Making Sense Of Advance Directives
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| Author | : Nancy M.P. King |
| Publisher | : Georgetown University Press |
| Total Pages | : 308 |
| Release | : 1996-02-01 |
| Genre | : Medical |
| ISBN | : 9781589018600 |
Advance directives—such as living wills and health care proxies—are documents intended to declare and preserve the health care choices of patients if they become unable to make their own decisions. This book provides a comprehensive overview of advance directives and clear, practical directions for writing and interpreting them. Nancy M.P. King provides a legal, philosophical, and historical analysis of the moral and legal force of advance directives. She explains the types and models of advance directives currently in use and offers guidelines for individuals seeking to write, read, and use directives to promote individuals' health care choices within the laws of their own states. King emphasizes that advance directives are not orders given by patients to their doctors; instead, they are documents that invite conversation between doctors and patients about health care decisions of great importance. The purpose of advance directives is to support patients' health care choices, and the book promotes a thoughtful use of advance directives that is best calculated to achieve that purpose, whatever form individual advance directives may take. This new edition has been updated to reflect the many changes in advance directive statutes since 1991, including expanded discussions of health care proxy statutes, the impact of the Patient Self-Determination Act and the Supreme Court's Cruzan decision. King also has extended her analysis of the implications for advance directives of managed care, resource allocation, resource scarcity, and the debate over futile treatment at the end of life. Making Sense of Advance Directives is a valuable handbook for patients, health care providers and administrators, patient counselors, lawyers, policymakers, and any individual interested in advance directives.
| Author | : Institute of Medicine |
| Publisher | : National Academies Press |
| Total Pages | : 470 |
| Release | : 2015-03-19 |
| Genre | : Medical |
| ISBN | : 0309303133 |
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
| Author | : N.M. King |
| Publisher | : Springer Science & Business Media |
| Total Pages | : 242 |
| Release | : 2012-12-06 |
| Genre | : Philosophy |
| ISBN | : 9401133808 |
The first time I read the medical consent and authorization. it had registered in my mind simply as a legal document. Now I began to understand what it meant. It was a letter of ultimate love and trust. (Schucking. 1985. p. 268) Ever since Karen Ann Quinlan slipped into permanent unconsciousness in 1975 and her father agonized publicly over whether she should remain indefinitely on a respirator (In re Quinlan, 1976), the desires of patients, their families, and their friends to limit the application of apparently limitless medical technology have been a pressing concern for ethics, law, and public policy. Ms. Quinlan's case contained nearly all the elements of the problems we still face: vague, general, but sincere prior oral statements suggesting that she would not want continued treatment; a family attempting to do what they saw as best for her; and physicians uncertain whether to use medical judgment alone (and if so, what the "right" medical decision was), to preserve her life at all costs, or to honor the family's interpretation of their daughter's choice. Most ironically, once she was removed from her respirator, she did not die. Karen Quinlan - like dozens of other names made famous by court decisions, newspaper stories, and television evening news - has come to symbolize a tangled knot of issues surrounding the end of life and who controls it.
| Author | : Keri Thomas |
| Publisher | : Oxford University Press |
| Total Pages | : 337 |
| Release | : 2018 |
| Genre | : Medical |
| ISBN | : 0198802137 |
ACP is an essential part of end of life care with patients improving their chances of 'a good death' by creating plans with their families and carers. This new edition gives a comprehensive overview of ACP, explores a wide range of issues and practicalities in providing end of life care, and offers a worldwide perspective.
| Author | : Barbara Redman |
| Publisher | : SAGE |
| Total Pages | : 313 |
| Release | : 2002 |
| Genre | : Medical |
| ISBN | : 0761915184 |
"The evolution of ethical issues in clinical and research work in health has acclerated dramatically due to the struggle toward patient automony in end-of-life decisions and patients' access to choices in health care and in research. How do we clarify the assumptions and consequences of these decisions in the development of measurement instruments that gather data of their psychometic characteristics? This book presents a number of these instruments ... each chapter examines a specific topic category (for example, patient preference, aggressiveness of care, and others) and then explains each of the various instruments that have been developed to measure that topic. Next, the description, psychometric properties, summary and critique, references, and a copy of the instrument are provided so as to facilitate the reader's search for a usable instrument."--Back cover.
