Dementia as Social Experience

Dementia as Social Experience
Author: Gaynor Macdonald
Publisher: Routledge
Total Pages: 329
Release: 2018-07-26
Genre: Social Science
ISBN: 1351241796

A diagnosis of dementia changes the ways people engage with each other – for those living with dementia, as well their families, caregivers, friends, health professionals, neighbours, shopkeepers and the community. Medical understandings, necessary as they are, provide no insights into how we may all live good lives with dementia. This innovative volume brings together an interdisciplinary group of researchers and practitioners to focus on dementia as lived experience. It foregrounds dementia’s social, moral, political and economic dimensions, investigating the challenges of reframing the dementia experience for all involved. Part I critiques the stigmas, the negativity, language and fears often associated with a dementia diagnosis, challenging debilitating representations and examining ways to tackle these. Part II examines proactive practices that can support better long-term outcomes for those living with dementia. Part III looks at the relational aspects of dementia care, acknowledging and going beyond the notion of person-centred care. Collectively, these contributions highlight the social and relational change required to enhance life for those with dementia and those who care for them. Engaging in a critical conversation around personhood and social value, this book examines the wider social contexts within which dementia care takes place. It calls for social change, and looks for inspiration to the growing movement for relational care and the caring society. Dementia as Social Experience is important reading for all those people who, in various ways, are living with dementia, as well as for those working in this area as clinicians, researcher and carers.

Reducing the Impact of Dementia in America

Reducing the Impact of Dementia in America
Author: National Academies of Sciences Engineering and Medicine
Publisher:
Total Pages:
Release: 2022-04-26
Genre:
ISBN: 9780309495035

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.

When I'm 64

When I'm 64
Author: National Research Council
Publisher: National Academies Press
Total Pages: 280
Release: 2006-02-13
Genre: Social Science
ISBN: 0309164915

By 2030 there will be about 70 million people in the United States who are older than 64. Approximately 26 percent of these will be racial and ethnic minorities. Overall, the older population will be more diverse and better educated than their earlier cohorts. The range of late-life outcomes is very dramatic with old age being a significantly different experience for financially secure and well-educated people than for poor and uneducated people. The early mission of behavioral science research focused on identifying problems of older adults, such as isolation, caregiving, and dementia. Today, the field of gerontology is more interdisciplinary. When I'm 64 examines how individual and social behavior play a role in understanding diverse outcomes in old age. It also explores the implications of an aging workforce on the economy. The book recommends that the National Institute on Aging focus its research support in social, personality, and life-span psychology in four areas: motivation and behavioral change; socioemotional influences on decision-making; the influence of social engagement on cognition; and the effects of stereotypes on self and others. When I'm 64 is a useful resource for policymakers, researchers and medical professionals.

Dementia and Social Work Practice

Dementia and Social Work Practice
Author: Carole B. Cox, PhD
Publisher: Springer Publishing Company
Total Pages: 457
Release: 2007-04-15
Genre: Social Science
ISBN: 0826101089

"Practical coverage of driving, day care, support groups, and respite is particularly welcome. This is a good book to have available, not just for social work faculty and students, but also for those in the health sciences, psychology, and sociology. It will be a useful resource for professionals coping with the increasing problems for family and community that an aging population and the epidemic of Alzheimer's disease bring with them....Recommended. Lower-level undergraduate through professionals/practitioners."--Choice Beyond the immediate and devastating effects dementia can have on individuals and their quality of life are the strains that are placed on the families, caregivers, and communities that support them. Social workers are in a unique position to address all these issues at the same time that they provide care for individuals with dementia. To facilitate the entrance of social workers into this area of care, Carol B. Cox has edited a volume of expert articles on the biological, psychological, and social aspects of dementia. . Readers will learn the latest assessment instruments, as well as how to distinguish between Alzheimer's and non-Alzheimer's dementias. Intervention strategies for every stage of dementia are presented. The effects of culture and diversity on the treatment of persons with dementia are examined, including examples of successful programs from several countries. The benefits and drawbacks of adult day services, community care, and residential care are discussed. Finally, a discussion of the legal, financial, and psychological stresses faced by caregivers of those with dementia rounds out this much needed text.

