Psychological Support By Cognitive Behavioral Therapy For X Linked Adrenoleukodystrophy
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| Author | : Edenilson Brandl |
| Publisher | : Edenilson Brandl |
| Total Pages | : 1479 |
| Release | : |
| Genre | : Psychology |
| ISBN | : |
The journey of understanding and managing X-Linked Adrenoleukodystrophy (ALD) is one marked by complexity, resilience, and a profound emotional toll on individuals and families alike. As a genetic disorder that impacts both the body and the mind, ALD presents not only physical challenges but also psychological burdens that require a thoughtful, compassionate approach. This book, Psychological Support by Cognitive Behavioral Therapy for X-Linked Adrenoleukodystrophy, was born out of a deep commitment to bridge the gap between genetic understanding and mental health support, providing patients, families, and mental health professionals with practical tools to navigate the emotional landscape of living with ALD. Our approach centers on the powerful benefits of Cognitive Behavioral Therapy (CBT), a proven therapeutic framework known for its versatility in addressing both emotional and behavioral aspects of chronic conditions. Through CBT, individuals can build resilience, develop healthy coping strategies, and find meaning even in the face of genetic challenges. This book integrates foundational knowledge about genetics and ALD with detailed CBT strategies, tailored specifically to the psychological needs that arise when living with this rare disorder. This work is intended as a supportive companion for those grappling with the realities of ALD, from patients and caregivers to healthcare providers. By beginning with essential background on ALD and genetic principles, we aim to equip readers with the knowledge needed to fully appreciate the psychological aspects of this condition. Subsequent sections explore the nuances of CBT, providing step-by-step guidance, actionable tools, and case-based examples to illustrate how CBT can be adapted to support individuals at every stage of their journey. The book also includes practical pain management strategies and a range of CBT techniques aimed at helping patients manage symptoms, navigate the healthcare system, and address the social and emotional challenges unique to ALD. To those facing the challenges of ALD, we hope this book provides not only therapeutic support but also a sense of empowerment. While genetic conditions may alter the path of one’s life, they do not define it. With the right support, patients and families can build resilience, nurture hope, and pursue a meaningful life. In these pages, may you find tools, insights, and encouragement for the journey ahead.
| Author | : Anita Thapar |
| Publisher | : John Wiley & Sons |
| Total Pages | : 1098 |
| Release | : 2015-06-04 |
| Genre | : Medical |
| ISBN | : 1118381939 |
Rutter's Child and Adolescent Psychiatry is the leading textbook in its field. Both interdisciplinary and international, it provides a coherent appraisal of the current state of the field to help researchers, trainees and practicing clinicians in their daily work. Integrating science and clinical practice, it is a comprehensive reference for all aspects of child and adolescent psychiatry. New to this full color edition are expanded coverage on classification, including the newly revised Diagnostic and Statistical Manual of Mental Disorders (DSM-5), and new chapters on systems neuroscience, relationship-based treatments, resilience, global psychiatry, and infant mental health. From an international team of expert editors and contributors, this sixth edition is essential reading for all professionals working and learning in the fields of child and adolescent mental health and developmental psychopathology as well as for clinicians working in primary care and pediatric settings. Michael Rutter has contributed a number of new chapters and a Foreword for this edition: "I greatly welcome this new edition as providing both a continuity with the past and a substantial new look." —Professor Sir Michael Rutter, extract from Foreword. Reviews of previous editions: "This book is by far the best textbook of Child & Adolescent Psychiatry written to date." —Dr Judith Rapoport, NIH "The editors and the authors are to be congratulated for providing us with such a high standard for a textbook on modern child psychiatry. I strongly recommend this book to every child psychiatrist who wants a reliable, up-to-date, comprehensive, informative and very useful textbook. To my mind this is the best book of its kind available today." —Journal of Child Psychology and Psychiatry
| Author | : |
| Publisher | : Elsevier |
| Total Pages | : 460 |
| Release | : 2019-11-12 |
| Genre | : Medical |
| ISBN | : 0444640134 |
Psychopharmacology of Neurologic Disease, Volume 165 in the Handbook of Clinical Neurology series, provides clinicians with an up-to-date, critical review of the best approaches to treatment of neurologic disease as discussed by experienced clinical investigators. The book is organized into sections on dementia, delirium, movement disorders, hereditary degenerative disease, epilepsy and psychogenic seizures, brain vascular disease, pseudobulbar affect, traumatic brain injury, neuro-oncology, multiple sclerosis and other demyelinating disorders, chronic fatigue syndrome/fibromyalgia, pain, headache, sleep disorders, autoimmune encephalitis/anti- NMDA encephalitis, functional sensory neurologic symptom disorders and neurodevelopmental disorders. Each of these diagnostic categories has a significant incidence of behavioral symptomatology that is secondary to the neurologic diagnosis that can serve to complicate other therapeutic interventions, alter the course of illness, and cause distress in patients and family caregivers. - Provides a systematic, evidence-based compendium of best practices in the treatment of behavioral symptomatology relating to neurologic conditions - Integrates state-of-the-art approaches in treating all behavioral symptomatology across all major neurologic disorders - Explores psychopharmacological intervention, non-pharmacological strategies, behavioral symptomatology, and therapeutic interventions
| Author | : Ruth Nass, MD |
| Publisher | : Oxford University Press |
| Total Pages | : |
| Release | : 2010-04-12 |
| Genre | : Medical |
| ISBN | : 0199711577 |
This book provides a detailed account of intellectual, other neuropsychological and behavioral manifestations of general pediatric diseases. The conditions discussed include the whole range of pediatric diseases - genetic syndromes, other congenital conditions, metabolic, endocrine, gastrointestinal, infectious, immunologic, toxic, trauma, and neoplastic, as well as sensory disabilities including deafness and blindness. Although the book is not intended to discuss cognitive and behavioral manifestations of conditions usually considered to be primary neurological disease, some of those, including cerebral palsy, muscular dystrophy, myotonic dystrophy and epilepsy, are included. Where possible, a "translational" approach is used, linking the behavioral and cognitive manifestations of these conditions, to the underlying structural, chemical or genetic abnormalities and their effect on the brain, and, in turn, on behavior and cognition. At the same time, included are significant psychosocial factors. Together, those factors have a major effect on patients' performance, including school performance, and on their families. This book is unique in its extensive coverage of the major pediatric conditions and of the detailed neurological, neuropsychological and behavioral aspects of each condition.
