Living With Haemophilia
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Author | : Peter Jones |
Publisher | : Oxford University Press, USA |
Total Pages | : 418 |
Release | : 1998 |
Genre | : Family & Relationships |
ISBN | : 9780192629616 |
Living With Haemophilia has established itself as the complete guide to haemophilia and related inherited bleeding disorders. Written primarily for affected families, the book also provides a useful and up-to-date guide for doctors, paramedical staff including nurses and physiotherapists, andteachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis and the prospects for a genetic cure. Now available in paperback, this book will continue to be an essential purchase for all those affectedwhether directly or indirectly by haemophilia.
Author | : Akbar Dorgalaleh |
Publisher | : Springer |
Total Pages | : 397 |
Release | : 2018-07-25 |
Genre | : Medical |
ISBN | : 3319767232 |
This book describes in detail the clinical presentation, diagnosis, and management of a wide range of congenital bleeding disorders. It will assist readers in overcoming the significant challenges involved in clinical and laboratory diagnosis and in providing effective clinical care that makes optimal use of new products, including recombinant factor concentrate. The coverage ranges from hemophilia A and B and von Willebrand disease to rare bleeding disorders such as congenital factor V, factor X, factor XI, and factor XIII deficiency and inherited platelet function disorders. The exceptional attention to rarer conditions is of particular importance given the considerable risk of overlooking them during diagnosis, with potential consequences for disease-related morbidity and mortality. The authors are acknowledged specialists in the field from across the world who have particular expertise in the disorder that they discuss. The book will be of value to hematologists, oncologists, pediatricians, laboratory specialists and technicians, general physicians, and trainees.
Author | : David Green |
Publisher | : Academic Press |
Total Pages | : 286 |
Release | : 2018-06-14 |
Genre | : Science |
ISBN | : 0128129557 |
Hemophilia and Von Willebrand Disease: Factor VIII and Von Willebrand Factor serves as a must-have reference on the important role these essential blood-clotting proteins play in research and clinical medicine. Clinicians and researchers face the daily challenge of staying current on the vast amounts of research that is now generated. The reference to Janus in the title refers to the two roles of the Factor VIII/Von Willebrand Factor Complex: initiation of coagulation and propagation of clot formation. The complex prevents bleeding in hemophilia and Von Willebrand disease but also augments arterial and venous thrombosis. - Presents one source of information on Hemophilia and Von Willebrand Disease, as well as Factor VIII and Von Willebrand Factor, eliminating the search through hundreds of journal articles - Combines the multi-disciplinary research that is generated from Factor VIII/Von Willebrand Factor – hematology, drug discovery, genetics, cell biology, and oncology - Delves into unanswered questions and future directions of this important blood-clotting complex
Author | : Peter Jones |
Publisher | : Oxford University Press |
Total Pages | : 346 |
Release | : 2002-05-16 |
Genre | : Health & Fitness |
ISBN | : 9780192632296 |
Living with haemophilia has established itself as the complete guide for people who suffer from haemophilia and their families. Sensitively and clearly written, it takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life.
Author | : Institute of Medicine |
Publisher | : National Academies Press |
Total Pages | : 349 |
Release | : 1995-10-05 |
Genre | : Medical |
ISBN | : 0309053293 |
During the early years of the AIDS epidemic, thousands of Americans became infected with HIV through the nation's blood supply. Because little reliable information existed at the time AIDS first began showing up in hemophiliacs and in others who had received transfusions, experts disagreed about whether blood and blood products could transmit the disease. During this period of great uncertainty, decision-making regarding the blood supply became increasingly difficult and fraught with risk. This volume provides a balanced inquiry into the blood safety controversy, which involves private sexual practices, personal tragedy for the victims of HIV/AIDS, and public confidence in America's blood services system. The book focuses on critical decisions as information about the danger to the blood supply emerged. The committee draws conclusions about what was doneâ€"and recommends what should be done to produce better outcomes in the face of future threats to blood safety. The committee frames its analysis around four critical area: Product treatmentâ€"Could effective methods for inactivating HIV in blood have been introduced sooner? Donor screening and referralâ€"including a review of screening to exlude high-risk individuals. Regulations and recall of contaminated bloodâ€"analyzing decisions by federal agencies and the private sector. Risk communicationâ€"examining whether infections could have been averted by better communication of the risks.
