Disability, Health, Law, and Bioethics

Disability, Health, Law, and Bioethics
Author: I. Glenn Cohen
Publisher: Cambridge University Press
Total Pages: 313
Release: 2020-04-23
Genre: Law
ISBN: 1108485979

Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.

The Disability Bioethics Reader

The Disability Bioethics Reader
Author: Joel Michael Reynolds
Publisher: Taylor & Francis
Total Pages: 543
Release: 2022-05-30
Genre: Philosophy
ISBN: 1000587215

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.

Disability Bioethics

Disability Bioethics
Author: Jackie Leach Scully
Publisher: Rowman & Littlefield
Total Pages: 220
Release: 2008
Genre: Bioethics
ISBN: 9780742551220

Jackie Leach Scully argues that bioethics cannot avoid the task of considering the moral meaning of disability in humans - beyond simply regulating reproductive choices or new areas of biomedical research. By focusing on the experiential and empirical reality of impairment, and drawing on recent work in disability studies, Scully brings new attention to complex ethical questions surrounding disability. Impairment is variously considered as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. In this way, disability is joined to the general late-twentieth century trend of attending to difference as a significant and central axis of subjectivity and social life.

Bioethics and Disability

Bioethics and Disability
Author: Alicia Ouellette
Publisher: Cambridge University Press
Total Pages: 387
Release: 2011-04-25
Genre: Business & Economics
ISBN: 0521110300

This book provides the tools for understanding the concerns, fears and biases people with disabilities and bioethicists have.

Disability, Difference, Discrimination

Disability, Difference, Discrimination
Author: Anita Silvers
Publisher: Rowman & Littlefield
Total Pages: 358
Release: 1998
Genre: Law
ISBN: 9780847692231

How should we respond to individuals with disabilities? What does it mean to be disabled? Over fifty million Americans, from neonates to the fragile elderly, are disabled. Some people say they have the right to full social participation, while others repudiate such claims as delusive or dangerous. In this compelling book, three experts in ethics, medicine, and the law address pressing disability questions in bioethics and public policy. Anita Silvers, David Wasserman, and Mary B. Mahowald test important theories of justice by bringing them to bear on subjects of concern in a wide variety of disciplines dealing with disability. They do so in the light of recent advances in feminist, minority, and cultural studies, and of the groundbreaking Americans with Disabilities Act. Visit our website for sample chapters!

The Bioethics of Enhancement

The Bioethics of Enhancement
Author: Melinda Hall
Publisher: Lexington Books
Total Pages: 193
Release: 2016-12-07
Genre: Philosophy
ISBN: 1498533493

In a critical intervention into the bioethics debate over human enhancement, philosopher Melinda Hall tackles the claim that the expansion and development of human capacities is a moral obligation. Hall draws on French philosopher Michel Foucault to reveal and challenge the ways disability is central to the conversation. The Bioethics of Enhancement includes a close reading and analysis of the last century of enhancement thinking and contemporary transhumanist thinkers, the strongest promoters of the obligation to pursue enhancement technology. With specific attention to the work of bioethicists Nick Bostrom and Julian Savulescu, the book challenges the rhetoric and strategies of enhancement thinking. These include the desire to transcend the body and decide who should live in future generations through emerging technologies such as genetic selection. Hall provides new analyses rethinking both the philosophy of enhancement and disability, arguing that enhancement should be a matter of social and political interventions, not genetic and biological interventions. Hall concludes that human vulnerability and difference should be cherished rather than extinguished. This book will be of interest to academics working in bioethics and disability studies, along with those working in Continental philosophy (especially on Foucault).

Disability Bioethics

Disability Bioethics
Author: Jackie Leach Scully, director, Disability Innovation Institute, University of New South Wales
Publisher: Rowman & Littlefield Publishers
Total Pages: 213
Release: 2008-08-15
Genre: Philosophy
ISBN: 0742577090

This book reconceives disability as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. The author brings new attention to complex ethical questions surrounding disability, looking at not only the biomedical understanding of impairment, but also its cultural representations and social organization.

Disability, Health, Law, and Bioethics

Disability, Health, Law, and Bioethics
Author: I. Glenn Cohen
Publisher: Cambridge University Press
Total Pages: 313
Release: 2020-04-23
Genre: Law
ISBN: 1316997561

Historically and across societies people with disabilities have been stigmatized and excluded from social opportunities on a variety of culturally specific grounds. In this collection, the authors explore the impact that the philosophical framing of disability can have on public policy questions, in the clinic, in the courtroom, and elsewhere. They examine the implications of this understanding for legal and policy approaches to disability, strategies for allocating and accessing health care, the implementation of the Americans with Disabilities Act, health care rights, and other legal tools designed to address discrimination. This volume should be read by anyone seeking a balanced view of disability and an understanding of the connection between the framing of disability and policies that have a real-world impact on individuals.

Literary Bioethics

Literary Bioethics
Author: Maren Tova Linett
Publisher: NYU Press
Total Pages: 222
Release: 2020-07-14
Genre: Literary Criticism
ISBN: 1479801267

Uses literature to understand and remake our ethics regarding nonhuman animals, old human beings, disabled human beings, and cloned posthumans Literary Bioethics argues for literature as an untapped and essential site for the exploration of bioethics. Novels, Maren Tova Linett argues, present vividly imagined worlds in which certain values hold sway, casting new light onto those values; and the more plausible and well rendered readers find these imagined worlds, the more thoroughly we can evaluate the justice of those values. In an innovative set of readings, Linett thinks through the ethics of animal experimentation in H.G. Wells’s The Island of Doctor Moreau, explores the elimination of aging in Aldous Huxley’s Brave New World, considers the valuation of disabled lives in Flannery O’Connor’s The Violent Bear It Away, and questions the principles of humane farming through reading Kazuo Ishiguro’s Never Let Me Go. By analyzing novels published at widely spaced intervals over the span of a century, Linett offers snapshots of how we confront questions of value. In some cases the fictions are swayed by dominant devaluations of nonnormative or nonhuman lives, while in other cases they confirm the value of such lives by resisting instrumental views of their worth—views that influence, explicitly or implicitly, many contemporary bioethical discussions, especially about the value of disabled and nonhuman lives. Literary Bioethics grapples with the most fundamental questions of how we value different kinds of lives, and questions what those in power ought to be permitted to do with those lives as we gain unprecedented levels of technological prowess.

The Life Worth Living

The Life Worth Living
Author: Joel Michael Reynolds
Publisher: U of Minnesota Press
Total Pages: 181
Release: 2022-05-17
Genre: Philosophy
ISBN: 1452961603

A philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: “let there be a law that no deformed child shall live.” This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.