Life at Home for People with a Dementia

Life at Home for People with a Dementia
Author: Ruth Bartlett
Publisher: Routledge
Total Pages: 172
Release: 2018-06-14
Genre: Medical
ISBN: 1351619691

Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.

Social Research Methods in Dementia Studies

Social Research Methods in Dementia Studies
Author: John Keady
Publisher: Routledge
Total Pages: 399
Release: 2017-10-06
Genre: Social Science
ISBN: 1315517477

Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linköping University in Norrköping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.

Forgetting Items

Forgetting Items
Author: Baptiste Brossard
Publisher: Indiana University Press
Total Pages: 122
Release: 2019-07-31
Genre: Social Science
ISBN: 0253045002

A book that’s “in the upper echelons of social dementia research . . . an entertaining and revelatory contribution to the field” (Symbolic Interaction). Alzheimer’s disease has not only profound medical consequences for the individual experiencing it but a life-changing impact on those around them. From the moment a person is suspected to be suffering from Alzheimer’s or another form of dementia, the interactions they encounter progressively change. Forgetting Items focuses on that social experience of Alzheimer’s, delineating the ways disease symptoms manifest and are understood through the interactions between patients and the people around them. Mapping out those interactions takes readers through the offices of geriatricians, into patients’ narratives and interviews with caregivers, down the corridors of nursing homes, and into the discourses shaping public policies and media coverage. Revealing the everyday experience of Alzheimer’s helps us better understand the depth of its impact and points us toward more knowledgeable, holistic ways to help treat the disease. “Considers the social aspect of dementia by considering how symptoms are expressed by the individual and understood/interpreted by those close to them. The author’s goal is to help us understand common experiences associated with dementia and ways to interpret those experiences through the lens of sociology.” —ISCHP (International Society of Critical Health Psychology)

Broadening the dementia debate

Broadening the dementia debate
Author: Bartlett, Ruth
Publisher: Policy Press
Total Pages: 169
Release: 2010-06-01
Genre: Social Science
ISBN: 1847428584

Dementia has been widely debated from the perspectives of biomedicine and social psychology. This book broadens the debate to consider the experiences of men and women with dementia from a sociopolitical perspective. It brings to the fore the concept of social citizenship, exploring what it means within the context of dementia and using it to re-examine the issue of rights, status(es), and participation. Most importantly, the book offers fresh and practical insights into how a citizenship framework can be applied in practice. It will be of interest to health and social care professionals, policy makers, academics and researchers and people with dementia and family carers may find it revitalising.

Ageing, Dementia and the Social Mind

Ageing, Dementia and the Social Mind
Author: Paul Higgs
Publisher: John Wiley & Sons
Total Pages: 168
Release: 2017-09-05
Genre: Social Science
ISBN: 1119397871

A groundbreaking exploration of the sociology of dementia — with contributions from distinguished international scholars and practitioners. Organised around the four themes of personhood, care, social representations and social differentiation Provides a critical look at dementia and demonstrates how sociology and other disciplines can help us understand its social context as well as the challenges it poses Contributing authors explore the social terrain, responding in part, to Paul Higgs’ and Chris Gilleard’s highly influential work on ageing Breaks new ground in giving specific attention to the social and cultural dimensions of responses to dementia

Dementia Studies

Dementia Studies
Author: Anthea Innes
Publisher: SAGE
Total Pages: 209
Release: 2009-03-05
Genre: Social Science
ISBN: 0857026658

What is dementia? How should we organize dementia care? This comprehensive book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care. The book: • provides clarity on the gap between the utopian aspirations of care and the reality of care • opens up a series of questions about knowledge and treatment of dementia • argues for a transition from positions that place emphasis upon the individual or particular care services to the social, cultural and economic context Lively, informative and challenging, the book will be of interest to students of nursing, sociology of health & illness, social work and social gerontology. Anthea Innes teaches at the Dementia Services Development Centre, University of Stirling