| Author | : Donna Hallas, PhD, PPCNP-BC, CPNP, PMHS, FAANP |
| Publisher | : Springer Publishing Company |
| Total Pages | : 518 |
| Release | : 2018-07-28 |
| Genre | : Medical |
| ISBN | : 0826116817 |
Delivers strategic, evidence-based measures for recognizing and treating abnormal behaviors in children in the content of primary care practice Written for practicing pediatric and family nurse practitioners, and PNP and FNP students, this pediatric primary care text expands on the crucial role of the healthcare provider to assess, identify, and intercept potential behavioral health problems. All parents want to see their child become a socially and emotionally healthy adult, but this cannot be the outcome for every family. When children miss their anticipated milestones, parents and the family dynamic is upset—parents question their parenting skills and their ability to raise a socially and emotionally healthy child. The content in this book is built on strategic, evidence-based measures to evaluate and treat behavioral health during each well-child visit across the pediatric life span and restore order to their patients and their families. Behavioral Pediatric Healthcare for Nurse Practitioners is organized by developmental stages: infancy, toddlers, preschool-age, school-age, and adolescence. Each of these stages contains common behavioral problems and details their assessment, screening, intervention, and treatment. Chapters also include measurable standards for behavioral health and special topics in pediatric behavioral health and chronic medical conditions as they impact development. Every section features a case study that fosters critical thinking and demonstrates exemplary practices. Key Features: Focuses on the intercept of development and the assessment, diagnosis, and treatment of behavioral problems Addresses early identification and treatment of disorders for best outcome Provides proven, case-based strategies for assessment, screening, intervention, and treatment Includes contributions from highly qualified PNPs and PMHSs Highlights cutting-edge research from pediatric primary care experts Presents strategies for working with parents Fosters critical thinking for making a correct diagnosis
| Author | : |
| Publisher | : |
| Total Pages | : 2068 |
| Release | : 2004 |
| Genre | : Medicine |
| ISBN | : |
Vols. for 1963- include as pt. 2 of the Jan. issue: Medical subject headings.
| Author | : Richard A. Firthel |
| Publisher | : Nova Publishers |
| Total Pages | : 212 |
| Release | : 2007 |
| Genre | : Medical |
| ISBN | : 9781600213472 |
Medical Genetics is the application of genetics to medicine. Medical genetics is broad and varied and encompasses many different individual fields, including clinical genetics, biochemical genetics, cytogenetics, molecular genetics, the genetics of common diseases (such as neural tube defects), and genetic counselling. Each of the individual fields within medical genetics is a hybrid. Clinical genetics is a hybrid of clinical medicine with genetics. Biochemical genetics is a hybrid of biochemistry, mainly the biochemistry of amino acids and proteins, with genetics. Molecular genetics is a hybrid of the biochemistry of DNA and RNA with genetics. Cytogenetics is a hybrid of cytology and genetics; it involves the study of chromosomes under the microscope. And genetic counselling is a hybrid of genetics with non-directional counselling. This book presents leading-edge research on medical genetics as well as on Down's syndrome.
| Author | : Patricia Howlin |
| Publisher | : Cambridge University Press |
| Total Pages | : 306 |
| Release | : 2002-07-25 |
| Genre | : Family & Relationships |
| ISBN | : 9780521797214 |
Succinct, up-to-date research summaries and practical guidelines for intervention in and management of a variety of developmental and genetic disorders.
| Author | : |
| Publisher | : |
| Total Pages | : 706 |
| Release | : 2004 |
| Genre | : Psychiatry |
| ISBN | : |
"A concise and accessible book for course review and board certification and recertification. Features a bulleted approach to all techniques for diagnosis and treatment and board-style questions with detailed answers."--Publisher description (LoC)
| Author | : Jonathan Reed |
| Publisher | : John Wiley & Sons |
| Total Pages | : 508 |
| Release | : 2011-08-26 |
| Genre | : Psychology |
| ISBN | : 1444357182 |
Based on the most up-to-date research, Child Neuropsychology is a thorough and accessible guide to the key concepts and basic processes central to neuropsychological assessment and child evaluation. Essays by leading experts in the field cover basic neuropsychological functions and related disorders in the context of brain development. Divided into three parts, the text begins with clear definitions of the concepts and methodology of brain development in child neuropsychology. Part two examines normal and abnormal functional development. The final part considers professional practice and provides valuable insights into the special problems of neuropsychological assessment of infants and children in clinical and educational settings.
