Families Raising Disabled Children
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Author | : Robert A. Naseef |
Publisher | : Brookes Publishing Company |
Total Pages | : 324 |
Release | : 2001 |
Genre | : Family & Relationships |
ISBN | : |
Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.
Author | : National Academies of Sciences, Engineering, and Medicine |
Publisher | : National Academies Press |
Total Pages | : 525 |
Release | : 2016-11-21 |
Genre | : Social Science |
ISBN | : 0309388570 |
Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.
Author | : Denis P. Hogan |
Publisher | : Russell Sage Foundation |
Total Pages | : 132 |
Release | : 2012-04-01 |
Genre | : Social Science |
ISBN | : 1610447735 |
The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology
Author | : Dan Goodley |
Publisher | : Bloomsbury Publishing |
Total Pages | : 206 |
Release | : 2005-10-30 |
Genre | : Psychology |
ISBN | : 1350312142 |
Disability is not just the physical, sensory or intellectual impairments a person has, but the exclusion from society they face as a result. Organisations for disabled people are a growing voice in challenging this exclusion and anti-discrimination legislation is helping to change the structures in society that have contributed to it. This book examines the discipline of psychology in this regard. It argues that psychology has tended to ignore the socio-cultural aspects of disability and treat disabled people as objects rather than arbiters of psychological intervention. Bringing together disabled and non-disabled researchers and psychologists, this book proposes ideas for an enabling psychological theory and practice, and addresses questions such as: -"How can we support the inclusion of disabled children?" - "Can therapy enable rather than pathologise?” - "What can be learnt from the experience of disabled psychologists?" "How can psychology contribute to social models of disability?” In examining these issues, this volume challenges the reader to reconsider the relationship between disability studies and psychology and to do so in ways that contribute to the emancipation - rather than the exclusion - of disabled people. A key text for students on relevant courses within disability studies and psychology degrees, this book is also an important resource for those who study or work in the areas of healthcare studies, nursing, sociology and social work. Dan Goodley is a Reader in disability studies, University of Sheffield, with research interests in disability theory, activism and methodology. Rebecca Lawthom is Principal Lecturer in psychology, Manchester Metropolitan University and a member of the Research Institute for Health and Social Change. Her research interests are in disability, community and feminist psychology.
Author | : Andrew Wilson |
Publisher | : Crossway |
Total Pages | : 128 |
Release | : 2016-06-14 |
Genre | : Religion |
ISBN | : 1433551020 |
Sometimes life throws you a curveball. Andrew and Rachel Wilson know what it means to live a life they never expected. As the parents of two children with special needs, their story mingles deep pain with deep joy in unexpected places. With raw honesty, they share about the challenges they face on a daily basis—all the while teaching what it means to weep, worship, wait, and hope in the Lord. Offering encouragement rooted in God's Word, this book will help you cling to Jesus and fight for joy when faced with a life you never expected.
Author | : Julie Keon |
Publisher | : |
Total Pages | : |
Release | : 2015-04 |
Genre | : Mothers of children with disabilities |
ISBN | : 9780973466317 |
Author | : Sarah Walton |
Publisher | : The Good Book Company |
Total Pages | : 220 |
Release | : 2017-04-01 |
Genre | : Religion |
ISBN | : 1784980749 |
Thirty biblical meditations for women that offer hope in times of suffering. Thirty biblical meditations for women that offer hope in times of suffering. Hurt is real. But so is hope. Kristen and Sarah have walked through, and are walking in, difficult times. So these thirty biblical reflections are full of realism about the hurts of life-yet overwhelmingly full of hope about the God who gives life. This book will gently encourage and greatly help any woman who is struggling with suffering-whether physical, emotional or psychological, and whether for a season or for longer. It is a book to buy for yourself, or to buy for a member of your church or friend. For anyone who is hurting, this book will give hope, not just for life beyond the suffering, but for life in the suffering. Each chapter contains a biblical reflection, with questions and prayers, and a space for journaling.
