Bwembya’s mother is a story of the journey of a woman who shows courage and resilience in the face of adversity. The story gives an insight into the challenges of living with the inevitability of the loss of a child with a rare metabolic disorder. In between the sadness, there are great joys and celebrations of life at every turn. Bwembya’s mother did not let what happened to her define who she was, she let what happened to her refine who she became. A person who found her voice and spoke up for herself, her child, and for other people. Patricia Kasengele has qualifications in Social Work and Social Policy, and experience in government and non-government organizations. She co-authored a chapter of a clinical handbook in adolescent medicine. She was inspired to write about her experience as a mother of a child with a chronic illness.