Family Caregiving in the New Normal

Family Caregiving in the New Normal
Author: Joseph E. Gaugler
Publisher: Academic Press
Total Pages: 404
Release: 2015-05-08
Genre: Psychology
ISBN: 012417129X

Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. - Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers - Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades - Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives - Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models - Examines how existing efficacious models can more effectively reach and serve individual families

Families Caring for an Aging America

Families Caring for an Aging America
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 367
Release: 2016-11-08
Genre: Medical
ISBN: 0309448093

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness

The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness
Author: Louis D. Burgio
Publisher: Oxford University Press
Total Pages: 329
Release: 2016-01-07
Genre: Psychology
ISBN: 0190455268

The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.

Bridging the Family Care Gap

Bridging the Family Care Gap
Author: Joseph E. Gaugler
Publisher: Academic Press
Total Pages: 498
Release: 2021-01-09
Genre: Psychology
ISBN: 0128138998

Bridging the Family Care Gap explores expected future shortages of family caregivers of older persons and identifies potential solutions. The book examines the sustainability and availability of care management models and whether they can be effectively scaled up to meet community needs. It identifies newly emerging policy initiatives at local, state, and federal levels. The book addresses the state of family caregiving science, dissemination and implementation of promising programs and supports, technological innovations, and other strategies to offset the family care gap. This edited volume also explores lay healthcare workers as guides, interpreters, and advocates in healthcare systems that provide continuity of contact for family caregivers. - Details threats to family caregiving-sociodemographic, chronic disease, and socioeconomic challenges - Presents solutions to the caregiving gap in a systematic, synthesized manner - Addresses the intersection of family caregiving and technology - Discusses chronic disease management to offset and reduce the need for family caregiving - Describes models of caregiver support in work settings - Reimagines the delivery of long-term services and supports with novel initiatives

Parenting for a Digital Future

Parenting for a Digital Future
Author: Sonia Livingstone
Publisher: Oxford University Press, USA
Total Pages: 273
Release: 2020
Genre: Computers
ISBN: 0190874694

"In the decades it takes to bring up a child, parents face challenges that are both helped and hindered by the fact that they are living through a period of unprecedented digital innovation. Drawing on extensive research with diverse parents, this book reveals how digital technologies give personal and political parenting struggles a distinctive character, as parents determine how to forge new territory with little precedent, or support. The book reveals the pincer movement of parenting in late modernity. Parents are both more burdened with responsibilities and charged with respecting the agency of their child-leaving much to negotiate in today's "democratic" families. The book charts how parents now often enact authority and values through digital technologies-as "screen time," games, or social media become ways of both being together and setting boundaries. The authors show how digital technologies introduce both valued opportunities and new sources of risk. To light their way, parents comb through the hazy memories of their own childhoods and look toward varied imagined futures. This results in deeply diverse parenting in the present, as parents move between embracing, resisting, or balancing the role of technology in their own and their children's lives. This book moves beyond the panicky headlines to offer a deeply researched exploration of what it means to parent in a period of significant social and technological change. Drawing on qualitative and quantitative research in the United Kingdom, the book offers conclusions and insights relevant to parents, policymakers, educators, and researchers everywhere"--

NORMAL Doesn't Live Here Anymore

NORMAL Doesn't Live Here Anymore
Author: Barb BSL. Owen
Publisher: eBookIt.com
Total Pages: 336
Release: 2013-05-22
Genre: Family & Relationships
ISBN: 1456600664

