Unforgotten

Unforgotten
Author: Bianca Brijnath
Publisher: Berghahn Books
Total Pages: 239
Release: 2014-07-01
Genre: Social Science
ISBN: 1782383557

As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.

Dementia Studies

Dementia Studies
Author: Anthea Innes
Publisher: SAGE
Total Pages: 209
Release: 2009-03-05
Genre: Social Science
ISBN: 0857026658

What is dementia? How should we organize dementia care? This comprehensive book critically examines the main approaches to understanding dementia (bio-medical, social-psychological and socio-gerontological) and the main principles and ideologies of care. The book: • provides clarity on the gap between the utopian aspirations of care and the reality of care • opens up a series of questions about knowledge and treatment of dementia • argues for a transition from positions that place emphasis upon the individual or particular care services to the social, cultural and economic context Lively, informative and challenging, the book will be of interest to students of nursing, sociology of health & illness, social work and social gerontology. Anthea Innes teaches at the Dementia Services Development Centre, University of Stirling

On Vanishing

On Vanishing
Author: Lynn Casteel Harper
Publisher: Catapult
Total Pages: 126
Release: 2020-04-14
Genre: Social Science
ISBN: 1948226294

A New York Times Book Review Editors’ Choice An essential book for those coping with Alzheimer’s and other cognitive disorders that “reframe[s] our understanding of dementia with sensitivity and accuracy . . . to grant better futures to our loved ones and ourselves” (The New York Times). An estimated fifty million people in the world suffer from dementia. Diseases such as Alzheimer's erase parts of one's memory but are also often said to erase the self. People don't simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging, addressing not only the indignities caused by the condition but also by the rhetoric surrounding it. Harper asks essential questions about the nature of our outsized fear of dementia, the stigma this fear may create, and what it might mean for us all to try to “vanish well.” Weaving together personal stories with theology, history, philosophy, literature, and science, Harper confronts our elemental fears of disappearance and death, drawing on her own experiences with people with dementia both in the American healthcare system and within her own family. In the course of unpacking her own stories and encounters—of leading a prayer group on a dementia unit; of meeting individuals dismissed as “already gone” and finding them still possessed of complex, vital inner lives; of witnessing her grandfather’s final years with Alzheimer’s and discovering her own heightened genetic risk of succumbing to the disease—Harper engages in an exploration of dementia that is unlike anything written before on the subject. A rich and startling work of nonfiction, On Vanishing reveals cognitive change as it truly is, an essential aspect of what it means to be mortal.

Language in Dementia

Language in Dementia
Author: Louise Cummings
Publisher: Cambridge University Press
Total Pages: 355
Release: 2020-10
Genre: Language Arts & Disciplines
ISBN: 1108476317

Using linguistic data, this book examines language and communication in dementias and their clinical treatment by language pathologists.

The Politics of Dementia

The Politics of Dementia
Author: Irmela Marei Krüger-Fürhoff
Publisher: Walter de Gruyter GmbH & Co KG
Total Pages: 246
Release: 2021-11-22
Genre: Social Science
ISBN: 3110713705

Memory loss is not always viewed purely as a contingent neurobiological process present in an ageing population; rather, it is frequently related to larger societal issues and political debates. This edited volume examines how different media and genres – novels, auto/biographical writings, documentary as well as fictional films and graphic memoirs – represent dementia for the sake of critical explorations of memory, trauma and contested truths. In ten analytical chapters and one piece of graphic art, the contributors examine the ways in which what might seem to be the individual, ahistorical diseases of dementia are used in contemporary cultural texts to represent and respond to violent historical and political events – ranging from the Holocaust to postcolonial conditions – all of which can prove difficult to remember. Combining approaches from literary studies with insights from memory studies, trauma studies, anthropology, the critical medical humanities and media, film and comics studies, this volume explores the politics of dementia and incites new debates on cultures of remembrance, while remaining attentive to the lived reality of dementia.

Dementia, Culture and Ethnicity

Dementia, Culture and Ethnicity
Author: Julia Botsford
Publisher: Jessica Kingsley Publishers
Total Pages: 330
Release: 2015-04-21
Genre: Social Science
ISBN: 0857008811

With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.

