Family Caregiving In Chronic Illness
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Author | : National Academies of Sciences, Engineering, and Medicine |
Publisher | : National Academies Press |
Total Pages | : 367 |
Release | : 2016-11-08 |
Genre | : Medical |
ISBN | : 0309448093 |
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Author | : Ronda Hughes |
Publisher | : Department of Health and Human Services |
Total Pages | : 592 |
Release | : 2008 |
Genre | : Medical |
ISBN | : |
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Author | : David E. Biegel |
Publisher | : |
Total Pages | : 332 |
Release | : 1991 |
Genre | : |
ISBN | : 9780608012674 |
This book provides a comprehensive analysis of family caregiving for adults who are dependent because of chronic illness. Focusing on five specific diseases - Alzheimer's, cancer, chronic mental illness, heart disease and stroke - the authors present and assess existing research and practice relating to family caregiving.
Author | : Institute of Medicine |
Publisher | : National Academies Press |
Total Pages | : 316 |
Release | : 2008-08-27 |
Genre | : Medical |
ISBN | : 0309131952 |
As the first of the nation's 78 million baby boomers begin reaching age 65 in 2011, they will face a health care workforce that is too small and woefully unprepared to meet their specific health needs. Retooling for an Aging America calls for bold initiatives starting immediately to train all health care providers in the basics of geriatric care and to prepare family members and other informal caregivers, who currently receive little or no training in how to tend to their aging loved ones. The book also recommends that Medicare, Medicaid, and other health plans pay higher rates to boost recruitment and retention of geriatric specialists and care aides. Educators and health professional groups can use Retooling for an Aging America to institute or increase formal education and training in geriatrics. Consumer groups can use the book to advocate for improving the care for older adults. Health care professional and occupational groups can use it to improve the quality of health care jobs.
Author | : Elaine Wittenberg |
Publisher | : Oxford University Press, USA |
Total Pages | : 241 |
Release | : 2020-09-11 |
Genre | : Medical |
ISBN | : 0190055235 |
"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--
Author | : Mukadder Mollaoglu |
Publisher | : BoD – Books on Demand |
Total Pages | : 240 |
Release | : 2018-02-14 |
Genre | : Medical |
ISBN | : 9535137786 |
The management of chronic diseases is one of the tasks of all members of the health team, and different models need to be applied in the practice of chronic care management. One of these models is home care services. There are two main sections in this book. In the first part of the section, the concept of caregiving and care at home is explained. In the second part, the responsibilities of caregivers at home and the responsibilities of caregivers of people who have health problems that occur during different periods of life are discussed. In the second section, the problems of caregivers are also included. I would like to think that what is quoted in this book, which contains examples from different cultures of the world for home care approaches, will contribute to the development of home care services. This book is presented to all health professionals working in the field of health services as well as health politics professionals and students trained in these areas.
Author | : World Health Organization |
Publisher | : World Health Organization |
Total Pages | : 233 |
Release | : 2006 |
Genre | : Medical |
ISBN | : 9241563362 |
Although there are several gaps in understanding the many issues related to neurological disorders, we know enough to be able to shape effective policy responses to some of the most common. This book describes and discusses the increasing public health impact of common neurological disorders such as dementia, epilepsy, headache disorders, multiple sclerosis, neuroinfections, neurological disorders associated with malnutrition, pain associated with neurological disorders, Parkinson's disease, stroke and traumatic brain injuries. It provides information and advice on public health interventions that may reduce their occurrence and consequences, and offers health professionals and planners the opportunity to assess the burden caused by these disorders. The clear message that emerges is that unless immediate action is taken globally, the neurological burden is likely to become an increasingly serious and unmanageable.
Author | : Kate Washington |
Publisher | : Beacon Press |
Total Pages | : 224 |
Release | : 2021-03-16 |
Genre | : Medical |
ISBN | : 0807011754 |
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
Author | : Joanne Lynn |
Publisher | : RAND Corporation |
Total Pages | : 32 |
Release | : 2003 |
Genre | : Medical |
ISBN | : |
Self-care deficits and a slowly dwindling course to death, which usually results from frailty or dementia. Effective and reliable care for persons coming to the end of life will require changes in the organization and financing of care to match these trajectories, as well as compassionate and skillful clinicians. (Available from the publisher or libraries holding the journal.).
Author | : Carol Levine |
Publisher | : Vanderbilt University Press |
Total Pages | : 296 |
Release | : 2014-03-15 |
Genre | : Medical |
ISBN | : 0826519717 |
Living in the Land of Limbo is the first anthology of short stories and poems about family caregivers. These men and women find themselves in "limbo," as they struggle to take care of a family member or friend in the uncertain world of chronic illness. The authors explore caregivers' experiences as they deal with family conflicts, the complexities of the health care system, and the impact of their choices on their lives and the lives of others. The book includes selections devoted to caregivers of aging parents; husbands and wives; ill children; and relatives, lovers, and friends. A final section is devoted to paid caregivers and their clients. Among the conditions that form the background of the selections are dementia, HIV/AIDS, mental illness, multiple sclerosis, and pediatric cancer. Many of the authors are well-known poets and writers, but others have not been published in mainstream media. They represent a range of cultural backgrounds. Although their works approach caregiving in very different ways, the authors share a commitment to emotional truth, unvarnished by societal ideals of what caregivers should feel and do. These stories and poems paint profoundly moving and revealing portraits of family caregivers.