Communication and Swallowing Solutions for the ALS/MND Community

Communication and Swallowing Solutions for the ALS/MND Community
Author: Marta S. Kazandjian
Publisher: Singular
Total Pages: 110
Release: 1997
Genre: Health & Fitness
ISBN:

Amyotrophic Lateral Sclerosis, (ALS), also known as Lou Gehrig's Disease or Motor Neuron Disease (MND), continues to be a frightening disease to the patient, family, and friends. In addition to the ongoing deterioration of the muscles, ALS can cause the loss of ability to speak and swallow, and has obvious negative effects on the quality of life of the patient. However, the professionals of Communication Independence for the Neurologically Impaired (CINI), have come together to create this outstanding, resource manual - Communication and Swallowing Solutions for the ALS/MND Community: A CINI Manual. This comprehensive manual enables the patient, family, and medical professional through the stages of ALS/MND; provides patients and caregivers with the knowledge and experience of the professional staff at the CINI; helps patients and families to maintain the highest possible quality of life; provides numerous options available to solve problems in communication and swallowing; and is edited by successful author of recent bestseller, Communication and Swallowing Management of Tracheostomized and Ventilator Dependent Adults. Insightful and sensitive, this invaluable book enables the patient, caregivers, and family to make informed decisions to best manage communication and swallowing difficulties as they arise and illustrates how these solutions can be used to support and resolve the patient's needs.

Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis
Author: Hiroshi Mitsumoto
Publisher: ReadHowYouWant.com
Total Pages: 458
Release: 2010-04
Genre: Family & Relationships
ISBN: 1458753573

ALS, also known as Lou Gehrig's disease, cannot be cured but it can be treated. A great deal can be done to treat the symptoms of ALS, to improve an individual's quality of life, and to help families, caregivers, and loved ones to cope with the disease. This extensively revised and rewritten new edition of the bestselling Amyotrophic Lateral Sclerosis: A Guide For Patients and Families addresses all of those needs, and brings up-to-date important information to those living with the reality of ALS. The book is completely revised throughout and contains NEW information on: Recently developed approaches to treating ALS symptoms Use of non-invasive ventilators Multidisciplinary team care New guidelines being developed by the American Academy of Neurology for patients with ALS The use of riluzole (Rilutek) to treat ALS Amyotrophic Lateral Sclerosis covers every aspect of the management of ALS, from clinical features of the disease, to diagnosis, to an overview of symptom management. Major sections deal with medical and rehabilitative management, living with ALS, managing advanced disease, end-of-life issues, and resources that can provide support and assistance in this time of need.

Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis
Author: Deborah Gelinas
Publisher: Demos Medical Publishing
Total Pages: 258
Release: 2004-10-01
Genre: Health & Fitness
ISBN: 1934559067

ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden.Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations.

Neurological Rehabilitation

Neurological Rehabilitation
Author: Darcy Ann Umphred, PT, PhD, FAPTA
Publisher: Elsevier Health Sciences
Total Pages: 1526
Release: 2012-08-14
Genre: Medical
ISBN: 032307586X

Using a problem-solving approach based on clinical evidence, Neurological Rehabilitation, 6th Edition covers the therapeutic management of people with functional movement limitations and quality of life issues following a neurological event. It reviews basic theory and covers the latest screening and diagnostic tests, new treatments, and interventions commonly used in today's clinical practice. This edition includes the latest advances in neuroscience, adding new chapters on neuroimaging and clinical tools such as virtual reality, robotics, and gaming. Written by respected clinician and physical therapy expert Darcy Umphred, this classic neurology text provides problem-solving strategies that are key to individualized, effective care. UNIQUE! Emerging topics are covered in detail, including chapters such as Movement Development Across the Lifespan, Health and Wellness: The Beginning of the Paradigm, Documentation, and Cardiopulmonary Interactions. UNIQUE! A section on neurological problems accompanying specific system problems includes hot topics such as poor vision, pelvic floor dysfunction, and pain. A problem-solving approach helps you apply your knowledge to examinations, evaluations, prognoses, and intervention strategies. Evidence-based research sets up best practices, covering topics such as the theory of neurologic rehabilitation, screening and diagnostic tests, treatments and interventions, and the patient's psychosocial concerns Information. Case studies use real-world examples to promote problem-solving skills. Non-traditional approaches to neurological interventions in the Alternative and Complementary Therapies chapter include the movement approach, energy approach, and physical body system approaches therapies. Terminology adheres to the best practices of the APTA as well as other leading physical therapy organizations, following The Guide to Physical Therapy Practice, the Nagi model, and the ICF World Health Model of patient empowerment. Updated illustrations provide current visual references. NEW chapters on imaging and robotics have been added. Updated chapters incorporate the latest advances and the newest information in neuroscience and intervention strategies. Student resources on an Evolve companion website include references with links to MEDLINE and more.

