Family-centered Care for Children Needing Specialized Health and Developmental Services

Family-centered Care for Children Needing Specialized Health and Developmental Services
Author: Terri L. Shelton
Publisher:
Total Pages: 120
Release: 1994
Genre: Child health services
ISBN: 9780937821879

This monograph articulates eight key elements of a family-centered approach to policy and practice for children needing specialized health and developmental services. An introductory section reviews the development of the first edition of the monograph in 1987 and its widespread dissemination and acceptance since that time. Each of the following eight chapters then addresses one of the following elements: (1) recognition that the family is the constant in the child's life, while the service systems and support personnel within those systems fluctuate; (2) facilitation of family/professional collaboration at all levels of hospital, home, and community care; (3) exchange of complete and unbiased information between families and professionals in a supportive manner; (4) respect for cultural diversity within and across all families including ethnic, racial, spiritual, social, economic, educational, and geographic diversity; (5) recognition of different methods of coping and promotion of programs providing developmental, educational, emotional, environmental, and financial supports to families; (6) encouragement of family-to-family support and networking; (7) provision of hospital, home, and community service and support systems that are flexible, accessible, and comprehensive in meeting family-identified needs; and (8) appreciation of families as families, recognizing their wide range of strengths, concerns, emotions, and aspirations beyond their need for specialized health and developmental services and support. Checklists for evaluating these elements are attached. (Contains 160 references.) (DB)

Family-centered Early Intervention

Family-centered Early Intervention
Author: Sharon A. Raver
Publisher: Brookes Publishing Company
Total Pages: 0
Release: 2014-12-15
Genre: Education
ISBN: 9781598575699

Aligned with DEC recommended practices and CEC standards! A must for future early interventionists.

Family-Centered Care in Childhood Disability

Family-Centered Care in Childhood Disability
Author: Livio Provenzi
Publisher: Springer Nature
Total Pages: 235
Release: 2023-08-04
Genre: Medical
ISBN: 3031342526

The book presents a comprehensive and well-organized overview of the family-centered care approaches for child disability, and provides multi-professional contributions from the fields of psychiatry, psychology, and rehabilitation science. The volume is divided into three main sections, that highlights the theoretical basis, research evidence, and clinical implications of the family-centered approach to child care. Active engagement of parents in the therapeutic and rehabilitative journey of their children with disability is key to the success of early interventions and their long-term benefits. Research and clinical experiences in healthcare services around the world suggest that early supportive programs may promote children’s development at its best, with both clinical benefits and economic advantages for the healthcare system. This volume will appeal to a wide readership, from clinicians and researchers in child disability and rehabilitation, to students and professionals in the fields of psychiatry, psychology, and rehabilitation science.

Partnering with Parents

Partnering with Parents
Author: Barry Trute
Publisher: University of Toronto Press
Total Pages: 337
Release: 2013-02-07
Genre: Social Science
ISBN: 1442664975

Internationally recognized as the gold standard in providing services to children with special needs and their family members, family-centred practice has developed substantially over the past two decades. However, there has not been until now a basic practice text for guiding professional education and skill building across diverse areas. Filling this significant gap, Partnering with Parents is a primer on family-centred practice for professionals working in children’s health and developmental services. The material in this textbook spans interdisciplinary training across key child service sectors (particularly child development, child mental health, and children’s health). The authors identify and discuss the key principles of the model as it is practiced in Canada, with a focus on working alliances, empowerment methods, and the development of social support resources. Providing examples of the application of family-centred practice in a wide range of service settings, Partnering with Parents will be useful for the social workers, nurses, psychologists, and allied health professionals who work together in complex service situations.

Contemporary Issues in Early Childhood

Contemporary Issues in Early Childhood
Author: Children's Issues Coalition
Publisher: Ian Randle Publishers
Total Pages: 145
Release: 2003
Genre: Action research
ISBN: 9766371288

Caribbean Childhoods: From Research to Action is an annual publication produced by the Children s Issues Coalition at the University of the West Indies, Mona. The series seeks to provide an avenue for the dissemination of research and experiences on children s health, development, behaviour and education, and to provide a forum for the discussion of these issues.

Crossing the Quality Chasm

Crossing the Quality Chasm
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 359
Release: 2001-07-19
Genre: Medical
ISBN: 0309132967

Second in a series of publications from the Institute of Medicine's Quality of Health Care in America project Today's health care providers have more research findings and more technology available to them than ever before. Yet recent reports have raised serious doubts about the quality of health care in America. Crossing the Quality Chasm makes an urgent call for fundamental change to close the quality gap. This book recommends a sweeping redesign of the American health care system and provides overarching principles for specific direction for policymakers, health care leaders, clinicians, regulators, purchasers, and others. In this comprehensive volume the committee offers: A set of performance expectations for the 21st century health care system. A set of 10 new rules to guide patient-clinician relationships. A suggested organizing framework to better align the incentives inherent in payment and accountability with improvements in quality. Key steps to promote evidence-based practice and strengthen clinical information systems. Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.

Parenting Matters

Parenting Matters
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 525
Release: 2016-11-21
Genre: Social Science
ISBN: 0309388570

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Family-Centered Care in Childhood Disability

Family-Centered Care in Childhood Disability
Author: Livio Provenzi
Publisher: Springer
Total Pages: 0
Release: 2024-08-06
Genre: Medical
ISBN: 9783031342547

The book presents a comprehensive and well-organized overview of the family-centered care approaches for child disability, and provides multi-professional contributions from the fields of psychiatry, psychology, and rehabilitation science. The volume is divided into three main sections, that highlights the theoretical basis, research evidence, and clinical implications of the family-centered approach to child care. Active engagement of parents in the therapeutic and rehabilitative journey of their children with disability is key to the success of early interventions and their long-term benefits. Research and clinical experiences in healthcare services around the world suggest that early supportive programs may promote children’s development at its best, with both clinical benefits and economic advantages for the healthcare system. This volume will appeal to a wide readership, from clinicians and researchers in child disability and rehabilitation, to students and professionals in the fields of psychiatry, psychology, and rehabilitation science.

Handbook of Early Childhood Special Education

Handbook of Early Childhood Special Education
Author: Brian Reichow
Publisher: Springer
Total Pages: 589
Release: 2016-06-21
Genre: Psychology
ISBN: 3319284924

This handbook discusses early childhood special education (ECSE), with particular focus on evidence-based practices. Coverage spans core intervention areas in ECSE, such as literacy, motor skills, and social development as well as diverse contexts for services, including speech-language pathology, physical therapy, and pediatrics. Contributors offer strategies for planning, implementing, modifying, and adapting interventions to help young learners extend their benefits into the higher grades. Concluding chapters emphasize the importance of research in driving evidence-based practices (EBP). Topics featured in the Handbook include: Family-centered practices in early childhood intervention. The application of Response to Intervention (RtI) in young children with identified disabilities. Motor skills acquisition for young children with disabilities. Implementing evidence-based practices in ECSE classrooms. · Cultural, ethnic, and linguistic implications for ECSE. The Handbook of Early Childhood Special Education is a must-have resource for researchers, professors, upper-level undergraduate and graduate students, clinicians, and practitioners across such disciplines as child and school psychology, early childhood education, clinical social work, speech and physical therapy, developmental psychology, behavior therapy, and public health.

Family Consequences of Children’s Disabilities

Family Consequences of Children’s Disabilities
Author: Denis P. Hogan
Publisher: Russell Sage Foundation
Total Pages: 132
Release: 2012-04-01
Genre: Social Science
ISBN: 1610447735

The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology