Invisible Caregivers

Invisible Caregivers
Author: Daphne Joslin
Publisher: Columbia University Press
Total Pages: 335
Release: 2002-02-28
Genre: Social Science
ISBN: 0231504586

An understudied aspect of the HIV/AIDS epidemic is the creation of hundreds of thousands of grandparent-headed households that have become home to children bereft of one or both of their parents. Such "skip-generation parenting" presents a host of challenges to the families involved and the social programs designed to assist them. Despite this unprecedented caregiving responsibility, older surrogate parents remain relatively invisible, hidden in the shadows of HIV care and the demands of raising a child. The primary goal of Invisible Caregivers is to generate, support, and guide program and policy initiatives designed to meet the needs of elder surrogates and their families. Most social service programs are not able to identify the needs of older surrogates, often because these surrogate parents in HIV-infected families are reluctant to make their needs known for fear of social stigma or possible reductions of benefits. Multiple systemic barriers to case management and other services also frustrate attempts to bring available resources to elder caregivers. These barriers include professional ignorance or denial that HIV affects surrogates, eligibility restrictions through CARE, limited funding and age restriction on OAA, and a fragmented health and human service system. Because the issues facing elder caregivers are many and varied, this collection covers a host of issues: community health, aging, HIV services, child welfare, education, public policy, and mental health.

The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers

The Invisible Patient: the Emotional, Financial, and Physical Toll on Family Caregivers
Author: Annalee Kruger
Publisher:
Total Pages: 255
Release: 2021-08-27
Genre:
ISBN:

How can caregivers fulfill their role as a caregiver without losing themselves in the process? Fulfilling the role of family caregiver is hard work, even if chosen willingly as an act of love to another. While the emotional, physical, and spiritual toll of caregiving is well documented, the high level of self-love and self-care required within the caregiver to successfully put the needs of others first without self-destructing is not. Caregiving can be a rewarding experience for all involved, but the stress of being a caregiver can lead to burnout and exhaustion and, in some cases, financial peril IF an Aging Plan is not in place. Consequently, the stress involved in caregiving causes caregivers to put themselves and their well-being in the background and focus on their needs last. Contributing to the level of stress is the fact that many caregivers are financially contributing to their aging loved ones' needs while also caring for that loved one. All this ongoing self-sacrifice causes a phenomenon known as compassion fatigue, leading caregivers to become the "invisible patient." In The Invisible Patient, senior care advisor and caregiver advocate Annalee Kruger teaches caretakers how to appreciate the blessings of being a caregiver while also looking after themselves. It is not a luxury for caregivers to practice strong self-care -- it is a necessity. Caregiving can be a positive experience IF families better understand aging, understand the disease their loved one has, learn how to improve family communication, and have an Aging Plan. The Invisible Patient provides inspiration, encouragement, and step-by-step guidance to ease the caregiving journey. Kruger leaves no stone unturned, providing personal anecdotes and scenarios about the caregiving process, and includes numerous references and resources in this guide to caring for the caregiver.

Invisible Caregivers

Invisible Caregivers
Author: Daphne Joslin
Publisher: Columbia University Press
Total Pages: 335
Release: 2002
Genre: Family & Relationships
ISBN: 0231119364

The societies of the Vaupés region are now among the most documented indigenous cultures of the New World, in part because they are thought to resemble earlier civilizations lost during initial colonial conflict. Here at last is the eagerly awaited publication of a posthumous work by the man widely regarded as the preeminent authority on Vaupés Amazonian societies. Cubeo Hehénewa Religious Thought will be the definitive account of the religious worldview of a significant Amazonian culture. Cubeo religious thought incorporates ideas about the nature of the cosmos, society, and human life; the individual's orientation to the world; the use of hallucinogenic substances; and a New World metaphysics. This volume was substantially completed before Irving Goldman's death, but Peter Wilson has edited it for publication, providing a thorough introduction to Goldman's work. Stephen Hugh-Jones has contributed an afterword, setting the work in the context of contemporary Vaupés ethnography.

Invisible Faces and Hidden Stories

Invisible Faces and Hidden Stories
Author: Cecilia Sem Obeng
Publisher: Berghahn Books
Total Pages: 157
Release: 2020-11-01
Genre: Social Science
ISBN: 178920934X

No detailed description available for "Invisible Faces and Hidden Stories".

Already Toast

Already Toast
Author: Kate Washington
Publisher: Beacon Press
Total Pages: 224
Release: 2021-03-16
Genre: Medical
ISBN: 0807011754

The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.

Remarkable Caregiving

Remarkable Caregiving
Author: Nancy R. Poland
Publisher: Morgan James Publishing
Total Pages: 158
Release: 2021-08-03
Genre: Medical
ISBN: 1631955446

Remarkable Caregiving gives readers a boost of hope for humanity. Remarkable Caregiving is a compilation of six true stories as told to the author, Nancy R Poland. Within, readers meet a law-abiding woman forced to kidnap a loved one, a man who served as the “relief pitcher” for his best friend, and parents of children born with disabilities who found innovate solutions. They also meet a black woman born into poverty, who made a life for herself and her children, only to be thrust into crisis care for her mother just as her kids were grown. Learn how a daughter put her beliefs into action by caring for her dad, whatever the cost. And, finally, meet the woman who found her purpose in life becoming not just a paid caregiver, but a full-time, live-in family member to two adults with Down syndrome. What made these caregivers resilient, inventive, and resourceful? What did they learn, and what can they teach others? These individual’s stories tell how they incorporated values of family, friendship, faith, and love while caring for another.

Helping Yourself Help Others

Helping Yourself Help Others
Author: Rosalynn Carter
Publisher: Public Affairs
Total Pages: 284
Release: 2013-10-01
Genre: Family & Relationships
ISBN: 161039352X

"The former First Lady's warmly personal account of caregiving is also a reassuring guidebook offering practical solutions"--

Alone and Invisible No More

Alone and Invisible No More
Author: Dr. Allan S. Teel
Publisher: Chelsea Green Publishing
Total Pages: 218
Release: 2011-07-13
Genre: Medical
ISBN: 1603583807

In Alone and Invisible No More, physician Allan S. Teel, MD, describes how to overhaul our eldercare system. Based on his own efforts to create humane, affordable alternatives in Maine, Teel's program harnesses both staff and volunteers to help people remain in their homes and communities. It offers assistance with everyday challenges, uses technology to keep older people connected to each other and their families, and stay safe. This approach works.

The Caregiver

The Caregiver
Author: Aaron Alterra
Publisher: Cornell University Press
Total Pages: 236
Release: 2007
Genre: Biography & Autobiography
ISBN: 9780801474347

Forgetting how things are done -- The new primary care physician -- Second opinions -- Giving up the keys -- The right to know -- The real and the unreal -- Another way -- Paying the bill -- I want to go home -- Coda.

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ISBN: 0801463319