Assessing Health Related Quality Of Life And Distress In People With Parkinsons Disease
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Assessing Health-related Quality of Life for Patients with Parkinson's Disease and Atypical Parkinsonian Disorders
| Author | : Kindra Kaye Noe |
| Publisher | : |
| Total Pages | : 106 |
| Release | : 2009 |
| Genre | : Parkinson's disease |
| ISBN | : |
Advances in the treatment of Parkinson's disease (PD) and atypical Parkinsonian disorders (APD) have made it easier for physicians to treat the physical aspects of these diseases. However, it is becoming increasingly evident that more than just the physical symptoms need to be treated in order to improve overall quality of life (QoL) among PD and APD patients. This study assesses the key factors that influence health-related QoL for both PD and APD patients and compares across the two disease groups as well as among the APD group. Three hundred and fifty three patients were used in this study and diagnosed with having PD (187), PSP (50), MSA (65), DLB (34), or CBD (17). Each patient completed the short form-12 (SF-12), Beck's Depression Inventory (BDI), Unified Parkinson's Disease Rating Scale (UPDRS), Mini-Mental State Examination (MMSE), Schwab and England (SE) and the Hoehn and Yahr rating scale (HY) which measured for QoL, depression, mood, behavior, motor functioning, activities of daily living, cognitive function and disease severity. We also looked at age and gender identification. After analyzing the results, APD patients were found to have overall lower health-related QoL than PD patients in earlier age groups when comparing SF-12 PCS scores. MCS scores between PD and APD were not significantly different. In addition, no significant differences were found between SF-12 scores when comparing PSP, MSA, CBD and DLB. Depression was found to be the main determinant of health-related QoL among all disease groups, and was a stronger predictor of QoL for PD than APD. Mood, behavior and mentation were predictors of QoL for PD and DLB. Motor functioning, age and gender were significant determinants of QoL only for PD, while disease severity was a determining factor for MSA and CBD patients. In addition, activities of daily living was a predictor of QoL for PD, DLB, and PSP. This study shows that various factors affect health-related QoL differently among different disease groups and should be taken into consideration by physicians in order to provide the best medical care possible.
Quality of Life Assessment: Key Issues in the 1990s
| Author | : S.R. Walker |
| Publisher | : Springer Science & Business Media |
| Total Pages | : 491 |
| Release | : 2012-12-06 |
| Genre | : Medical |
| ISBN | : 9401129886 |
It was over five years ago that the Centre for Medicines Research organized a workshop entitled "Quality of Life: Assessment and Application". This workshop brought together a unique group of participants, some of whom had been involved in studies on quality of life for well over a decade, whilst others were meeting the subject for the first time. This blend of experienced researchers and enthusiastic newcomers was a great stimulus to the discus sions which followed individual presentations as well as that resulting from the study groups. In the ensuing publication, a balance was sought between a consideration of the complex principles underlying the assessment of quality of life and the application of such assessments to specific clinical conditions which necessitated this approach. The organization in 1991 of a second workshop entitled "Quality of Life Assessment: Key Issues in the 1990s" resulted in a further consideration of the quality of life philosophy, concepts and key instruments together with an update on assessing quality of life in a number of major disease areas. Of particular importance was an examination of various viewpoints concerned with ethical questions and their implications, and quality oflife from industry, regulatory and health care purchasers' perspectives. As a result of this second workshop, the editors of the original book referred to above decided to produce a second edition with a number of updates and additional chapters.
Health-related Quality of Life in Individuals with Parkinson’s Disease
| Author | : Clare Friedlander |
| Publisher | : |
| Total Pages | : 59 |
| Release | : 2018 |
| Genre | : |
| ISBN | : |
Motor impairment, cognitive decline and speech disruption are prevalent consequences of Parkinson’s disease (PD) and have been shown to impact quality of life. However, the relative influence of each of these domains on quality of life is unknown. This study is designed to assess the determinants of health-related quality of life (HRQoL) in individuals with PD. Metrics examined participant’s cognitive, motor and speech impairment, as well as their perception of how the deficits impacted their HRQoL. Results revealed meaningful, significant predictive relationships when considering severity of motor symptoms, and communication participation. Overall, these results indicate a combination of speech and motor deficits may be the best predictor of overall quality of life.
