Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age

Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 179
Release: 2009-11-17
Genre: Computers
ISBN: 0309147824

As digital technologies are expanding the power and reach of research, they are also raising complex issues. These include complications in ensuring the validity of research data; standards that do not keep pace with the high rate of innovation; restrictions on data sharing that reduce the ability of researchers to verify results and build on previous research; and huge increases in the amount of data being generated, creating severe challenges in preserving that data for long-term use. Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age examines the consequences of the changes affecting research data with respect to three issues - integrity, accessibility, and stewardship-and finds a need for a new approach to the design and the management of research projects. The report recommends that all researchers receive appropriate training in the management of research data, and calls on researchers to make all research data, methods, and other information underlying results publicly accessible in a timely manner. The book also sees the stewardship of research data as a critical long-term task for the research enterprise and its stakeholders. Individual researchers, research institutions, research sponsors, professional societies, and journals involved in scientific, engineering, and medical research will find this book an essential guide to the principles affecting research data in the digital age.

Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age

Ensuring the Integrity, Accessibility, and Stewardship of Research Data in the Digital Age
Author: National Academy of Sciences (U.S.)
Publisher:
Total Pages: 162
Release: 2009
Genre: Communication in science
ISBN: 9780309136808

The digital era provides researchers with greatly enhanced ability to analyze and share data, but a new report warns that technology also makes it easier for data to be distorted. The report, from the National Academy of Sciences, National Academy of Engineering, and Institute of Medicine, recommends that research institutions ensure that every investigator receives appropriate training on managing data responsibly. Further, the report urges these institutions, along with professional societies, journals and research sponsors, to develop standards for ensuring the integrity of research data and specific data-management guidelines to account for new technologies.

Fundamentals of Clinical Data Science

Fundamentals of Clinical Data Science
Author: Pieter Kubben
Publisher: Springer
Total Pages: 219
Release: 2018-12-21
Genre: Medical
ISBN: 3319997130

This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics covered in the first section on data collection include: data sources, data at scale (big data), data stewardship (FAIR data) and related privacy concerns. Aspects of predictive modelling using techniques such as classification, regression or clustering, and prediction model validation will be covered in the second section. The third section covers aspects of (mobile) clinical decision support systems, operational excellence and value-based healthcare. Fundamentals of Clinical Data Science is an essential resource for healthcare professionals and IT consultants intending to develop and refine their skills in personalized medicine, using solutions based on large datasets from electronic health records or telemonitoring programmes. The book’s promise is “no math, no code”and will explain the topics in a style that is optimized for a healthcare audience.

Fostering Integrity in Research

Fostering Integrity in Research
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 327
Release: 2018-01-13
Genre: Science
ISBN: 0309391253

The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means that the organizations in which research is conducted encourage those involved to exemplify these values in every step of the research process. Understanding the dynamics that support â€" or distort â€" practices that uphold the integrity of research by all participants ensures that the research enterprise advances knowledge. The 1992 report Responsible Science: Ensuring the Integrity of the Research Process evaluated issues related to scientific responsibility and the conduct of research. It provided a valuable service in describing and analyzing a very complicated set of issues, and has served as a crucial basis for thinking about research integrity for more than two decades. However, as experience has accumulated with various forms of research misconduct, detrimental research practices, and other forms of misconduct, as subsequent empirical research has revealed more about the nature of scientific misconduct, and because technological and social changes have altered the environment in which science is conducted, it is clear that the framework established more than two decades ago needs to be updated. Responsible Science served as a valuable benchmark to set the context for this most recent analysis and to help guide the committee's thought process. Fostering Integrity in Research identifies best practices in research and recommends practical options for discouraging and addressing research misconduct and detrimental research practices.

On Being a Scientist

On Being a Scientist
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 83
Release: 2009-03-24
Genre: Education
ISBN: 0309141354

The scientific research enterprise is built on a foundation of trust. Scientists trust that the results reported by others are valid. Society trusts that the results of research reflect an honest attempt by scientists to describe the world accurately and without bias. But this trust will endure only if the scientific community devotes itself to exemplifying and transmitting the values associated with ethical scientific conduct. On Being a Scientist was designed to supplement the informal lessons in ethics provided by research supervisors and mentors. The book describes the ethical foundations of scientific practices and some of the personal and professional issues that researchers encounter in their work. It applies to all forms of research-whether in academic, industrial, or governmental settings-and to all scientific disciplines. This third edition of On Being a Scientist reflects developments since the publication of the original edition in 1989 and a second edition in 1995. A continuing feature of this edition is the inclusion of a number of hypothetical scenarios offering guidance in thinking about and discussing these scenarios. On Being a Scientist is aimed primarily at graduate students and beginning researchers, but its lessons apply to all scientists at all stages of their scientific careers.