What would happen if The Unthinkable blindsided you, requiring everything be put on hold to become a full time caregiver for a loved one? At the very least, it would reshape your life. Without a survival guide, it could even destroy it.Barb Owen delivers precisely that survival guide in NORMAL Doesn "t Live Here Anymore: An Inspiring Story of Hope for Caregivers. She weaves a story, through the first two parts of the book, based on her life-changing experience as primary caregiver for her elderly parents. Following each chapter a bit of wisdom gained from Barb "s experience is summarized as a Reflection. The third part of NORMAL Doesn "t Live Here Anymore addresses the critical need for self-care for the new and seasoned caregiver alike. Specific suggestions abound for Me Time ”how to find it ”what to do with it ”and how very important it is for sustaining oneself throughout the often arduous caregiving-marathon. This truly inspiring book is one part parable, one part autobiography and all survival guide, illuminating a path for the more than 65 million caregiving Americans. SEverything hinges on your ability to care for both yourself and your loved one, says Owen. SThis maxim is of great consequence ”heed it, and you will endure. Dismiss it, and you will have trouble surviving. Take care of yourself, your loved one and keep the faith, because you "re not alone. ----- EXCERPT FROM: NORMAL Doesn "t Live Here Anymore - Chapter 21; The morning after I brought my 90-year-old Dad home from the hospital, Mom called me to say that he was not feeling at all well. My nagging intuition insisted that I visit Dad and spend some private time with him. Finding Dad awake and resting in his bed, I struggled to find my voice. Sitting beside him, I asked, SHow are you feeling this morning? SOh, I "m so-so, he sighed, as a tear rolled from his eye on to the pillow that cradled his head. SReally tired of all of this and worried about your mother. She "s having a hard time with everything. We stayed there in silence ”just being together for a few moments.Holding his hand, the heavy words finally left my mouth. SYou know, Dad, you can trust me to be sure that Mom is okay. I will take care of her, no matter what. He responded quietly, SI know. Studying and caressing my dad "s hand, I knew there was one more important conversation that the voice in my heart insisted upon. SDad, I know that this is getting to be really tough for you. If staying here becomes too hard, it "s okay to let go... During the following few weeks I watched my 89 year old Mom experience a renewed sense of purpose and increased strength as she doted on my dad and met his needs, as best she could. Some days were better than others. Most nights were difficult when Dad "s heart pain was significantly worse and his level of anxiety escalated. Often my mom would pass the hours by reading to Dad. Although her eyesight was clouding, she still managed to read the newspaper, column by column, or inspirational short stories she found in the stack of magazines beside their bed. Amazingly, dawn nearly always brought ease and comfort for them both. And so the nights and days continued ----- REFLECTION; Difficult subjects sometimes need to be discussed. You might be asked by others to deliver bad news ”news of someone "s death, a life-altering diagnosis, or even the necessity for a change in residence. Each conversation carries the potential for unleashed emotions. My advice? No matter how difficult or emotional, don "t leave words left unsaid. People, if capable of understanding, deserve information. Often, they are much stronger than we realize.Words are powerful. They carry courage, condemnation, reassurance or permission. Choose them wisely as your words may be the ones that bring freedom from pain or suffering. It "s tough, but I know you can do it and if you listen to that voice inside, you will know exactly the right time and the right words.Be Strong!

The Family Caregiver's Guide

The Family Caregiver's Guide
Author: Harriet Hodgson
Publisher: BQB Publishing
Total Pages: 211
Release: 2015-09-07
Genre: Body, Mind & Spirit
ISBN: 1608081273

Caring for a loved one at home. What’s really involved? And what does it mean for your family and future? Tens of millions of Americans have had these questions and more as they prepare for this unsettling yet necessary task. The Family Caregiver’s Guide fills in the gaps, connecting the dots between research and real life. Drawing on the author’s extensive caregiving experience, this book provides strategies to care for your loved one, inside and out, as well as for yourself—including how to use your natural skills in your new role, and which skills you may need to add. You’ll discover how to set up your home for caregiving, including a safety checklist, equipment suggestions, and words you should know. And for those days that are more than a handful, you’ll find positive affirmations, a section on facing and accepting illness, and smart steps at the end of each chapter, in case you need guidance in a hurry. Caregiving has both rewards and challenges. But through it all, you’ll discover what’s most important—that caregiving is love in action.

Bridging the Family Care Gap

Bridging the Family Care Gap
Author: Joseph E. Gaugler
Publisher: Academic Press
Total Pages: 496
Release: 2021-01-26
Genre: Psychology
ISBN: 012813898X

Bridging the Family Care Gap explores expected future shortages of family caregivers of older persons and identifies potential solutions. The book examines the sustainability and availability of care management models and whether they can be effectively scaled up to meet community needs. It identifies newly emerging policy initiatives at local, state, and federal levels. The book addresses the state of family caregiving science, dissemination and implementation of promising programs and supports, technological innovations, and other strategies to offset the family care gap. This edited volume also explores lay healthcare workers as guides, interpreters, and advocates in healthcare systems that provide continuity of contact for family caregivers. Details threats to family caregiving-sociodemographic, chronic disease, and socioeconomic challenges Presents solutions to the caregiving gap in a systematic, synthesized manner Addresses the intersection of family caregiving and technology Discusses chronic disease management to offset and reduce the need for family caregiving Describes models of caregiver support in work settings Reimagines the delivery of long-term services and supports with novel initiatives

Elder Care in Crisis

Elder Care in Crisis
Author: Emily K. Abel
Publisher: NYU Press
Total Pages: 231
Release: 2022-10-25
Genre: Family & Relationships
ISBN: 1479815381

"Drawing partly from an online support group for dementia caregivers, this book demonstrates that this country faces an elder care crisis. Our elder care system rests on the exploitation of workers, mostly women and people of color, who are paid too little to make ends meet and imposes unsustainable burdens on family members"--

Patient Safety and Quality

Patient Safety and Quality
Author: Ronda Hughes
Publisher: Department of Health and Human Services
Total Pages: 592
Release: 2008
Genre: Medical
ISBN:

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/