Author | : Gary Chapman |
Publisher | : Moody Publishers |
Total Pages | : 206 |
Release | : 2019-08-06 |
Genre | : Family & Relationships |
ISBN | : 0802496865 |
"With a frank and honest observation on how disability can unravel family unity, this book inspires and equips us to live out our faith as we interact with those we love." -Joni Eareckson Tada, founder & CEO, Joni and Friends Between the worry, the doctor’s appointments, and the thousand small challenges of everyday life, it’s easy to feel overwhelmed and exhausted. The idea of showing abundant love to every member of your family can feel like a daunting task. Jolene Philo has been there. And in this wise, warm, practical guide, she and Dr. Gary Chapman show you how the 5 love languages can help strengthen your marriage and family life—whatever your needs. Sharing dozens of stories from parents of children with special needs children, they teach you how to: protect your marriage amidst the stress discover and speak the love language of your child—even if they’re nonverbal accommodate the love languages for children with special needs and disabilities show love to every member of your family when you have limited time, money, and energy Having a special needs child shouldn’t mean sacrificing a full family life. Learn to share love abundantly no matter your circumstances.
Author | : Kelly Mantoan |
Publisher | : Our Sunday Visitor |
Total Pages | : 126 |
Release | : 2021-08-26 |
Genre | : Family & Relationships |
ISBN | : 168192417X |
“Every day is joyful. Every day is a gift. Every day I can thank God from the bottom of my heart.” Kelly Mantoan wasn’t always able to say these words. As a mother of five children, two with profound disabilities, all her energy and attention was focused on her children’s diagnoses and round the clock care. Drained and struggling, Kelly wondered if she had what it took to be the kind of parent they needed. She craved support as a Catholic mother with special-needs children, but felt lost and alone when she tried to rely on secular support groups or well-meaning friends and family who had no experience in the special-needs community. If you can relate to Kelly’s story, Better Than OK: Finding Joy with Special- Needs Children is the hope-filled book you need today. In her down-to-earth way, Kelly shares the steps parents need to take to shift their focus away from the negatives of a diagnosis and towards acceptance, renewed faith, and joy. This book is a must-read for special-needs parents, but I would recommend it to any parent who needs a dose of wisdom and encouragement. — Jen Fulwiler, bestselling author and standup comic Sometimes special-needs parents need practical tips. Sometimes we need prayers. And sometimes we just need to know that we're not alone. ... This engaging new book is a true gift to the parents of kids with special needs. — Bonnie L. Engstrom, mom of eight and author of 61 Minutes to a Miracle This book is a gem for all special-needs parents, by turns funny, poignant, and always honest. It's the book I wish my parents could've had when I was diagnosed with cystic fibrosis in the 90s. — Emily M. DeArdo, author of Living Memento Mori: My Journey Along the Way of the Cross A truly important book for Catholic parents of special-needs children, and for family members, friends, and members of parish communities who want to better understand and more effectively support them. — Kendra Tierney, author of The Catholic All Year Compendium ABOUT THE AUTHOR Kelly Mantoan is the founder of Accepting the Gift, an online apostolate that provides resources and support to Catholic special-needs parents. She also blogs at This Ain’t the Lyceum about homeschooling, special-needs parenting, and Catholic family life. She enjoys creating useful posts and resources for her followers and speaking to groups about how God’s plan for our lives is often much better than anything we can imagine.
Author | : Dr. Stuart Shanker |
Publisher | : Penguin |
Total Pages | : 284 |
Release | : 2016-06-21 |
Genre | : Family & Relationships |
ISBN | : 0698158881 |
There’s no such thing as a bad kid. That’s what a lifetime of experience has taught Dr. Stuart Shanker. No matter how difficult, out of control, distracted, or exhausted a child might seem, there’s a way forward: self-regulation. Overturning decades of conventional wisdom, this radical new technique allows children and the adults who care for them to regain their composure and peace of mind. Self-Reg is a groundbreaking book that presents an entirely new understanding of your child’s emotions and behavior and a practical guide for parents to help their kids engage calmly and successfully in learning and life. Grounded in decades of research and working with children and parents by Dr. Shanker, Self-Reg realigns the power of the parent-child relationship for positive change. Self-regulation is the nervous system’s way of responding to stress. We are seeing a generation of children and teens with excessively high levels of stress, and, as a result, an explosion of emotional, social, learning, behavior, and physical health problems. But few parents recognize the “hidden stressors” that their children are struggling with: physiological as well as social and emotional. An entrenched view of child rearing sees our children as lacking self-control or willpower, but the real basis for these problems lies in excessive stress. Self-regulation can dramatically improve a child’s mood, attention, and concentration. It can help children to feel empathy, and to cultivate the sorts of virtues that most parents know are vital for their child’s long-term wellbeing. Self-regulation brings about profound and lasting transformation that continues throughout life. Dr. Shanker translates decades of his findings from working with children into practical, prescriptive advice for parents, giving them concrete ways to develop their self-regulation skills and teach their children to do the same and engage successfully with life for optimal learning, social, and emotional growth.