Author | : Barbara Vine |
Publisher | : Vintage Crime/Black Lizard |
Total Pages | : 386 |
Release | : 2007-12-18 |
Genre | : Fiction |
ISBN | : 0307428184 |
Sometimes it’s best to leave the past alone. For when biographer Martin Nanther looks into the life of his famous great-grandfather Henry, Queen Victoria’s favorite physician, he discovers some rather unsettling coincidences, like the fact that the doctor married the sister of his recently murdered fiancée. The more Martin researches his distant relative, the more fascinated—and horrified—he becomes. Why did people have a habit of dying around his great grandfather? And what did his late daughter mean when she wrote that he’s done “monstrous, quite appalling things”? Barbara Vine (a.k.a. Ruth Rendell) deftly weaves this story of an eminent Victorian with a modern yarn about the embattled biographer, who is watching the House of Lords prepare to annul membership for hereditary peers and thus strip him of his position. Themes of fate and family snake throughout this teasing psychological suspense, a typically chilling tale from a master of the genre.
Author | : Dana Francis |
Publisher | : Park Place Publications |
Total Pages | : 112 |
Release | : 2013-09 |
Genre | : |
ISBN | : 9781935530800 |
A collection of true stories of hemophilia social workers and their patients.
Author | : C. Jones |
Publisher | : Springer Science & Business Media |
Total Pages | : 177 |
Release | : 2012-12-06 |
Genre | : Medical |
ISBN | : 9401196451 |
, For the most part we. the haemophiliacs present at this Congress. have come from the great metropolitan centres with their advanced medical and social programmes for sufferers of haemophilia. We. the fortunate from the haemophilia oasis. have much to learn from each other. This is important. but even more important is the urgency to convey your knowledge. your skills. your experience and your dedication to the haemophiliacs in the desert: 'We can only begin to understand the condition. the life of a sufferer. by comparing him to a soldier in the trenches of World War I. In the trenches the soldier seldom forgets that the next moment may bring death or crippling. The haemophiliac is literally in the trenches. The soldier may be spared injury. but pain awaits the haemophiliac. Fear. moreover, is paramount to the pain. As in the trenches. the anxiety can be more oppressive than the wound. Waiting to go over the top imposes a greater strain than the actual charge. For the soldiers that survived World War I in the trenches. 4 years seemed eternity; the haemophiliac never leaves the battlefield: Opening Address, Frank Schnabel. World Federation of Hemophilia. Copenhagen. June 25th. 1963. War can come to an oasis, peace can come to the trenches. With this book, Dr Peter Jones has joined the international struggle. Carefully, concisely and cogently. the text offers a grand strategy. With allies like Dr Jones we will, one day, achieve victory. Frank Schnabel, Chairman.
Author | : Bryce Courtenay |
Publisher | : Penguin Group Australia |
Total Pages | : 829 |
Release | : 2006-08-28 |
Genre | : Biography & Autobiography |
ISBN | : 1742280587 |
In the end, love is more important than everything and it will conquer and overcome anything. Or that's how Damon saw it, anyway. Damon wanted a book that talked a lot about love. Damon Courtenay died on the morning of April Fool's Day. In this tribute to his son, Bryce Courtenay lays bare the suffering behind this young man's life. Damon's story is one of lifelong struggle, his love for Celeste, the compassion of family, and a fight to the end for integrity. A testimony to the power of love, April Fool's Day is also about understanding: how when we confront our worst, we can become our best. This life-affirming book will change the way you think. 'April Fool's Day is one of those rare, wholly beautiful books that lets life speak for itself without any attempt at artifice ... yet stands as a powerful work of literature ... Damon certainly lives in the pages of this vital book.' Weekend Australian 'Some books have such a powerful story to tell ... [April Fool's Day] is written with sustained rage, grief, raw love, and thank god, some dark humour ... I cannot remember when a book has moved me so deeply.' Weekend Telegraph brycecourtenay.com facebook.com/BryceCourtenay
Author | : Christine A. Lee |
Publisher | : John Wiley & Sons |
Total Pages | : 956 |
Release | : 2011-07-05 |
Genre | : Medical |
ISBN | : 1444347705 |
The Textbook of Hemophilia has become a definitive resource for all those managing hemophilia patients. It covers all the common and rare bleeding disorders, both in terms of clinical management as well as the genetic, laboratory, financial and psychological aspects. This second edition covers all the latest developments in the field of hemophilia, with new chapters on: the genetic and molecular basis of inherited blood disorders how to manage adolescent and older patients emergency medicine and inherited blood disorders national hemophilia databases Drawing on the vast experience of the authors, the aim of this textbook remains the same - to improve the care of patients suffering from hemophilia. The book is full of detailed guidance and advice on everyday clinical questions making it invaluable to all trainee and practicing hematologists.