Cystic Fibrosis and You

Cystic Fibrosis and You
Author: Y.G. Korneluk
Publisher: McGill-Queen's Press - MQUP
Total Pages: 65
Release: 1996-10-15
Genre: Medical
ISBN: 0773574026

CF and You offers sensible advice on dealing with CF clinic staff, coping with school physiotherapy, and discussing CF with friends and family. In response to concerns voiced by adolescents with CF, this revised edition tackles issues such as sexuality and personal relationships unique to people with CF. Also included is a section dealing with the transition to adult CF clinic care. This book is designed primarily for teens. However, families, clinicians and others whose lives are touched by CF will benefit from this combination of medical information and personal guidance. This new edition explains recent developments in the understanding and treatment of CF such as the discovery of the CF gene, CF carrier testing, and new respiratory and digestive therapies. Comprehensive and accessible, the volume also includes an expanded glossary of medical terms.

Cystic Fibrosis

Cystic Fibrosis
Author: David M. Orenstein
Publisher: Lippincott Williams & Wilkins
Total Pages: 788
Release: 2012-03-28
Genre: Medical
ISBN: 1451154380

This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”

Hodson and Geddes' Cystic Fibrosis

Hodson and Geddes' Cystic Fibrosis
Author: Andrew Bush
Publisher: CRC Press
Total Pages: 675
Release: 2015-07-24
Genre: Medical
ISBN: 1444180010

Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.

Salt in My Soul

Salt in My Soul
Author: Mallory Smith
Publisher: Random House
Total Pages: 336
Release: 2019-03-12
Genre: Biography & Autobiography
ISBN: 1984855433

The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.

Cystic Fibrosis

Cystic Fibrosis
Author: Wayne Kepron
Publisher:
Total Pages: 204
Release: 2004
Genre: Health & Fitness
ISBN: 9781552977408

Explores the symptoms, diagnosis, and treatment of cystic fibrosis; reviews ongoing research; and discusses how to live with the incurable genetic disease that is often called "65 Roses."

Cystic Fibrosis Health Guide

Cystic Fibrosis Health Guide
Author: Anais Sanford
Publisher: Independently Published
Total Pages: 76
Release: 2021-08-16
Genre:
ISBN:

CYSTIC FIBROSIS HEALTH GUIDE: The Comprehensive Guide On Everything You Need To Know About Cystic Fibrosis Symptoms, Causes, Diagnoses, Treatment And Management - Effective Guide for Patients and Families As a genetic disorder, Cystic Fibrosis (CF) impacts the lungs, liver, pancreas, kidneys and intestines. This condition causes frequent lung infections that result in mucus coughing and breathing difficulties. Aside from poor growth, one may experience a sinus infection, clubbing of the toes and fingers, or fatty stool. Most cystic fibrosis cases are caused by mutations of the gene code for the cystic fibrosis transmembrane conductance regulator (CFTR). Cystic fibrosis has been explained in this book in such a way as to provide in-depth knowledge. Throughout this book, we address the most important aspects of this genetic disorder. For those readers who are studying cystic fibrosis, the case studies contained in this book will provide a good foundation for developing a comprehensive understanding. Simply click the "BUY NOW" button to get your copy!

Cystic Fibrosis and You

Cystic Fibrosis and You
Author: Emilie Sasso
Publisher: Publishamerica Incorporated
Total Pages: 24
Release: 2008-09-01
Genre: Cystic fibrosis in children
ISBN: 9781606724057

This book is all about having a positive attitude in life and accomplishing your dreams. My hope in writing this book is to give encouragement to children and teens with cystic fibrosis. My sisters Bonnie and Kate accomplished everything in this book and more with CF. Never let cystic fibrosis hold you back from living life to the fullest.

Understanding Cystic Fibrosis

Understanding Cystic Fibrosis
Author: Karen Hopkin
Publisher: Univ. Press of Mississippi
Total Pages: 144
Release: 2010-02-11
Genre: Health & Fitness
ISBN: 1604739525

Cystic Fibrosis (CF) is the most common genetic disorder in the white population. Since the discovery of the CF gene in 1989, scientists have learned a great deal about the biology of this disease, which strikes one child in every 3.300 births. With the gene pinpointed, scientists are now working on ways to replace it and are developing better tests for early diagnosis. Understanding Cystic Fibrosis charts the progress that has been made in identifying the mutations that cause CF and in understanding how these genetic errors cause a disease whose symptoms can range from mild respiratory distress to life-threatening lung infections. This book features a review of current available treatments; research that can lead to therapies and perhaps a cure; advice and resources for families and patients; how to work best with health-care providers and HMOs; the history and diagnosis of CF; who gets CF and why; how CF affects the lungs, intestines, and other organs; and a list of organizations, support groups, and resources.