502 |
User involvement is now official policy throughout the health and social care system. Does this mean that user involvement practices are unproblematic? Has it lost its radical edge as it has become an accepted part of service delivery, research and policy making? This important text offers a critical stocktake of the state of user involvement, comprising contributions from both user activists and leading academics. The contributors consider different contexts in which involvement is taking place, both in the groups involved and the activities they are engaged in, and includes different and sometimes conflicting perspectives on issues such as whether we should measure the impact of involvement. This valuable collection will be a crucial resource for students in health and social care and in social work, for researchers developing participative research practice, and for user activists seeking to learn how others have developed distinctive ways of challenging professional perspectives. Book jacket.