| Author | : Pete Earley |
| Publisher | : Bantam |
| Total Pages | : 493 |
| Release | : 2011-11-09 |
| Genre | : True Crime |
| ISBN | : 0307808319 |
A stunning account of life behind bars at the federal penitentiary in Leavenworth, Kansas, where the nation’s hardest criminals do hard time. “A page-turner, as compelling and evocative as the finest novel. The best book on prison I’ve ever read.”—Jonathan Kellerman The most dreaded facility in the prison system because of its fierce population, Leavenworth is governed by ruthless clans competing for dominance. Among the “star” players in these pages: Carl Cletus Bowles, the sexual predator with a talent for murder; Dallas Scott, a gang member who has spent almost thirty of his forty-two years behind bars; indomitable Warden Robert Matthews, who put his shoulder against his prison’s grim reality; Thomas Silverstein, a sociopath confined in “no human contact” status since 1983; “tough cop” guard Eddie Geouge, the only officer in the penitentiary with the authority to sentence an inmate to “the Hole”; and William Post, a bank robber with a criminal record going back to when he was eight years old—and known as the “Catman” for his devoted care of the cats who live inside the prison walls. Pete Earley, celebrated reporter and author of Family of Spies, all but lived for nearly two years inside the primordial world of Leavenworth, where he conducted hundreds of interviews. Out of this unique, extraordinary access comes the riveting story of what life is actually like in the oldest maximum-security prison in the country. Praise for The Hot House “Reporting at its very finest.”—Los Angeles Times “The book is a large act of courage, its subject an important one, and . . . Earley does it justice.”—The Washington Post Book World “[A] riveting, fiercely unsentimental book . . . To [Earley’s] credit, he does not romanticize the keepers or the criminals. His cool and concise prose style serves him well. . . . This is a gutsy book.”—Chicago Tribune “Harrowing . . . an exceptional work of journalism.”—Detroit Free Press “If you’re going to read any book about prison, The Hot House is the one. . . . It is the most realistic, unbuffed account of prison anywhere in print.”—Kansas City Star “A superb piece of reporting.”—Tom Clancy
| Author | : Katy Butler |
| Publisher | : Scribner |
| Total Pages | : 288 |
| Release | : 2020-02-11 |
| Genre | : Self-Help |
| ISBN | : 1501135473 |
This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).
| Author | : Robert S. Olick |
| Publisher | : Georgetown University Press |
| Total Pages | : 252 |
| Release | : 2001-07-18 |
| Genre | : Medical |
| ISBN | : 9781589014176 |
In the quarter century since the landmark Karen Ann Quinlan case, an ethical, legal, and societal consensus supporting patients' rights to refuse life-sustaining treatment has become a cornerstone of bioethics. Patients now legally can write advance directives to govern their treatment decisions at a time of future incapacity, yet in clinical practice their wishes often are ignored. Examining the tension between incompetent patients' prior wishes and their current best interests as well as other challenges to advance directives, Robert S. Olick offers a comprehensive argument for favoring advance instructions during the dying process. He clarifies widespread confusion about the moral and legal weight of advance directives, and he prescribes changes in law, policy, and practice that would not only ensure that directives count in the care of the dying but also would define narrow instances when directives should not be followed. Olick also presents and develops an original theory of prospective autonomy that recasts and strengthens patient and family control. While focusing largely on philosophical issues the book devotes substantial attention to legal and policy questions and includes case studies throughout. An important resource for medical ethicists, lawyers, physicians, nurses, health care professionals, and patients' rights advocates, it champions the practical, ethical, and humane duty of taking advance directives seriously where it matters most-at the bedside of dying patients.
| Author | : Sharona Hoffman |
| Publisher | : Bloomsbury Publishing USA |
| Total Pages | : 219 |
| Release | : 2015-05-12 |
| Genre | : Health & Fitness |
| ISBN | : |
This book offers a concise, comprehensive resource for middle-aged readers who are facing the prospects of their own aging and of caring for elderly relativesan often overwhelming task for which little in life prepares us. Everyone ages, and nearly everyone will also experience having to support aging relatives. Being prepared is the best way to handle this inevitable life stage. This book addresses a breadth of topics that are relevant to aging and caring for the elderly, analyzing each thoroughly and providing up-to-date, practical advice. It can serve as a concise and comprehensive resource read start-to-finish to plan for an individual's own old age or to anticipate the needs of aging relatives, or as a quick-reference guide on specific issues and topics as relevant to each reader's situation and needs. Using an interdisciplinary approach, Aging with a Plan: How a Little Thought Today Can Vastly Improve Your Tomorrow develops recommendations for building sustainable social, legal, medical, and financial support systems that can promote a good quality of life throughout the aging process. Chapters address critical topics such as retirement savings and expenses, residential settings, legal planning, the elderly and driving, long-term care, and end-of-life decisions. The author combines analysis of recent research on the challenges of aging with engaging anecdotes and personal observations. By following the recommendations in this book, readers in their 40s, 50s, and early 60s will greatly benefit from learning about the issues regarding aging in the 21st centuryand from investing some effort in planning for their old age and that of their loved ones.
| Author | : Daniela Lamas |
| Publisher | : Little, Brown Spark |
| Total Pages | : 176 |
| Release | : 2018-03-27 |
| Genre | : Biography & Autobiography |
| ISBN | : 0316393185 |
For readers of Atul Gawande and Jerome Groopman, a book of beautifully crafted stories about what life is like for patients kept alive by modern medical technology. Modern medicine is a world that glimmers with new technology and cutting-edge research. To the public eye, medical stories often begin with sirens and flashing lights and culminate in survival or death. But these are only the most visible narratives. As a critical care doctor treating people at their sickest, Daniela Lamas is fascinated by a different story: what comes after for those whose lives are extended by days, months, or years as a result of our treatments and technologies? You Can Stop Humming Now, Lamas explores the complex answers to this question through intimate accounts of patients and their families. A grandfather whose failing heart has been replaced by a battery-operated pump; a salesman who found himself a kidney donor on social media; a college student who survived a near fatal overdose and returned home, alive but not the same; and a young woman navigating an adulthood she never thought she'd live to see -- these moving narratives paint a detailed picture of the fragile border between sickness and health. Riveting, gorgeously told, and deeply personal, You Can Stop Humming Now is a compassionate, uncompromising look at the choices and realities that many of us, and our families, may one day face. "Gripping, soaring, inspiring."-Atul Gawande, author of Being Mortal
