An Exploration Of The Caregiver Meaning And Experience Of Having A Hospice Nurse Case Manager
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Patient Safety and Quality
Author | : Ronda Hughes |
Publisher | : Department of Health and Human Services |
Total Pages | : 592 |
Release | : 2008 |
Genre | : Medical |
ISBN | : |
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Families Caring for an Aging America
Author | : National Academies of Sciences, Engineering, and Medicine |
Publisher | : National Academies Press |
Total Pages | : 367 |
Release | : 2016-11-08 |
Genre | : Medical |
ISBN | : 0309448093 |
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Caring for the Family Caregiver
Author | : Elaine Wittenberg |
Publisher | : Oxford University Press, USA |
Total Pages | : 241 |
Release | : 2020-09-11 |
Genre | : Medical |
ISBN | : 0190055235 |
"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--
After Diagnosis: Family Caregiving with Hospice Patients
Author | : John G. Bruhn |
Publisher | : Springer |
Total Pages | : 64 |
Release | : 2016-02-19 |
Genre | : Social Science |
ISBN | : 3319298038 |
This brief provides approaches to help family caregivers understand the role of caregiving, its challenges and consequences. Using real life case examples, it illustrates the essentials of family caregiving. The caregiving role can be a source of caregiver stress and can become increasingly burdensome. People are now living longer and acquiring chronic diseases, which makes it necessary to involve caregivers to assist in disability care for longer periods of time, and live out their end-time at home, which means caregivers are more and more needed, especially at the end-of-life. This brief illustrates the role and scope of caregiving and its future growth. It is useful to physicians, social workers, sociologists, psychologists, nurses, public health, public policy and families and has a broad appeal for use in courses on Death and Dying.
Home Hospice Navigation
Author | : Judith Sands |
Publisher | : |
Total Pages | : 116 |
Release | : 2018-04-19 |
Genre | : |
ISBN | : 9781986824729 |
Take the guesswork out of home hospice caregiving! HOME HOSPICE NAVIGATION: THE CAREGIVER'S GUIDE offers a clear roadmap, guidance, and support for anyone who has to navigate the caregiving maze. It is sparkled with personal anecdotes and tips by the author, a healthcare professional, nurse, case manager and loving daughter. The book is also an integral resource for healthcare professionals and students working with hospice patients and caregivers.Clearly written and well organized, it is a comprehensive resource for those with a life-threatening illness and individuals wishing to open the end-of-life discussion with a loved one. The book helps you understand best practices so you can make better choices. Addresses hospice misconceptions and allays fears and anxieties of what to expect Provides clear and concise caregiving information and pertinent resources How to interact with the various hospice professionals
Stress and Burnout Among Providers Caring for the Terminally Ill and Their Families
Author | : Lenora F Paradis |
Publisher | : Routledge |
Total Pages | : 289 |
Release | : 2014-02-04 |
Genre | : Medical |
ISBN | : 1135851069 |
Written primarily by individuals with hands-on hospice experience, this crucial volume identifies sources of stress among hospice workers and provides workers and managers with strategies to cope with those stressors. It is an enlightening examination of diverse theoretical perspectives and a much needed investigation on stress and burnout for hospice providers and caregivers. Readers will find concrete suggestions for the alleviation of stress and burnout in their work with the terminally ill, as well as theoretical and research discussions. The authors explore a wide range of subjects and problems faced by nurses, physicians, social workers, caregivers, hospice directors, and volunteers. They also discuss the many factors in hospice care that may foster unfavorable stress reactions and eventual burnout among hospice professionals. Current literature on job stress and burnout among those who care for the terminally ill is examined and a model of stress and burnout specific to hospice caregivers is presented. The authoritative chapters also identify theories of stress and burnout and the distinction between the two. Anyone who deals with chronic and terminal illness should read Stress and Burnout Among Providers Caring for the Terminally Ill and Their Families. Hospice caregivers and volunteers, social works, clergy, and health care professionals who work with cancer, renal dialysis, and heart and stroke patients will appreciate the attention given to a subject that has received little study.
Reflections from a Hospice Nurse
Author | : Kathy Bezinovich |
Publisher | : |
Total Pages | : 68 |
Release | : 2016-11-22 |
Genre | : Family & Relationships |
ISBN | : 9781524547653 |
The recently bereaved are the only ones who really know how fragile life is." Caring for a dying loved one is the hardest job a person will ever have. If you find yourself in this position, choosing the best hospice care for your loved one will help them and you by providing the support you need to assure the dying person the most dignified, comfortable, peaceful and natural end of life possible. This book, written by a hospice nurse with over 30 years of nursing experience, contains insights about hospice care, and numerous stories of dying patients and their caregivers.
Caregiving
Author | : Doug C. Smith |
Publisher | : John Wiley & Sons |
Total Pages | : 244 |
Release | : 1997-09-22 |
Genre | : Family & Relationships |
ISBN | : |
Drawing on his experience as a hospice worker and instructor, Douglas Smith provides practical tools and techniques to enable family, friends, and caregivers to become a positive force in their patients' lives. Rich in stories and personal insights, "The Rights of the Sick and Dying" also offers ways in which patients can evaluate and improve their own care with this "Patient's Bill of Rights".
Demystifying Hospice
Author | : Karen J. Clayton |
Publisher | : Rowman & Littlefield Publishers |
Total Pages | : 184 |
Release | : 2020-11-15 |
Genre | : Caregivers |
ISBN | : 9781538147245 |
Hospice care helps make the end of life the best it can be, yet the experience can be both rewarding and stressful to those involved. Karen Clayton's stories address end-of-life choices, palliative care, mixed feelings about hospice, care for the caregivers, managing dramatic incidents and fear, social isolation, saying goodbye, and remembering.