Medical Decision-Making on Behalf of Young Children

Medical Decision-Making on Behalf of Young Children
Author: Imogen Goold
Publisher: Bloomsbury Publishing
Total Pages: 432
Release: 2020-09-17
Genre: Law
ISBN: 1509928588

In the wake of the Charlie Gard and Alfie Evans cases, a wide-ranging international conversation was started regarding alternative thresholds for intervention and the different balances that can be made in weighing up the rights and interests of the child, the parent's rights and responsibilities and the role of medical professionals and the courts. This collection provides a comparative perspective on these issues by bringing together analysis from a range of jurisdictions across Europe, North and South America, Africa and Asia. Contextualising the differences and similarities, and drawing out the cultural and social values that inform the approach in different countries, this volume is highly valuable to scholars across jurisdictions, not only to inform their own local debate on how best to navigate such cases, but also to foster inter-jurisdictional debate on the issues. The book brings together commentators from the fields of law, medical ethics, and clinical medicine across the world, actively drawing on the view from the clinic as well as philosophical, legal and sociological perspectives on the crucial question of who should decide about the fate of a child suffering from a serious illness. In doing so, the collection offers comprehensive treatment of the key questions around whether the current best interests approach is still appropriate, and if not, what the alternatives are. It engages head-on with the concerns seen in both the academic and popular literature that there is a need to reconsider the orthodoxy in this area.

Critically Ill Children and the Law

Critically Ill Children and the Law
Author: James Cameron
Publisher: Taylor & Francis
Total Pages: 250
Release: 2023-12-12
Genre: Law
ISBN: 1003826776

A series of recent high-profile court cases has demonstrated the inadequacy of current laws in addressing issues relating to medical treatment decisions involving seriously ill children. The challenges of determining that life-sustaining medical treatment is not in a young child’s best interests have resulted in criticism of the best interests principle. This book explores the theoretical foundations of the best interests principle, and alternatives offered in the academic literature, to allow readers to understand why the principle remains contentious despite its prevalence. It provides theoretical background, exploration of what occurs in practice, and proposes a novel approach to address these challenges. Frameworks for decision-making identified in the academic literature are used to examine the application of the best interests principle in practice in England and Wales, Australia, and New Zealand through a review of the case law and qualitative research with paediatric doctors. The exploration of current practice allows readers to understand the challenges of applying the best interests principle, but also the need to retain a focus on the child. Readers are introduced to a human-rights based approach, which ensures that the focus remains on upholding the child’s best interests but also provides a more comprehensive explanation of the situation. Progressing the debate around end-of-life decision-making and children, the book will be a valuable resource for academics, researchers and policy-makers. It will also provide practical guidance to both legal and medical practitioners in managing disputes about the provision of life-sustaining treatment.

Fortin's Children's Rights and the Developing Law

Fortin's Children's Rights and the Developing Law
Author: Rachel E. Taylor
Publisher: Cambridge University Press
Total Pages: 793
Release: 2024-02-29
Genre: Law
ISBN: 110867674X

The notion that children constitute an important group of rights holders has gained increasing acceptance both domestically and internationally. Nevertheless, this rhetorical commitment to children's rights is not necessarily realised in practice. Now in its fourth edition, Fortin's Children's Rights and the Developing Law explores the extent to which law and policy in England promotes or undermines the rights of children. Fully revised and updated, this textbook uses current research on child development and welfare to reflect on the extent to which the law fulfils children's rights in a wide range of areas, including medical law, education and child poverty. These developments are measured again the domestic law and the UK's international obligations under, for example, the United Nations Convention on the Rights of the Child.

Families and New Media

Families and New Media
Author: Nina Dethloff
Publisher: Springer Nature
Total Pages: 277
Release: 2023-03-01
Genre: Law
ISBN: 3658396644

The open access edited volume addresses children’s rights and their ability to act in the digital world. The focus is on the position of children as subjects with their own rights and developing capacities. Their consideration by parents, courts and legislators is critically examined. Aspects of digital parenting, especially educational practices and strategies in the context of social media, are analyzed with regard to the tension between protection and participation of children. The edited volume brings debates on privacy and data protection together with those from tort, family and intellectual property law, while also examining the role of families and children in the regulation of data and digital economies, especially online platforms. Legal reflections from Germany, Israel, Portugal and the United States of America are complemented by perspectives from media studies, political science, educational science and sociology of law.

Readings in Health Care Ethics - Second Edition

Readings in Health Care Ethics - Second Edition
Author: Elisabeth (Boetzkes) Gedge
Publisher: Broadview Press
Total Pages: 675
Release: 2012-03-14
Genre: Philosophy
ISBN: 1554810388

Readings in Health Care Ethics provides a wide-ranging selection of important and engaging contributions to the field of health care ethics. The second edition adds a chapter on health care in Canada, and the introduction has been expanded to include discussion of a new direction in feminist naturalized ethics. The book presupposes no prior knowledge, only an interest in the bioethical issues that are shaping our world.

Ethical Conduct of Clinical Research Involving Children

Ethical Conduct of Clinical Research Involving Children
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 445
Release: 2004-07-09
Genre: Medical
ISBN: 0309133386

In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.