The Fourth Industrial Revolution

The Fourth Industrial Revolution
Author: Klaus Schwab
Publisher: Currency
Total Pages: 192
Release: 2017-01-03
Genre: Business & Economics
ISBN: 1524758876

World-renowned economist Klaus Schwab, Founder and Executive Chairman of the World Economic Forum, explains that we have an opportunity to shape the fourth industrial revolu­tion, which will fundamentally alter how we live and work. Schwab argues that this revolution is different in scale, scope and complexity from any that have come before. Characterized by a range of new technologies that are fusing the physical, digital and biological worlds, the developments are affecting all disciplines, economies, industries and governments, and even challenging ideas about what it means to be human. Artificial intelligence is already all around us, from supercomputers, drones and virtual assistants to 3D printing, DNA sequencing, smart thermostats, wear­able sensors and microchips smaller than a grain of sand. But this is just the beginning: nanomaterials 200 times stronger than steel and a million times thinner than a strand of hair and the first transplant of a 3D printed liver are already in development. Imagine “smart factories” in which global systems of manu­facturing are coordinated virtually, or implantable mobile phones made of biosynthetic materials. The fourth industrial revolution, says Schwab, is more significant, and its ramifications more profound, than in any prior period of human history. He outlines the key technologies driving this revolution and discusses the major impacts expected on government, business, civil society and individu­als. Schwab also offers bold ideas on how to harness these changes and shape a better future—one in which technology empowers people rather than replaces them; progress serves society rather than disrupts it; and in which innovators respect moral and ethical boundaries rather than cross them. We all have the opportunity to contribute to developing new frame­works that advance progress.

Curating Research Data

Curating Research Data
Author: Lisa R. Johnston
Publisher:
Total Pages: 285
Release: 2016-11-01
Genre: Data curation in libraries
ISBN: 9780838988589

Data are becoming the proverbial coin of the digital realm: a research commodity that might purchase reputation credit in a disciplinary culture of data sharing, or buy transparency when faced with funding agency mandates or publisher scrutiny. Unlike most monetary systems, however, digital data can flow in all too great an abundance. Not only does this currency actually grow on trees, but it comes from animals, books, thoughts, and each of us! And that is what makes data curation so essential. The abundance of digital research data challenges library and information science professionals to harness this flow of information streaming from research discovery and scholarly pursuit and preserve the unique evidence for future use. Volume One of Curating Research Data explores the variety of reasons, motivations, and drivers for why data curation services are needed in the context of academic and disciplinary data repository efforts. Twelve chapters, divided into three parts, take an in-depth look at the complex practice of data curation as it emerges around us. Part I sets the stage for data curation by describing current policies, data sharing cultures, and collaborative efforts currently underway that impact potential services. Part II brings several key issues, such as cost recovery and marketing strategy, into focus for practitioners when considering how to put data curation services in action. Finally, Part III describes the full lifecycle of data by examining the ethical and practical reuse issues that data curation practitioners must consider as we strive to prepare data for the future. Digital data is ubiquitous and rapidly reshaping how scholarship progresses now and into the future. The information expertise of librarians can help ensure the resiliency of digital data, and the information it represents, by addressing how the meaning, integrity, and provenance of digital data generated by researchers today will be captured and conveyed to future researchers.

Responsible Conduct of Research

Responsible Conduct of Research
Author: Adil E. Shamoo
Publisher: Oxford University Press
Total Pages: 441
Release: 2009-02-12
Genre: Medical
ISBN: 0199709602

Recent scandals and controversies, such as data fabrication in federally funded science, data manipulation and distortion in private industry, and human embryonic stem cell research, illustrate the importance of ethics in science. Responsible Conduct of Research, now in a completely updated second edition, provides an introduction to the social, ethical, and legal issues facing scientists today.

Beyond the HIPAA Privacy Rule

Beyond the HIPAA Privacy Rule
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 334
Release: 2009-03-24
Genre: Computers
ISBN: 0309124999

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.