Care, Loss and the End of Life

Care, Loss and the End of Life
Author:
Publisher: BRILL
Total Pages: 161
Release: 2019-01-04
Genre: Family & Relationships
ISBN: 1848884877

This volume was first published by Inter-Disciplinary Press in 2016. This inter- and multi-disciplinary volume examines various experiences of loss, whether we encounter it in the form of lost loved ones, lost relationships, lost opportunities or the loss of capabilities as we age. Loss is something we can experience personally, as part of a family, and as part of a community whose collective experiences of loss occasions more public displays of commemoration. We are constantly challenged to find ways of coping and surviving in the face of different types of loss. Due in part to the complexities of the concept itself and the resistance many individuals feel toward discussing painful subjects, it is often difficult to engage in the sort of robust, inter-disciplinary dialogue that is needed to explore fully the links between living, suffering, dying, and surviving loss. Thus, this volume is profoundly interdisciplinary, as it explores how loss can be expressed through cognitive, affective, somatic, behavioral/interpersonal, and spiritual grief responses.

The Best Care Possible

The Best Care Possible
Author: Ira Byock
Publisher: Penguin
Total Pages: 338
Release: 2013-03-05
Genre: Social Science
ISBN: 1583335129

A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.

Approaching Death

Approaching Death
Author: Committee on Care at the End of Life
Publisher: National Academies Press
Total Pages: 457
Release: 1997-10-30
Genre: Medical
ISBN: 0309518253

When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."

The Art of Dying Well

The Art of Dying Well
Author: Katy Butler
Publisher: Scribner
Total Pages: 288
Release: 2020-02-11
Genre: Self-Help
ISBN: 1501135473

This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).

Dying Well

Dying Well
Author: Ira Byock
Publisher: Penguin
Total Pages: 321
Release: 1998-03-01
Genre: Medical
ISBN: 110150028X

From Ira Byock, prominent palliative care physician and expert in end of life decisions, a lesson in Dying Well. Nobody should have to die in pain. Nobody should have to die alone. This is Ira Byock's dream, and he is dedicating his life to making it come true. Dying Well brings us to the homes and bedsides of families with whom Dr. Byock has worked, telling stories of love and reconciliation in the face of tragedy, pain, medical drama, and conflict. Through the true stories of patients, he shows us that a lot of important emotional work can be accomplished in the final months, weeks, and even days of life. It is a companion for families, showing them how to deal with doctors, how to talk to loved ones—and how to make the end of life as meaningful and enriching as the beginning. Ira Byock is also the author of The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life.

When Children Die

When Children Die
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 713
Release: 2003-02-09
Genre: Medical
ISBN: 0309084377

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.

The Four Things That Matter Most - 10th Anniversary Edition

The Four Things That Matter Most - 10th Anniversary Edition
Author: Ira Byock
Publisher: Simon and Schuster
Total Pages: 237
Release: 2004-03-08
Genre: Self-Help
ISBN: 0743258606

“This beautiful book, full of wisdom and warmth, teaches us how to protect and preserve our most valuable possessions—the relationships with those we love. It shows that the things that matter definitely aren’t ‘things,’ and how to empower your life in the right direction.” —Dr. Stephen R. Covey, author of The 7 Habits of Highly Effective People Four simple phrases—“Please forgive me,” “I forgive you,” “Thank you,” and “I love you”—carry enormous power to mend and nurture our relationships and inner lives. These four phrases and the sentiments they convey provide a path to emotional wellbeing, guiding us through interpersonal difficulties to life with integrity and grace. Newly updated with stories from people who have turned to this life-altering book in their time of need, this motivational teaching about what really matters reminds us how we can honor each relationship every day. Dr. Ira Byock, an international leader in palliative care, explains how we can practice these life-affirming words in our day-to-day lives. Too often we assume that the people we love really know that we love them. Dr. Byock demonstrates the value of “stating the obvious” and provides practical insights into the benefits of letting go of old grudges and toxic emotions. His stories help us to forgive, appreciate, love, and celebrate one another and live life more fully. Using the Four Things in a wide range of life situations, we can experience emotional healing even in the wake of family strife, personal tragedy, divorce, or in the face of death. With practical wisdom and spiritual power, The Four Things That Matter Most gives us the language and guidance to honor and experience what really matters most in our lives every day.

Between Life and Death

Between Life and Death
Author: Kathryn Butler
Publisher: Crossway
Total Pages: 232
Release: 2019-04-17
Genre: Religion
ISBN: 1433561042

“To prepare yourself to make difficult medical decisions in a distinctly Christian way, you won’t do better than to read Between Life and Death.” —Tim Challies Modern medical advances save countless lives. But for all their merits, sophisticated technologies have created a daunting new challenge, namely a blurring of the expanse between life and death. The dying process is often hidden behind a complex web of medical terminology, statistics, and ethical decisions, making it difficult for patients and loved ones to know how to approach the end of life in a dignity-affirming, Godhonoring, faith-filled way. This book offers a distinctly Christian guide to end-of-life care. It equips readers by explaining common medical jargon, exploring biblical principles that connect to common medical situations, and offering guidance for making critical decisions. In these pages, readers will find the medical knowledge and scriptural wisdom they need to navigate this painful and confusing process with clarity, peace, and discernment.

A Better Death

A Better Death
Author: Ranjana Srivastava
Publisher: Simon and Schuster
Total Pages: 352
Release: 2019-06-01
Genre: Self-Help
ISBN: 1925750965

A powerful, timely exploration of the art of living and dying on our own terms by one of Australia’s most respected voices Of all the experiences we share, two universal events bookend our lives: we were all born and we will all die. We don't have a choice in how we enter the world but we can have a say in how we leave it. In order to die well, we must be prepared to contemplate our mortality and to broach it with our loved ones, who are often called upon to make important decisions on our behalf. These are some of the most important conversations we can have with each other - to find peace, kindness and gratitude for what has gone before, and acceptance of what is to come. Dr Ranjana Srivastava draws on two decades of experience to share her observations and advice on leading a meaningful life and finding dignity and composure at the end. With an emphasis on advocacy, leaving a legacy and staying true to our deepest convictions, Srivastava tells stories of strength, hope and resilience in the face of grief and offers an optimistic meditation on approaching the end of life. Intelligent, warm and deeply affecting, A Better Death is a passionate exploration of the art of living and dying well. Dr Ranjana Srivastava OAM is a practising oncologist, award-winning writer, broadcaster and Fulbright scholar. See www.ranjanasrivastava.com

My Friend, I Care

My Friend, I Care
Author: Barbara Karnes
Publisher:
Total Pages: 14
Release: 1991-01-01
Genre: Bereavement
ISBN:

"My Friend, I Care addresses the normalcy of grieving while offering suggestions for moving forward into living. It is often used as a sympathy card. It offers an expression of caring while giving support and guidance"--Publisher description.