The Wiley Handbook on the Aging Mind and Brain
| Author | : Matthew Rizzo |
| Publisher | : John Wiley & Sons |
| Total Pages | : 807 |
| Release | : 2018-05-29 |
| Genre | : Psychology |
| ISBN | : 111877177X |
A thought-provoking treatise on understanding and treating the aging mind and brain This handbook recognizes the critical issues surrounding mind and brain health by tackling overarching and pragmatic needs so as to better understand these multifaceted issues. This includes summarizing and synthesizing critical evidence, approaches, and strategies from multidisciplinary research—all of which have advanced our understanding of the neural substrates of attention, perception, memory, language, decision-making, motor behavior, social cognition, emotion, and other mental functions. Written by a plethora of health experts from around the world, The Wiley Handbook on the Aging Mind and Brain offers in-depth contributions in 7 sections: Introduction; Methods of Assessment; Brain Functions and Behavior across the Lifespan; Cognition, Behavior and Disease; Optimizing Brain Function in Health and Disease; Forensics, Competence, Legal, Ethics and Policy Issues; and Conclusion and New Directions. Geared toward improving the recognition, diagnosis, and treatment of many brain-based disorders that occur in older adults and that cause disability and death Seeks to advance the care of patients who have perceptual, cognitive, language, memory, emotional, and many other behavioral symptoms associated with these disorders Addresses principles and practice relevant to challenges posed by the US National Academy of Sciences and National Institute of Aging (NIA) Presents materials at a scientific level that is appropriate for a wide variety of providers The Wiley Handbook on the Aging Mind and Brain is an important text for neurologists, psychiatrists, psychologists, physiatrists, geriatricians, nurses, pharmacists, social workers, and other primary caregivers who care for patients in routine and specialty practices as well as students, interns, residents, and fellows.
Measuring Health Status
| Author | : Sonja M. Hunt |
| Publisher | : Taylor & Francis |
| Total Pages | : 283 |
| Release | : 1986-01-01 |
| Genre | : Health status indicators |
| ISBN | : 9780709935841 |
Guide to Assessment Scales in Parkinson’s Disease
| Author | : Pablo Martinez-Martin |
| Publisher | : Springer |
| Total Pages | : 100 |
| Release | : 2013-12-11 |
| Genre | : Medical |
| ISBN | : 9783319040240 |
Parkinson’s disease (PD) affects approximately 4 million people globally and is most commonly seen in people over the age of 50. The disease is a progressive disorder of the nervous system, and presents a number of movement and cognitive symptoms, thereby greatly affecting a patients quality of life. The use of scales for assessment in neurological disorders such as PD arises from the need to quantify disorders and states (such constructs as disability, symptoms, quality of life). Assessment scales are often categorised into two categories: generic (ie. those scales usable in any health condition), and specific (ie. scales developed for exclusive use in PD). They can have a variety of components: single-item and multi-item or composite scale; unidimensional and multidimensional; and as disease-centered and patient-centered measures. The creation and validation of scales is complex, with scales undergoing numerous studies to assess criteria such as acceptability, reliability, and responsiveness. In the process of validation of a scale the following attributes should be tested to ascertain whether a scale is an effective instrument of measurement. This Guide assesses the key clinimetric attributes in the assessment of PD, with the intention to offer rapid and pragmatic information on the most relevant scales used in PD.
Meta-Ethnography
| Author | : George W. Noblit |
| Publisher | : SAGE |
| Total Pages | : 112 |
| Release | : 1988-02 |
| Genre | : Social Science |
| ISBN | : 9780803930230 |
How can ethnographic studies be generalized, in contrast to concentrating on the individual case? Noblit and Hare propose a new method for synthesizing from qualitative studies: meta-ethnography. After citing the criteria to be used in comparing qualitative research projects, the authors define the ways these can then be aggregated to create more cogent syntheses of research. Using examples from numerous studies ranging from ethnographic work in educational settings to the Mead-Freeman controversy over Samoan youth, Meta-Ethnography offers useful procedural advice from both comparative and cumulative analyses of qualitative data. This provocative volume will be read with interest by researchers and students in qualitative research methods, ethnography, education, sociology, and anthropology. "After defining metaphor and synthesis, these authors provide a step-by-step program that will allow the researcher to show similarity (reciprocal translation), difference (refutation), or similarity at a higher level (lines or argument synthesis) among sample studies....Contain(s) valuable strategies at a seldom-used level of analysis." --Contemporary Sociology "The authors made an important contribution by reframing how we think of ethnography comparison in a way that is compatible with the new developments in interpretive ethnography. Meta-Ethnography is well worth consulting for the problem definition it offers." --The Journal of Nervous and Mental Disease "This book had to be written and I am pleased it was. Someone needed to break the ice and offer a strategy for summarizing multiple ethnographic studies. Noblit and Hare have done a commendable job of giving the research community one approach for doing so. Further, no one else can now venture into this area of synthesizing qualitative studies without making references to and positioning themselves vis-a-vis this volume." -Educational Studies
Coping with Disease
| Author | : Annette V. Lee |
| Publisher | : Nova Publishers |
| Total Pages | : 306 |
| Release | : 2005 |
| Genre | : Medical |
| ISBN | : 9781594542763 |
If there is a single challenge a person faces in every stage of life from birth to death, it is the necessity of coping with life's exigencies. These often include health problems, social stress, and perceived difficulties. The ability to deal with these issues defines an individual to a large extent and can accelerate or brake one's development in the multitude of mental and physical pathways intrinsic to life. Coping behaviours include talking out a problem, crying, laughing, relaxation, ignoring the problem, praying, looking for the positive aspects of a situation, assuming everything is terrible, taking medication, hoping a problem will go away, attacking the problem with willpower, cognitive therapy etc. This new book examines new research which will shed light on coping behaviours in a vast array of disease situations.