Dementia

Dementia
Author: John Swinton
Publisher: SCM Press
Total Pages: 304
Release: 2017-01-31
Genre: Religion
ISBN: 0334049644

Winner of the Michael Ramsay Prize 2016 Dementia is one of the most feared diseases in Western society today. Some have even gone so far as to suggest euthanasia as a solution to the perceived indignity of memory loss and the disorientation that accompanies it. Here, John Swinton develops a practical theology of dementia for caregivers, people with dementia, ministers, hospital chaplains, and medical practitioners as he explores two primary questions: • Who am I when I’ve forgotten who I am? • What does it mean to love God and be loved by God when I have forgotten who God is? Offering compassionate and carefully considered theological and pastoral responses to dementia and forgetfulness, Swinton’s Dementia redefines dementia in light of the transformative counter story that is the gospel.

Designing Environments for People with Dementia

Designing Environments for People with Dementia
Author: Alison Bowes
Publisher: Emerald Group Publishing
Total Pages: 136
Release: 2019-02-08
Genre: Social Science
ISBN: 1787699714

The ebook edition of this title is Open Access and is freely available to read online. This book systematically explores and assesses the quality of the evidence base for effective and supportive design of living environments for people living with Dementia.

Strange Relation

Strange Relation
Author: Rachel Hadas
Publisher: Paul Dry Books
Total Pages: 218
Release:
Genre: Biography & Autobiography
ISBN: 1589882504

"[A] thoughtful and lucid tale of love, companionship, and heartbreaking illness." —Lydia Davis In 2004 Rachel Hadas's husband, George Edwards, a composer and professor of music at Columbia University, was diagnosed with early-onset dementia at the age of sixty-one. Strange Relation is her account of "losing" George. Her narrative begins when George's illness can no longer be ignored, and ends in 2008 soon after his move to a dementia facility (when, after thirty years of marriage, she finds herself no longer living with her husband). Within the cloudy confines of those difficult years, years when reading and writing were an essential part of what kept her going, she "tried to keep track…tried to tell the truth." "If only all doctors and nurses and social workers who care for the chronically ill could read this book. If only patients and family members stricken with such losses could receive what this book can give them. While Strange Relation relates one illness and the life of one family, it is also, poetically, about all illnesses, all families, all struggles, all living. The art achieves the dual life of the universal and the particular, marking it as timeless, making it for us all necessary."—Rita Charon, MD, PhD, Program in Narrative Medicine, Columbia University "Rachel Hadas's own wonderfully resonant poems, along with the rich collection of verse and prose by other writers that she weaves into her story, clarify and illuminate over and over again this thoughtful and lucid tale of love, companionship, and heartbreaking illness—illness that, as she shows us so well, is at once frighteningly alien and also deeply a part of our unavoidable vulnerability as mortal beings. Beautifully written, totally engrossing, and very sad."—Lydia Davis "Strange Relation is a deeply moving, deeply personal, beautifully written exploration of how the power of grief can be met with the power of literature, and how solace can be found in the space between them."—Frank Huyler "A poignant memoir of love, creativity and human vulnerability. Rachel Hadas brings a poet's incisive eye to the labyrinth of dementia."—Danielle Ofri, MD, PhD, author of Medicine in Translation and Singular Intimacies "Like an elegy, Strange Relation is about loss and grief. Like all elegies, it also memorializes and celebrates. Rachel Hadas, in the course of her personal narrative, cites accounts of dementia, in its social and personal meanings."—Robert Pinsky "Brilliant and tough-minded, poignant but clear-headed, Rachel Hadas shines a steady light on her experience as the wife of an accomplished composer who, at a comparatively early age, descended into dementia. Strange Relation never sacrifices truth for easy answers. Instead, Hadas uses literature to chart a course through wrenching complexities. This lauded and exceptional poet shows how language itself, the very thing her husband loses, became her shield as she crossed the ravaged lands of decision-making, making new discoveries, new friends, and new sense of the world. Strange Relation snaps with bravery, intelligence, and Hadas' tart, candid wisdom."—Molly Peacock "Strange Relation is a beautifully written and piercingly honest account of life with a brilliant man as he descends into dementia, in his sixties."—Reeve Lindbergh

Dementia Care in Nursing

Dementia Care in Nursing
Author: Sue Barker
Publisher: Learning Matters
Total Pages: 185
Release: 2012-06-22
Genre: Medical
ISBN: 0857258028

Dementia care presents a huge challenge to health and social care both now and in the future. The number of those in the UK with dementia is expected to increase to 1.4 million in the next 30 years. Regardless of the field of nursing, all nurses need to understand the experiences of a person with dementia and the issues related to their care. This book provides an introduction to dementia care for nursing students with an emphasis on humanizing care. Real life case studies show the person behind the patient and explore the ethical dilemmas that a nurse may face.