Patient Privacy
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| Author | : Agency for Healthcare Research and Quality/AHRQ |
| Publisher | : Government Printing Office |
| Total Pages | : 385 |
| Release | : 2014-04-01 |
| Genre | : Medical |
| ISBN | : 1587634333 |
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
| Author | : Institute of Medicine |
| Publisher | : National Academies Press |
| Total Pages | : 334 |
| Release | : 2009-03-24 |
| Genre | : Computers |
| ISBN | : 0309124999 |
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
| Author | : Institute of Medicine |
| Publisher | : National Academies Press |
| Total Pages | : 208 |
| Release | : 2001-01-13 |
| Genre | : Computers |
| ISBN | : 0309071879 |
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
| Author | : Susan E Mazer, PH D |
| Publisher | : Independently Published |
| Total Pages | : 210 |
| Release | : 2021-04-29 |
| Genre | : |
| ISBN | : |
In "Patient Privacy: When It Matters", Dr. Mazer chronicles the history of privacy within the cultural norms of the time and then moves to the current narratives from patients who share their own stories. The question of when patient privacy matters is answered through the lens of the lived experience. "Whatever I see or hear in the lives of my patients... I will keep secret, as considering all such things to be private." (From the Hippocratic Oath, 4th century, B.C.) Patient privacy was first declared in writing by Hippocrates in the 5th century and is often considered the first document to define ethical standards of patient care. Today, while patient privacy remains a mandate for every healthcare professional, it has become enveloped in exceptions many of which are defined in the Health Insurance Portability and Accountability Act of 1996. The analysis identifies both direct and indirect implications for the patient experience.
| Author | : Sean P. Murphy |
| Publisher | : McGraw Hill Professional |
| Total Pages | : 353 |
| Release | : 2015-01-09 |
| Genre | : Computers |
| ISBN | : 0071831827 |
Secure and protect sensitive personal patient healthcare information Written by a healthcare information security and privacy expert, this definitive resource fully addresses security and privacy controls for patient healthcare information. Healthcare Information Security and Privacy introduces you to the realm of healthcare and patient health records with a complete overview of healthcare organization, technology, data, occupations, roles, and third parties. Learn best practices for healthcare information security and privacy with coverage of information governance, risk assessment and management, and incident response. Written for a global audience, this comprehensive guide covers U.S. laws and regulations as well as those within the European Union, Switzerland, and Canada. Healthcare Information and Security and Privacy covers: Healthcare industry Regulatory environment Privacy and security in healthcare Information governance Risk assessment and management
| Author | : Kerm Henriksen |
| Publisher | : |
| Total Pages | : 526 |
| Release | : 2005 |
| Genre | : Medical |
| ISBN | : |
v. 1. Research findings -- v. 2. Concepts and methodology -- v. 3. Implementation issues -- v. 4. Programs, tools and products.
| Author | : Barton F. Branstetter IV |
| Publisher | : Springer Nature |
| Total Pages | : 664 |
| Release | : 2021-11-02 |
| Genre | : Medical |
| ISBN | : 1071617567 |
This new edition is a comprehensive source of imaging informatics fundamentals and how those fundamentals are applied in everyday practice. Imaging Informatics Professionals (IIPs) play a critical role in healthcare, and the scope of the profession has grown far beyond the boundaries of the PACS. A successful IIP must understand the PACS itself and all the software systems networked together in the medical environment. Additionally, an IIP must know the workflows of all the imaging team members, have a base in several medical specialties and be fully capable in the realm of information technology. Practical Imaging Informatics has been reorganized to follow a logical progression from basic background information on IT and clinical image management, through daily operations and troubleshooting, to long-term planning. The book has been fully updated to include the latest technologies and procedures, including artificial intelligence and machine learning. Written by a team of renowned international authors from the Society for Imaging Informatics in Medicine and the European Society of Medical Imaging Informatics, this book is an indispensable reference for the practicing IIP. In addition, it is an ideal guide for those studying for a certification exam, biomedical informaticians, trainees with an interest in informatics, and any professional who needs quick access to the nuts and bolts of imaging informatics.
| Author | : Institute of Medicine |
| Publisher | : National Academies Press |
| Total Pages | : 236 |
| Release | : 2015-04-20 |
| Genre | : Medical |
| ISBN | : 0309316324 |
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
| Author | : Committee on Improving the Patient Record |
| Publisher | : National Academies Press |
| Total Pages | : 257 |
| Release | : 1997-10-28 |
| Genre | : Medical |
| ISBN | : 030957885X |
Most industries have plunged into data automation, but health care organizations have lagged in moving patients' medical records from paper to computers. In its first edition, this book presented a blueprint for introducing the computer-based patient record (CPR). The revised edition adds new information to the original book. One section describes recent developments, including the creation of a computer-based patient record institute. An international chapter highlights what is new in this still-emerging technology. An expert committee explores the potential of machine-readable CPRs to improve diagnostic and care decisions, provide a database for policymaking, and much more, addressing these key questions: Who uses patient records? What technology is available and what further research is necessary to meet users' needs? What should government, medical organizations, and others do to make the transition to CPRs? The volume also explores such issues as privacy and confidentiality, costs, the need for training, legal barriers to CPRs, and other key topics.
| Author | : Griet Verhenneman |
| Publisher | : Intersentia |
| Total Pages | : 405 |
| Release | : 2021-03-31 |
| Genre | : |
| ISBN | : 9781839701245 |
Healthcare is changing. It is moving to a paperless environment, a team-based, interdisciplinary and patient-centred profession. Value-driven strategies, evidence-based medicine, data-driven technology, decision support and automated decision-making are adopted in modern healthcare models. Health-related data are subject to eagerness characterising our data-driven economy.00Amidst these changes, is the patient and his or her right to data protection, privacy and autonomy.00The question arises how to match phenomena that characterise the predominant ethos in modern healthcare systems, such as e-health and personalised medicine, with patient autonomy and data protection laws. That matching exercise is essential. The successful adoption of ICT in healthcare depends, at least partly, on how the public?s concerns about data protection and confidentiality are addressed.00Three backbone principles of European data protection law, in particular, are considered bottlenecks for the implementation of modern healthcare systems: informed consent, anonymisation and purpose limitation. The book assesses the adequacy of these principles and considers them in the context of technological and societal evolutions. A must-read for every professional active in the field of data protection law, health law, policy development or IT-driven innovation.