Medical Treatment of Children and the Law

Medical Treatment of Children and the Law
Author: Jo Bridgeman
Publisher: Routledge
Total Pages: 176
Release: 2020-11-19
Genre: Law
ISBN: 0429534833

The high profile cases of Charlie Gard, Alfie Evans, and Tafida Raqeeb raised the questions as to why the state intrudes into the exercise of parental responsibility concerning the medical treatment of children and why parents may not be permitted to decide what is in the best interests of their child. This book answers these questions. It argues for a reframing of the law concerned with the medical treatment of children to one which better protects the welfare of the individual child, within the context of family relationships recognising the duties which professionals have to care for the child and that the welfare of children is a matter of public interest, protected through the intervention of the state. This book undertakes a rigorous critical analysis of the case law concerned with the provision of medical treatment to children since the first reported cases over forty years ago. It argues that understanding of the cases only as disputes over the best interests of the child, and judicial resolution thereof, fails to recognise professional duties and public responsibilities for the welfare and protection of children that exist alongside parental responsibilities and which justify public, or state, intervention into family life and parental decision-making. Whilst the principles and approach of the court established in the early cases endure, the nature and balance of these responsibilities to children in their care need to be understood in the changing social, legal, and political context in which they are exercised and enforced by the court. The book will be a valuable resource for academics, students, and practitioners of Medical Law, Healthcare Law, Family Law, Social Work, Medicine, Nursing, and Bioethics.

Fuhrman & Zimmerman's Pediatric Critical Care E-Book

Fuhrman & Zimmerman's Pediatric Critical Care E-Book
Author: Jerry J. Zimmerman
Publisher: Elsevier Health Sciences
Total Pages: 2653
Release: 2021-02-05
Genre: Medical
ISBN: 0323672701

In the highly specialized field of caring for children in the PICU, Fuhrman and Zimmerman's Pediatric Critical Care is the definitive reference for all members of the pediatric intensive care team. Drs. Jerry J. Zimmerman and Alexandre T. Rotta, along with an expert team of editors and contributors from around the world, have carefully updated the 6th Edition of this highly regarded text to bring you the most authoritative and useful information on today's pediatric critical care—everything from basic science to clinical applications. - Contains highly readable, concise chapters with hundreds of useful photos, diagrams, algorithms, and clinical pearls. - Uses a clear, logical, organ-system approach that allows you to focus on the development, function, and treatment of a wide range of disease entities. - Features more international authors and expanded coverage of global topics including pandemics, sepsis treatment in underserved communities, specific global health concerns by region. - Covers current trends in sepsis-related mortality and acute care after sepsis, as well as new device applications for pediatric patients. - Provides ultrasound videos and more than 500 board-style review questions and answers on Expert Consult. - Enhanced eBook version included with purchase. Your enhanced eBook allows you to access all of the text, figures, and references from the book on a variety of devices.

Pediatric Critical Care E-Book

Pediatric Critical Care E-Book
Author: Jerry J. Zimmerman
Publisher: Elsevier Health Sciences
Total Pages: 2481
Release: 2016-11-29
Genre: Medical
ISBN: 032341558X

Still the #1 resource for today’s pediatric ICU teams, Pediatric Critical Care, 5th Edition covers the entire field, from basic science to cutting-edge clinical applications. Drs. Bradley P. Fuhrman and Jerry J. Zimmerman, accompanied by an expert team of editors and contributors from around the world, bring you today’s best information on the current and future landscape of pediatric critical care so you can consistently deliver optimum care to your young patients. Boasts highly readable, concise chapters with hundreds of useful photos, diagrams, algorithms, and clinical pearls. Clear, logical, organ-system approach allows you to focus on the development, function, and treatment of a wide range of disease entities. Includes new content on the expanding use of ultrasound at the bedside and the increase in nursing responsibilities in the PICU. Eighteen new chapters cover topics such as delirium, metabolism, endocrinology, nutrition, nursing, and much more. Features expanded and updated information on critical communication, professionalism, long-term outcomes, palliative care, ultrasonography, PCCM in resource-limited settings, ventilator-induced lung injury, non-invasive ventilation, updated CNS pathophysiology, the ‘Erythron’, and immunity and infection.

Patient Autonomy and Criminal Law

Patient Autonomy and Criminal Law
Author: Paweł Daniluk
Publisher: Taylor & Francis
Total Pages: 403
Release: 2022-10-21
Genre: Law
ISBN: 1000774937

This book shows how the legal systems of individual European countries protect patient autonomy. In particular, it explains the role of criminal law, that is, what criminal law protection of patient autonomy looks like on a European scale in both legal and social dimensions. Despite EU integration processes, the work illustrates that the legal orders of individual European countries are far from uniform in this area. The concept of patient autonomy here is generally in the context of the patient's freedom from unwanted medical activities: the so-called negative freedom. At the same time, in countries where there are no regulations clearly criminalising the performance of a therapeutic activity without the patient's consent, the so-called positive freedom is also discussed. The book will be a valuable reference work for academics, researchers and policy-makers working in Health Law, Medical Ethics, Applied Ethics and Criminal Law.