Neurological Rehabilitation - E-Book

Neurological Rehabilitation - E-Book
Author: Darcy Ann Umphred
Publisher: Elsevier Health Sciences
Total Pages: 1526
Release: 2013-08-07
Genre: Medical
ISBN: 0323266495

Using a problem-solving approach based on clinical evidence, Neurological Rehabilitation, 6th Edition covers the therapeutic management of people with functional movement limitations and quality of life issues following a neurological event. It reviews basic theory and covers the latest screening and diagnostic tests, new treatments, and interventions commonly used in today's clinical practice. This edition includes the latest advances in neuroscience, adding new chapters on neuroimaging and clinical tools such as virtual reality, robotics, and gaming. Written by respected clinician and physical therapy expert Darcy Umphred, this classic neurology text provides problem-solving strategies that are key to individualized, effective care. UNIQUE! Emerging topics are covered in detail, including chapters such as Movement Development Across the Lifespan, Health and Wellness: The Beginning of the Paradigm, Documentation, and Cardiopulmonary Interactions. UNIQUE! A section on neurological problems accompanying specific system problems includes hot topics such as poor vision, pelvic floor dysfunction, and pain. A problem-solving approach helps you apply your knowledge to examinations, evaluations, prognoses, and intervention strategies. Evidence-based research sets up best practices, covering topics such as the theory of neurologic rehabilitation, screening and diagnostic tests, treatments and interventions, and the patient's psychosocial concerns Information. Case studies use real-world examples to promote problem-solving skills. Non-traditional approaches to neurological interventions in the Alternative and Complementary Therapies chapter include the movement approach, energy approach, and physical body system approaches therapies. Terminology adheres to the best practices of the APTA as well as other leading physical therapy organizations, following The Guide to Physical Therapy Practice, the Nagi model, and the ICF World Health Model of patient empowerment. Updated illustrations provide current visual references. NEW chapters on imaging and robotics have been added. Updated chapters incorporate the latest advances and the newest information in neuroscience and intervention strategies. Student resources on an Evolve companion website include references with links to MEDLINE and more.

The Yale Swallow Protocol

The Yale Swallow Protocol
Author: Steven B. Leder
Publisher: Springer
Total Pages: 164
Release: 2014-05-14
Genre: Medical
ISBN: 331905113X

The Yale Swallow Protocol is an evidence-based protocol that is the only screening instrument that both identifies aspiration risk and, when passed, is able to recommend specific oral diets without the need for further instrumental dysphagia testing. Based upon research by Drs. Steven B. Leder and Debra M. Suiter, an easily administered, reliable and validated swallow screening protocol was developed and can be used by speech-language pathologists, nurses, otolaryngologists, oncologists, neurologists, intensivists and physicians assistants. In addition, the protocol can be used in a variety of environments, including acute care, rehabilitation and nursing homes. The Yale Swallow Protocol meets all of the criteria necessary for a successful screening test, including being simple to administer, cross-disciplinary, cost effective, acceptable to patients and able to identify the target attribute by giving a positive finding when aspiration risk is present and a negative finding when aspiration risk is absent. Additionally, early and accurate identification of aspiration risk can significantly reduce health-care costs associated with recognized prandial aspiration.

Neuromuscular Diseases

Neuromuscular Diseases
Author: Rahman Pourmand
Publisher: Butterworth-Heinemann
Total Pages: 682
Release: 2001
Genre: Medical
ISBN:

This authoritative clinical text provides you with practical approaches to the diagnosis and therapy of neuromuscular diseases. Written by leading neuromuscular specialists, this book offers you expert opinions on how to manage a wide range of neuromuscular disorders.

Palliative Care in Amyotrophic Lateral Sclerosis

Palliative Care in Amyotrophic Lateral Sclerosis
Author: David Oliver
Publisher: OUP Oxford
Total Pages: 353
Release: 2014-03-20
Genre: Medical
ISBN: 0191509507

Amytrophic Lateral Sclerosis (ALS or motor neurone disease) is a progressive neurodegenerative disease that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the patient and their family from the onset of the disease. Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families. Case studies are used to emphasise the complexity of the care needs and involvement of the patient and family, culminating in discussion of bereavement. Different models of care are explored, and this new edition utilizes the increase in both the evidence-base and available literature on the subject. New topics discussed include complementary therapies, personal and family experiences of ALS, new genetics research, and updated guidelines for patient care, to ensure this new edition remains the essential guide to palliative care in ALS.