Issues In The Care Of Children With Chronic Illness
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| Author | : Institute of Medicine and National Research Council |
| Publisher | : National Academies Press |
| Total Pages | : 217 |
| Release | : 1998-11-27 |
| Genre | : Medical |
| ISBN | : 0309065607 |
America's Children is a comprehensive, easy-to-read analysis of the relationship between health insurance and access to care. The book addresses three broad questions: How is children's health care currently financed? Does insurance equal access to care? How should the nation address the health needs of this vulnerable population? America's Children explores the changing role of Medicaid under managed care; state-initiated and private sector children's insurance programs; specific effects of insurance status on the care children receive; and the impact of chronic medical conditions and special health care needs. It also examines the status of "safety net" health providers, including community health centers, children's hospitals, school-based health centers, and others and reviews the changing patterns of coverage and tax policy options to increase coverage of private-sector, employer-based health insurance. In response to growing public concerns about uninsured children, last year Congress voted to provide $24 billion over five years for new state insurance initiatives. This volume will serve as a primer for concerned federal policymakers and regulators, state agency officials, health plan decisionmakers, health care providers, children's health advocates, and researchers.
| Author | : Frank J. Sileo |
| Publisher | : American Psychological Association (APA) |
| Total Pages | : 419 |
| Release | : 2021-01-26 |
| Genre | : Family & Relationships |
| ISBN | : 9781433833816 |
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.
| Author | : Alice A. Kuo |
| Publisher | : Springer Nature |
| Total Pages | : 825 |
| Release | : |
| Genre | : |
| ISBN | : 3031542819 |
| Author | : Nicholas Hobbs |
| Publisher | : |
| Total Pages | : 1004 |
| Release | : 1985 |
| Genre | : Family & Relationships |
| ISBN | : |
| Author | : Nancy Boyd Webb |
| Publisher | : John Wiley & Sons |
| Total Pages | : 391 |
| Release | : 2010-10-28 |
| Genre | : Political Science |
| ISBN | : 111801216X |
Praise for Helping Children and Adolescents with Chronic and Serious Medical Conditions A Strengths-Based Approach "Helping Children and Adolescents with Chronic and Serious Medical Conditionsprovides a wellspring of knowledge, from the theoretical to the clinical. The many vignettes and transcriptions immeasurably enrich the reader's understanding of the interventions and their broader applicability."—Barbara M. Sourkes, PhDJohn A. Kriewall and Elizabeth A. Haehl Director of Pediatric Palliative CareLucile Packard Children's Hospital at Stanford An important and practical guide to providing compassionate care and support to medically compromised children and their families Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach presents practical guidance on integrating the latest research into evidence-based practice to ensure the best client care. Edited by a top scholar in the field, this essential resource contains contributions from renowned specialists in various helping fields. Utilizing an inter-professional perspective, helping professionals will draw from the experiences and expertise of a wide range of medical professionals, providing a "window" into their roles, responsibilities, and challenges, offering the most effective approaches for working with this special population of children and their families. Equipping practitioners with the knowledge and skills needed to encourage children's resilience and help them build their emotional strengths, this book uses a caring yet authoritative tone and discusses: The emotional impact of illness on the individual and the family Child-life practice in hospitals School-based interventions for children and adolescents with medical conditions How to meet the spiritual as well as emotional needs of children with chronic and life-threatening illness With thoughtful coverage of positive helping approaches that encourage family and individual strengths, Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach is an invaluable resource for social workers, teachers, school counselors, and other mental health and medical professionals who work with medically challenged children and adolescents in every setting.
| Author | : Mandy Brimble |
| Publisher | : John Wiley & Sons |
| Total Pages | : 306 |
| Release | : 2020-12-29 |
| Genre | : Medical |
| ISBN | : 1119653169 |
The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings. Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource: Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.
| Author | : Sharon Dempsey |
| Publisher | : Jessica Kingsley Publishers |
| Total Pages | : 211 |
| Release | : 2008-03-15 |
| Genre | : Family & Relationships |
| ISBN | : 184642772X |
[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.
| Author | : Dennis Drotar |
| Publisher | : Psychology Press |
| Total Pages | : 394 |
| Release | : 2014-06-03 |
| Genre | : Psychology |
| ISBN | : 1317824563 |
This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
| Author | : Beth Lambert |
| Publisher | : Sentient Publications |
| Total Pages | : 376 |
| Release | : 2010 |
| Genre | : Health & Fitness |
| ISBN | : 1591810965 |
The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.
| Author | : Fay Valentine |
| Publisher | : John Wiley & Sons |
| Total Pages | : 280 |
| Release | : 2008-04-15 |
| Genre | : Medical |
| ISBN | : 0470691395 |
Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. The first nursing-specific text related to the care of children & young people with chronic illness Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home Written in the context of the NSF for Children
